Chronic Illnesses of Millions of Women Left Untreated

Cosmopolitan magazine today published a stark and disturbing article about one woman’s fate in the hands of modern medical treatment-givers. Here’s the link to the distressing article: https://www.cosmopolitan.com/lifestyle/a12779054/what-is-chronic-fatigue-syndrome/.

Brea was eventually diagnosed with myalgic encephalomyelitis (ME), more commonly known as chronic fatigue syndrome (CFS) in the United States. No longer able to read and write, she began an iPhone video diary to document her experience.

Her documentary, “Unrest,” which is out now in select theaters and will be on iTunes next month, features that footage, along with interviews with other severely ill ME/CFS patients, which Brea conducted from her bed via Skype. It provides a harrowing look at what it’s like to live with this one poorly understood, incurable disease that’s estimated to affect about 800,000 to 2.5 million Americans.

Many women also suffer from other invisible chronic diseases — from fibromyalgia to vulvodynia to interstitial cystitis to migraine — that have historically been seen as psychosomatic and remain poorly understood.

Thanks for sharing this article Martin @predictable. She also has a great TED talk. It's good to see this get a lot of coverage with so many women affected.

What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

John

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Thank you, Martin, @predictable and John, @johnbishop for this information.

Women's illnesses still get put on the back-burner so to speak and this is important information for all of us.

Teresa

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@predictable @johnbishop and Other Mentors and Moderators

I think that it would be good to copy this post to Women's Health and/or Just Want to Talk. This would be of interest to a lot of our female Members and would undoubtedly start some more conversation. What do you think? Teresa

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Teresa @hopeful33250 I think that would be a good idea. It would help with the visibility and I'm sure would start some conversations. I shared it on my Facebook page for friends and family. John

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@hopeful33250

@predictable @johnbishop and Other Mentors and Moderators

I think that it would be good to copy this post to Women's Health and/or Just Want to Talk. This would be of interest to a lot of our female Members and would undoubtedly start some more conversation. What do you think? Teresa

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Interesting article! I remember when we lived in New Mexico. My wife and I both hurt our backs. The doctors put me in the hospital for 24 hours of intensive paint management, therapy, etc. saying 'we have to get you back to work'. They literally told my wife 'why don't you go home, relax on the sofa, and you'll feel better'. She worked too, but that was of no concern to the doctors!

Hopefully the world is changing….at least a little bit!

Strength, courage, and peace!

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@johnbishop

Teresa @hopeful33250 I think that would be a good idea. It would help with the visibility and I'm sure would start some conversations. I shared it on my Facebook page for friends and family. John

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Good idea – I'll share it on FB as well.

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@hopeful33250

@predictable @johnbishop and Other Mentors and Moderators

I think that it would be good to copy this post to Women's Health and/or Just Want to Talk. This would be of interest to a lot of our female Members and would undoubtedly start some more conversation. What do you think? Teresa

Jump to this post

@IndianaScott

Thank you for that example, Scott. It made me angry just reading about the discrepancy between your treatment and your wife's. Enough to make my blood boil – OK, I'll get off of my soap box. @colleenyoung, can you copy this discussion under either Women's Health or Just Want to Talk? Teresa

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@johnbishop

Thanks for sharing this article Martin @predictable. She also has a great TED talk. It's good to see this get a lot of coverage with so many women affected.

What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

John

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Thank you John. This is very enlightening. I have suspected that this has been happening for some time now. This is happening not just with me but with other women (and men) for a long time now. I wonder if the same knowledge is being taught in the medical schools now that has been taught in the past. The doctors of today do not seem as knowledgeable as the doctors of yesterday. Are they passing students who perhaps are cheating on the exams? Or perhaps have they lowered the standards???? This is not to put down the medical field in any way but to examine this very, very carefully because people's lives are at stake here.

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I can relate. I too suffer from chronic symptoms. I have seen 8 specialists. For over 3 years I have chronic symmertic burning in both arms and hands (prickly, tingling burning hot/cold sensation) Chronic double vision in R eye is 6th Cranial Nerve Palsy. I now have a pulsating buzz in my left foot. I can not get any answers. I don't know if it is because medical standards are lower, I am female, or because I am 71. I feel blown off by Drs. I would love to hear a Dr. say, I can't help you but I know someone who can. Luckily I never give up, I am hopeful.

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@finnie

I can relate. I too suffer from chronic symptoms. I have seen 8 specialists. For over 3 years I have chronic symmertic burning in both arms and hands (prickly, tingling burning hot/cold sensation) Chronic double vision in R eye is 6th Cranial Nerve Palsy. I now have a pulsating buzz in my left foot. I can not get any answers. I don't know if it is because medical standards are lower, I am female, or because I am 71. I feel blown off by Drs. I would love to hear a Dr. say, I can't help you but I know someone who can. Luckily I never give up, I am hopeful.

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Dear Finnie, wow! You have hit the nail on the head. Do not worry on this to much as there is not much we can do. I am 82 and this attitude of many of the doctors is because (I think) they really do not care, it is beyond their expertise, or our age is a turn off, and if they have not suffered enough in their lifetime to understand, and on and on. But we all know this. Notice I said ,"many" of the doctors and not all of them. We cannot take this to seriously. I do not think that the doctors of today are as educated as what was before. Perhaps the educational system has regressed and on and on. What I do is to research on line, in books, wherever we can and with some common sense perhaps we can find some relief with diet firstly and loving ourselves. I do care for you and I am sure there are others as well. Do take care of yourself. Peach

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