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Chronic Illnesses of Millions of Women Left Untreated

Posted by @predictable, Sun, Jun 17 12:46pm

Cosmopolitan magazine today published a stark and disturbing article about one woman’s fate in the hands of modern medical treatment-givers. Here’s the link to the distressing article: https://www.cosmopolitan.com/lifestyle/a12779054/what-is-chronic-fatigue-syndrome/.

Brea was eventually diagnosed with myalgic encephalomyelitis (ME), more commonly known as chronic fatigue syndrome (CFS) in the United States. No longer able to read and write, she began an iPhone video diary to document her experience.

Her documentary, “Unrest,” which is out now in select theaters and will be on iTunes next month, features that footage, along with interviews with other severely ill ME/CFS patients, which Brea conducted from her bed via Skype. It provides a harrowing look at what it’s like to live with this one poorly understood, incurable disease that’s estimated to affect about 800,000 to 2.5 million Americans.

Many women also suffer from other invisible chronic diseases — from fibromyalgia to vulvodynia to interstitial cystitis to migraine — that have historically been seen as psychosomatic and remain poorly understood.

REPLY

Thanks for sharing this article Martin @predictable. She also has a great TED talk. It's good to see this get a lot of coverage with so many women affected.

What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

John

Thank you, Martin, @predictable and John, @johnbishop for this information.

Women's illnesses still get put on the back-burner so to speak and this is important information for all of us.

Teresa

@predictable @johnbishop and Other Mentors and Moderators

I think that it would be good to copy this post to Women's Health and/or Just Want to Talk. This would be of interest to a lot of our female Members and would undoubtedly start some more conversation. What do you think? Teresa

Teresa @hopeful33250 I think that would be a good idea. It would help with the visibility and I'm sure would start some conversations. I shared it on my Facebook page for friends and family. John

@hopeful33250

@predictable @johnbishop and Other Mentors and Moderators

I think that it would be good to copy this post to Women's Health and/or Just Want to Talk. This would be of interest to a lot of our female Members and would undoubtedly start some more conversation. What do you think? Teresa

Jump to this post

Interesting article! I remember when we lived in New Mexico. My wife and I both hurt our backs. The doctors put me in the hospital for 24 hours of intensive paint management, therapy, etc. saying 'we have to get you back to work'. They literally told my wife 'why don't you go home, relax on the sofa, and you'll feel better'. She worked too, but that was of no concern to the doctors!

Hopefully the world is changing….at least a little bit!

Strength, courage, and peace!

@johnbishop

Teresa @hopeful33250 I think that would be a good idea. It would help with the visibility and I'm sure would start some conversations. I shared it on my Facebook page for friends and family. John

Jump to this post

Good idea – I'll share it on FB as well.

@hopeful33250

@predictable @johnbishop and Other Mentors and Moderators

I think that it would be good to copy this post to Women's Health and/or Just Want to Talk. This would be of interest to a lot of our female Members and would undoubtedly start some more conversation. What do you think? Teresa

Jump to this post

@IndianaScott

Thank you for that example, Scott. It made me angry just reading about the discrepancy between your treatment and your wife's. Enough to make my blood boil – OK, I'll get off of my soap box. @colleenyoung, can you copy this discussion under either Women's Health or Just Want to Talk? Teresa

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