Ascending Aortic Dilation - Ascending Aortic Aneurysm

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

very interesting. Now have some questions for my cardiologist. I am having a ct scan with contrast next week. Will be my second scan in last 6 months. I feel better about myself as i gain knowledge. I have cut my weight lifting to 20 pounds and do a lot of reps. Waiting for weather to improve so biking and gardening can begin. Last scan showed 4.8 even though three people read it and one said 4.0, the cardiologist said 4.2 and the surgeon said 4.8. They all measured differently. Now i wait for the next results. Ifeel knowledge helps to reduce anxiety and my BP.

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@cobweb

very interesting. Now have some questions for my cardiologist. I am having a ct scan with contrast next week. Will be my second scan in last 6 months. I feel better about myself as i gain knowledge. I have cut my weight lifting to 20 pounds and do a lot of reps. Waiting for weather to improve so biking and gardening can begin. Last scan showed 4.8 even though three people read it and one said 4.0, the cardiologist said 4.2 and the surgeon said 4.8. They all measured differently. Now i wait for the next results. Ifeel knowledge helps to reduce anxiety and my BP.

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I usually get a chest scan and an echo and they both been pretty accurate 4.5. Been stable for the past year so I go every six months now Dr. wanted me to go for my next one in a year and I said I’d rather go every six months for now.

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I have found they all may be correct. My first reading was 4.0, 4.5 and 4.8 all from the same CT Scan, different people reading. Yes, stressful, but what does that get you? I have backed off lifting heavy objects and when i work out i will do 40 at 20 pounds instead of 15 at 50. Beat goes on.

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I had the same type of issue. It went from 4.7 to 4.9 but they said it was "no change". I asked about that and they said it depends on where it was measured exactly so the number varies. The important part is when they compare the previous to the current and they say "no change". Frustrating, but it is what it is so we just wait. And live a good life..

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@lynnw

I had the same type of issue. It went from 4.7 to 4.9 but they said it was "no change". I asked about that and they said it depends on where it was measured exactly so the number varies. The important part is when they compare the previous to the current and they say "no change". Frustrating, but it is what it is so we just wait. And live a good life..

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I certainly wish there were a different way of measuring the size of an aneurysm, or, better yet, one I can understand. As my last CT Scan report stated a larger size than the previous year, I was so alarmed I later called the cardiology department nurse to ask for an explanation and the answer I received was so ambiguous & confusing it was apparent it was a search for a reply. When I'm told not to worry when I see the size getting larger, its very hard not to become even more frightened than what I already am. Can anyone offer a reasonable answer?

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no, i had three different numbers from the same reading. Surgeon told me he reads it different. What i keep hearing is pain attention to a pain in the back or chest and hope your near a hospital.

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@prward

I certainly wish there were a different way of measuring the size of an aneurysm, or, better yet, one I can understand. As my last CT Scan report stated a larger size than the previous year, I was so alarmed I later called the cardiology department nurse to ask for an explanation and the answer I received was so ambiguous & confusing it was apparent it was a search for a reply. When I'm told not to worry when I see the size getting larger, its very hard not to become even more frightened than what I already am. Can anyone offer a reasonable answer?

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I can’t explain measuring process but I understand the worrying factor completely. Mine was 10.5 when first detected and I had an endovascular stent procedure 3 weeks later. I was scared to death. I do think that medical personnel are really pretty tuned in to which ones present imminent danger. It’s stressful but monitoring it is a good thing.

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@skeeter75

I can’t explain measuring process but I understand the worrying factor completely. Mine was 10.5 when first detected and I had an endovascular stent procedure 3 weeks later. I was scared to death. I do think that medical personnel are really pretty tuned in to which ones present imminent danger. It’s stressful but monitoring it is a good thing.

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I agree – monitoring is so important. Thanks for responding skeeter75!

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i was told 4.0 or 4.6 or 4.8. Read by 3 people. Did the scan again and now its 4.6-4.8. Ok, do it agai in another year they say. Ok, lets do that and go about my life. Stress does me no good. Have noticed my BP is lower with that attitude the going bonkers. Your choice.

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@estanley2008

Hi this is my 1st post. I a 45 year old female. Not over weight but I smoke. After having what feels like muscle tearing and dizziness I went to the er a month ago. I was told I had a 3.2 dilation ascending aorta and to follow up with a doctor. The er called umc who said they would not even see me at that size, even with symptoms. The pain comes in goes. My primary did a new cta Friday it said it is 3.4. They gave me the number to the doctors at USA in mobile. I also am calling mayo I’m the morning.
It seems small but, I can hear my heart beat in my shoulder and I have a history of brain aneurysms. What doctors do I need to see at the mayo hospital? I’m so full of anxiety now.
What should I ask for and who should I see? I wanted to add I now have a appointment Thursday to see a surgeon at USA in mobile.
Thank you all for listening any advice would be helpful!!

Ps- this has went on for months. They have ran so many test on me and they all came back good till last month. I had a heart ultrasound 3 months ago that was fine.. I told them something was wrong.

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I glad you share your information. I don’t know what’s going on I myself was told i Have a ascending aorta was 3.3 from a ct scan with contrast. And it was negative with no aneurysm or other finding. But I had a echo done before then saying it was 3.7. I’m so confused. Just wanted to know how you are dealing with this. I will be seeing a cardiologist doctor to tell me more about this

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@latrisha @rory The measurements for the CT scan of the aorta and the echocardiogram of the aorta are not done the same way. One is measured on the bias and the other is measured straight across. So you can't compare the two measurements from different tests as they won't be identical. I believe the CT scan is the more accurate test but it carries a lot of radiation. Most cardios will follow an aneurysm through echocardiograms which have no radiation. Rory, I am guessing your cardio is suggesting an echo in 6 months so he/she can determine the stability of the aneurysm. Latrisha, it looks like you got very good news and may not have an aneurysm at all.

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@maryswims

What a leaky ol’ Boat we’re in! But you know, keep on living and enjoying, we will be ok!

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I just found out my favorite local musician is going in for open-heart on an AA. And his friend, on Facebook mentioned that he had just had the surgery too. So I started messaging that friend and found out that they discovered his because he had a heart murmur. It was immediately scanned and scanned again so six months later and they decided they needed emergency operation for him because it grew so fast !They told him that he would not live six months more with it! But he is very lucky they discovered him at the point he was already at! And he’s fine now, better than ever. He did mention something about ask the doctor if you can “preserve the aorta”:By that he means keep your old aorta and not replace with a pig tissue. Apparently those grafts have to be replaced in 18 years.

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