Ascending Aortic Dilation - Ascending Aortic Aneurysm

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

Jump to this post

I joined this group today. I am a 73 YO female and have a lot of heart issues that worry me: CAD, Valvular Disease (aortic and mitral), ascending aortic aneurysm (3.9 CM as measured on an echo). The CAD was diagnosed 11 years ago through a calcium scan and then I began treatment with a cardio and had all the usual tests. I guess I am most concerned about having a heart attack and not know what is happening as the female experience is so different from that of males. I am also worried that I will be in a situation where immediate treatment is not available, such as on a plane or while riding a bike on a trail. I am appreciating reading the experiences of others with similar diagnosis's.

REPLY
@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

Jump to this post

Hi Laverne,
I think I would be careful of the free weights: I was told not to lift more than 25 lbs. It is my understanding that the CT scan measures the aneurysm on the bias (and will measure larger) and the echo measures it straight across the artery. To limit the amount of radiation you are getting, you may wish to discuss having the monitoring done via echos. Hopefully the aneurysm will be stable.

REPLY
@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

Jump to this post

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Please don’t worry too much. Mayo’s heart and vascular doctors are the very best. I had a large aneurysm and even before I finished the tests like yours, I was scheduled for surgery. Not only are the surgeons so very skilled, they are also extremely kind and caring. I had no problems and the recovery was not nearly as painful or as bad as I thought it would be. Take care and good luck to you. You are in wonderful hands!

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Please try not to be too anxious. Thank goodness you found it when you did. Sounds like you're in good hands now. Keep us posted on how you're doing and let us know how you make out after your tests. I was diagnosed in 2012. Mine was 4.1 cm in 2012 and is now 4.3-4.5 cm. I am going back the end of September for six month check up again. Another CAT scan or echo. Please don't worry and keep us posted on how you're doing it's good to hear from people. It helps all of us when we talk about it I think.

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Hello @debbydiane and welcome to Mayo Connect,

Your concern regarding your new diagnosis is certainly understandable! I am very glad to hear that you will be getting a follow-up at Mayo. You will undoubtedly get a good work up and second opinion. Your anxiety is normal, but I'm sure once you meet the doctors and medical team at Mayo, you feel more assured by them on the right approach to take.

If you are comfortable sharing more: Were you having any symptoms before this was found? Is there a history of this type of problem in your family?

I look forward to hearing from you after your appointment or before then if you feel a need to talk and share your concerns.

Teresa

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

This is quite a surprise for you. And your MDs will move quickly on this. You are right not to take it lightly, and be wise to consult on the big surgery or to have it stented. If you are a senior citizen, the stent is more annoying to monitor but the placement is less trauma on your body. Take someone with you on your appointments. Being calm and problem solving will is the best. You need someone in the hospital with you and then at home until you are able. Best wishes

REPLY
@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

Jump to this post

Thanks everyone. I do wish I could go to Mayo Clinic . I am up in Canada and really hope the doctor is up on all this. I will do my best not to worry to much. Follow up is in October. I am 63 and in reasonable condition, non smoker no hypertension, a little high cholesterol and maybe 10 lbs over weight. I will do my best to follow all instructions. I guess if abdominal pain returns I will just be a thorn in the doctors side. LOL

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Hello Theresa there is no family history I am aware of. I keep trying to figure it out too. No hypertension non smoker. Not very overweight maybe 10lbs cholesterol is my only negative side.
It doesn’t make sense. I have had abdominal pains off and on for a couple years. It comes and goes. It was an odd chest type pain that felt worse when I leaned forward that took me to the Er and all the tests started then. It is unsettling thinking nothing is to be done other than monitoring. Because you don’t really know what’s happening inside. Oh well. It is what is

REPLY
@janet26

Thanks everyone. I do wish I could go to Mayo Clinic . I am up in Canada and really hope the doctor is up on all this. I will do my best not to worry to much. Follow up is in October. I am 63 and in reasonable condition, non smoker no hypertension, a little high cholesterol and maybe 10 lbs over weight. I will do my best to follow all instructions. I guess if abdominal pain returns I will just be a thorn in the doctors side. LOL

Jump to this post

Hello @janet26

When you see your doctor in October for a follow up bring a list of questions/concerns that you have. This will help make your appointment more efficient.

Also, I noticed in a previous post that you wrote: "he wants me to start on a cholesterol lowering drug at very low levels with gradual increase in hopes to strengthen artery walls and a lus dose asa." Perhaps this is the reason for the wait? You might ask that question.
Feel free to specifically ask when is the appropriate time to have surgery or other treatment for this condition.

I certainly can understand your concerns. I hope your next appointment will give you some answers that will put your mind at ease and help you through this waiting period.

I look forward to hearing from you again.

Teresa

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Hi Teresa the CT scanned revealed that I also have CoA. This came as a complete shock. After all the testing was done I met with my surgeon for a consult. He thinks I should have surgery soon and wants to do it in August. I am going to need 2 surgeries. The first one to address the CoA and the second one to address the BAV and aneurysm after I have fully recovered from the first one. I always believed I was in pretty good health so these heart issues have thrown me for a loop. The only symptoms I can ever remember are heart flutter which never happened that often. It was not until I had the small bowel obstruction this past May that I found out about the BAV. I had no idea the obstruction and my heart issues were connected. At present I am waiting for the surgeon to get back to me to find out the exact date of surgery. BTW I really liked my cardiologist and surgeon. They were wonderful.

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

I have a great support system. My husband is with me at all times and I have a grown daughter and parents who are going to hold things down here at home while I am in the hospital. I am glad I got the second opinion. I never would have known about the CoA. Thank you for responding.

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Thank you!

REPLY
@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

Jump to this post

Hello @debbydiane and thank you so much for letting me know how your appointment went. I know you were shocked by the unexpected DX of CoA, but isn't good to know about it rather than having it as an uncertainty?

I am so glad that you liked the cardiologist and the surgeon. A comfort level with your medical professionals tends to give you more confidence and less anxiety about a procedure. Will you let me know the date that your first surgery will be scheduled?

You mentioned that the bowel obstruction and the heart problem were connected, I'm not sure I understand. Can you tell me more about that?

Teresa

REPLY
@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

Jump to this post

Hi! I just found out a month ago that I have a 4.0 ascending aortic aneurysm. My calcium score was 116. I saw my cardiologist and have another appointment in 2 months. I am very nervous about this. I am 67. My sister who is 60 has the same thing. She has know about it for 5 or 6 years with no change. I would love a second opinion — I live in Florida.

REPLY
Please login or register to post a reply.