Ascending aorta dialation

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

If we have 40% chance of rupture, why do they wait until we are at 5cm?

@anniejam

If we have 40% chance of rupture, why do they wait until we are at 5cm?

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I guess it would be considered prophylactic, to operate when it has a 60% chance of stabilizing.. The surgery maybe not worth the risk? IDK.. I had a polyp and they weren’t 100%sure of NO cancer, even though biopsies were negative. so I had 6” of colon removed, also the important ICvalve, so they could dissect the polyp afterward, which turned out to be benign. That was maybe a 50% chance it may turn cancerous. Also a major op. So in a sense, that’s also prophylactic.

Me also .I'm a wreck. I try not to think about it.

I find refocusing helps alot!

I’m told scan may be more accurate. Try keeping your BP low, to help stabilize size.

Hi everyone,

I'd like to invite you to join us today, Monday, April 29th at 12 p.m. CT for a video Q&A with Dr. Hector Michelena, cardiologist, Dr. Gabor Bagameri, cardiovascular surgeon, and Dr. Alberto Pochettino, cardiovascular surgeon, about watchful waiting for thoracic aortic aneurysms.

Simply click on the link below, for details and to take part in the video Q&A live.
https://connect.mayoclinic.org/webinar/video-qa-about-thoracic-aortic-aneurysms/

Drs. Michelena, Bagameri, and Pochettino will answer questions live. Post your questions before and during the broadcast.

very interesting. Now have some questions for my cardiologist. I am having a ct scan with contrast next week. Will be my second scan in last 6 months. I feel better about myself as i gain knowledge. I have cut my weight lifting to 20 pounds and do a lot of reps. Waiting for weather to improve so biking and gardening can begin. Last scan showed 4.8 even though three people read it and one said 4.0, the cardiologist said 4.2 and the surgeon said 4.8. They all measured differently. Now i wait for the next results. Ifeel knowledge helps to reduce anxiety and my BP.

@cobweb

very interesting. Now have some questions for my cardiologist. I am having a ct scan with contrast next week. Will be my second scan in last 6 months. I feel better about myself as i gain knowledge. I have cut my weight lifting to 20 pounds and do a lot of reps. Waiting for weather to improve so biking and gardening can begin. Last scan showed 4.8 even though three people read it and one said 4.0, the cardiologist said 4.2 and the surgeon said 4.8. They all measured differently. Now i wait for the next results. Ifeel knowledge helps to reduce anxiety and my BP.

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I usually get a chest scan and an echo and they both been pretty accurate 4.5. Been stable for the past year so I go every six months now Dr. wanted me to go for my next one in a year and I said I’d rather go every six months for now.

I have found they all may be correct. My first reading was 4.0, 4.5 and 4.8 all from the same CT Scan, different people reading. Yes, stressful, but what does that get you? I have backed off lifting heavy objects and when i work out i will do 40 at 20 pounds instead of 15 at 50. Beat goes on.

I had the same type of issue. It went from 4.7 to 4.9 but they said it was "no change". I asked about that and they said it depends on where it was measured exactly so the number varies. The important part is when they compare the previous to the current and they say "no change". Frustrating, but it is what it is so we just wait. And live a good life..

@lynnw

I had the same type of issue. It went from 4.7 to 4.9 but they said it was "no change". I asked about that and they said it depends on where it was measured exactly so the number varies. The important part is when they compare the previous to the current and they say "no change". Frustrating, but it is what it is so we just wait. And live a good life..

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I certainly wish there were a different way of measuring the size of an aneurysm, or, better yet, one I can understand. As my last CT Scan report stated a larger size than the previous year, I was so alarmed I later called the cardiology department nurse to ask for an explanation and the answer I received was so ambiguous & confusing it was apparent it was a search for a reply. When I'm told not to worry when I see the size getting larger, its very hard not to become even more frightened than what I already am. Can anyone offer a reasonable answer?

no, i had three different numbers from the same reading. Surgeon told me he reads it different. What i keep hearing is pain attention to a pain in the back or chest and hope your near a hospital.

@prward

I certainly wish there were a different way of measuring the size of an aneurysm, or, better yet, one I can understand. As my last CT Scan report stated a larger size than the previous year, I was so alarmed I later called the cardiology department nurse to ask for an explanation and the answer I received was so ambiguous & confusing it was apparent it was a search for a reply. When I'm told not to worry when I see the size getting larger, its very hard not to become even more frightened than what I already am. Can anyone offer a reasonable answer?

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I can’t explain measuring process but I understand the worrying factor completely. Mine was 10.5 when first detected and I had an endovascular stent procedure 3 weeks later. I was scared to death. I do think that medical personnel are really pretty tuned in to which ones present imminent danger. It’s stressful but monitoring it is a good thing.

@skeeter75

I can’t explain measuring process but I understand the worrying factor completely. Mine was 10.5 when first detected and I had an endovascular stent procedure 3 weeks later. I was scared to death. I do think that medical personnel are really pretty tuned in to which ones present imminent danger. It’s stressful but monitoring it is a good thing.

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I agree – monitoring is so important. Thanks for responding skeeter75!

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