Ascending Aortic Dilation - Ascending Aortic Aneurysm

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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Hi Laverne, I wanted to add my welcome. I’m thrilled to see you’ve connected with Teresa.
I’d also like to bring in other members who may have experiences to share. Please meet @morninglory @elsinann @teatime @thegoodwife @thankful and @ch246cf10.

Laverne, did you see these related Connect discussions?
– Thoracic aortic aneurysm http://mayocl.in/2bC9oIY
– Large ascending aorta in young healthy 45 year old woman http://mayocl.in/2gwDknX

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I had an ascending aortic aneurism that had reached 5+. I don’t think Mayo operates until the aneurysm is at least 5. If I were you I would not worry until it becomes larger. I also still have an abdominal aneurysm that is 4.8 and Mayo does not want to operate on that. The reasons are many but surgeries carry a lot of risk and I think that as long as your aneurysm is small and mine too it’s better to wait. You may never need surgery. As for me, I don’t worry about it. Only time I get concerned is when I have a yearly CT scan. Please have faith that your doctors have made the correct decision but get on with your life. None of us know when we are leaving this earth but I try to live each day. I wish you the very best and hope your worry is somewhat eased.

Liked by dontstopthebeat

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Thanks so much for getting back to me. I do feel much better now after reading your response. But you said you’re aorta dilation is 5+. Is it still the same or did you have your valve replaced? The doctor did say they don’t like to have surgery until it gets around five or more. But I agree I will put it out of my mind and like you not worry until I have my next scan. Ive know about this since 2012 but only started to worry when it got to where it is now. Doctor says it’s a range of 4.3 – 4.5. My doctor said to continue living my life as I do I go to the gym and still work on the treadmill. Thanks again for getting back to me

Liked by dontstopthebeat

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@rory

Thanks so much for getting back to me. I do feel much better now after reading your response. But you said you’re aorta dilation is 5+. Is it still the same or did you have your valve replaced? The doctor did say they don’t like to have surgery until it gets around five or more. But I agree I will put it out of my mind and like you not worry until I have my next scan. Ive know about this since 2012 but only started to worry when it got to where it is now. Doctor says it’s a range of 4.3 – 4.5. My doctor said to continue living my life as I do I go to the gym and still work on the treadmill. Thanks again for getting back to me

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I had open heart surgery at Mayo for the ascending aneurysm which was not dissected, just large, and the arch was rebuilt but no valve replacement. Actually got along quite well thanks to a wonderful doctor there, Dr Pochettino. Again, best of luck to you!

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@rory

Thanks so much for getting back to me. I do feel much better now after reading your response. But you said you’re aorta dilation is 5+. Is it still the same or did you have your valve replaced? The doctor did say they don’t like to have surgery until it gets around five or more. But I agree I will put it out of my mind and like you not worry until I have my next scan. Ive know about this since 2012 but only started to worry when it got to where it is now. Doctor says it’s a range of 4.3 – 4.5. My doctor said to continue living my life as I do I go to the gym and still work on the treadmill. Thanks again for getting back to me

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Thanks again for letting me know. Best of luck to you also.

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I was diagnosed in 2005 with an ascending aneurysm after I lost my son, 5 months pregnant. Mayo drs have been wonderful watching me ever since, once a year. I couldn't ask for better care at Mayo Clinic, Rochester! I'm still at the watchful eye but also living life like everyone day by day, except my dr has limited my weight lifting to no more than 50 lbs. I am ok with that especially if it helps prevent anything from expanding. Find a dr you trust, comfortable with and are able to talk to. It makes a world of difference while we go thru this

Liked by dontstopthebeat

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@daynal

I was diagnosed in 2005 with an ascending aneurysm after I lost my son, 5 months pregnant. Mayo drs have been wonderful watching me ever since, once a year. I couldn't ask for better care at Mayo Clinic, Rochester! I'm still at the watchful eye but also living life like everyone day by day, except my dr has limited my weight lifting to no more than 50 lbs. I am ok with that especially if it helps prevent anything from expanding. Find a dr you trust, comfortable with and are able to talk to. It makes a world of difference while we go thru this

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Thanks for getting back to me. So sorry for the loss of your son. My dr is very good and explains everything to me. I like him a lot. He also told me not to lift more than 20 lbs. what is the size of your aorta dialation ? You've had this since 2005 seems like your doing great. I just found out about it in 2012. My next scan is in 6 months.

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@dixitworld

Hello All

I am 31/M
I had my bicuspid aortic valve replaced 8 years back with ATS Mechanical 22 Mm valve.
Now I am diagnosed with ascending aorta size of 5.2 and aortic root of 4.4.
I talked to 2 surgeons in diff hospital.
One surgeon says that no need to replace well functioning mechanical valve and will cut root just before the valve and cover the little rim and existing valve with graft.he gives reason if a mechnical valve passes 1 year successfully it typical remain forever and should not be changed. His recommendations is not to touch the place where valve is sewn to root.

Other surgeon is of opinion that when we will open we will be able to see the condition of root and if it need to be replaced we will put new composite graft already fitted with a new St.Jude valve.
He also believe my current valve is 100 percent functioning but as per him existing valve should have some tissues deposited and replacing a new is always better.

What to choose. Both surgeon are top notch surgeon in diff hospitals

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Hello and welcome to Connect, @dixitworld,

I’d like to introduce you to a few members who’ve written about aortic valve repair or replacement, and mechanical valves; please meet @dlruff @ronbee @redhawk @eugeneo @lyndamm @robaz @crhp194 @morningglory @ch246cf10 @tazzy @colleen00 @marnie10 @shakuni11 @judytru.
Connect member @jimmorris900 has written about his experiences with the David procedure (valve-sparing aortic root replacement ), and may have more insights for you.

You may also wish to go through these discussions on Connect:
– Aortic Valve Replacement https://connect.mayoclinic.org/discussion/aortic-valve-replacment/
– Aortic Stenosis & Valve Replacement https://connect.mayoclinic.org/discussion/aortic-valve-calcification/
– Congenital Heart Disease – What Patients Need to Know https://connect.mayoclinic.org/webinar/webinar-topic-challenges-in-adult-congenital-heart-disease-what-the-patient-needs/ In this Video Q&A Mayo Clinic cardiologists address many questions about valve surgery.

@dixitworld, you mentioned having aortic valve replacement when you were twenty three? Wow! May I ask what symptoms or condition led to having this procedure done? What are your thoughts about the decision of replacing the valve again?

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@kanaazpereira

Hello and welcome to Connect, @dixitworld,

I’d like to introduce you to a few members who’ve written about aortic valve repair or replacement, and mechanical valves; please meet @dlruff @ronbee @redhawk @eugeneo @lyndamm @robaz @crhp194 @morningglory @ch246cf10 @tazzy @colleen00 @marnie10 @shakuni11 @judytru.
Connect member @jimmorris900 has written about his experiences with the David procedure (valve-sparing aortic root replacement ), and may have more insights for you.

You may also wish to go through these discussions on Connect:
– Aortic Valve Replacement https://connect.mayoclinic.org/discussion/aortic-valve-replacment/
– Aortic Stenosis & Valve Replacement https://connect.mayoclinic.org/discussion/aortic-valve-calcification/
– Congenital Heart Disease – What Patients Need to Know https://connect.mayoclinic.org/webinar/webinar-topic-challenges-in-adult-congenital-heart-disease-what-the-patient-needs/ In this Video Q&A Mayo Clinic cardiologists address many questions about valve surgery.

@dixitworld, you mentioned having aortic valve replacement when you were twenty three? Wow! May I ask what symptoms or condition led to having this procedure done? What are your thoughts about the decision of replacing the valve again?

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I didnt had any symptoms but doctors told me that my bicuspid valve is creating my left ventricle size increasing and EF going down than 50. I did elective surgery at that time and now within 8 years as back at this stage. Not able to decide who is better of those two surgeons

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@dixitworld

Hello All

I am 31/M
I had my bicuspid aortic valve replaced 8 years back with ATS Mechanical 22 Mm valve.
Now I am diagnosed with ascending aorta size of 5.2 and aortic root of 4.4.
I talked to 2 surgeons in diff hospital.
One surgeon says that no need to replace well functioning mechanical valve and will cut root just before the valve and cover the little rim and existing valve with graft.he gives reason if a mechnical valve passes 1 year successfully it typical remain forever and should not be changed. His recommendations is not to touch the place where valve is sewn to root.

Other surgeon is of opinion that when we will open we will be able to see the condition of root and if it need to be replaced we will put new composite graft already fitted with a new St.Jude valve.
He also believe my current valve is 100 percent functioning but as per him existing valve should have some tissues deposited and replacing a new is always better.

What to choose. Both surgeon are top notch surgeon in diff hospitals

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Guys please anyone had my situation?

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@dixitworld

Hello All

I am 31/M
I had my bicuspid aortic valve replaced 8 years back with ATS Mechanical 22 Mm valve.
Now I am diagnosed with ascending aorta size of 5.2 and aortic root of 4.4.
I talked to 2 surgeons in diff hospital.
One surgeon says that no need to replace well functioning mechanical valve and will cut root just before the valve and cover the little rim and existing valve with graft.he gives reason if a mechnical valve passes 1 year successfully it typical remain forever and should not be changed. His recommendations is not to touch the place where valve is sewn to root.

Other surgeon is of opinion that when we will open we will be able to see the condition of root and if it need to be replaced we will put new composite graft already fitted with a new St.Jude valve.
He also believe my current valve is 100 percent functioning but as per him existing valve should have some tissues deposited and replacing a new is always better.

What to choose. Both surgeon are top notch surgeon in diff hospitals

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Hi @dixitworld,

I can imagine your stress and worry about making the right decision! I'm tagging two of our stalwart Mentors, @hopeful33250 and @predictable as they will perhaps be able to provide some thoughts that might help you.

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@dixitworld

Hello All

I am 31/M
I had my bicuspid aortic valve replaced 8 years back with ATS Mechanical 22 Mm valve.
Now I am diagnosed with ascending aorta size of 5.2 and aortic root of 4.4.
I talked to 2 surgeons in diff hospital.
One surgeon says that no need to replace well functioning mechanical valve and will cut root just before the valve and cover the little rim and existing valve with graft.he gives reason if a mechnical valve passes 1 year successfully it typical remain forever and should not be changed. His recommendations is not to touch the place where valve is sewn to root.

Other surgeon is of opinion that when we will open we will be able to see the condition of root and if it need to be replaced we will put new composite graft already fitted with a new St.Jude valve.
He also believe my current valve is 100 percent functioning but as per him existing valve should have some tissues deposited and replacing a new is always better.

What to choose. Both surgeon are top notch surgeon in diff hospitals

Jump to this post

@dixitworld

I would first like to welcome you to Mayo Connect and to thank you for posting about your health concern regarding an aortic valve problem.

I understand your concerns, I have an aortic valve (with aortic insufficiency) that some doctors think need replacing, but not all. I could only wish for a concise decision from two doctors so that I could have some confidence on making an informed decision and going forward.

In thinking about your situation I'm wondering how this change in your EF (which you state is now 50) is affecting your symptoms. How are you feeling? What type of symptoms are you having? Has your energy level, ability to exercise, changed since your EF has dropped to 50?

I have one cardiologist who says "we treat the patient, not the report." Which basically refers to treating the symptoms the patient is having (in my case I have a hard time exercising without a lot of fatigue, however, my EF is still at 60). While I have a leakage of the aortic valve, I also have some loss of functioning with the heart muscle which results in more fatigue, especially upon exercise.

Perhaps thinking about your symptoms can help you move forward. Also, a third opinion in a matter like this would certainly not be inappropriate, especially if you seek out a good heart center with an excellent reputation. I'm not sure what geographical area you live in but Mayo has 3 facilities in the U.S. (Minnesota, Florida and Arizona).

I look forward to hearing from you again.

Teresa

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@dixitworld

Hello All

I am 31/M
I had my bicuspid aortic valve replaced 8 years back with ATS Mechanical 22 Mm valve.
Now I am diagnosed with ascending aorta size of 5.2 and aortic root of 4.4.
I talked to 2 surgeons in diff hospital.
One surgeon says that no need to replace well functioning mechanical valve and will cut root just before the valve and cover the little rim and existing valve with graft.he gives reason if a mechnical valve passes 1 year successfully it typical remain forever and should not be changed. His recommendations is not to touch the place where valve is sewn to root.

Other surgeon is of opinion that when we will open we will be able to see the condition of root and if it need to be replaced we will put new composite graft already fitted with a new St.Jude valve.
He also believe my current valve is 100 percent functioning but as per him existing valve should have some tissues deposited and replacing a new is always better.

What to choose. Both surgeon are top notch surgeon in diff hospitals

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Hi @dixitworld. I am glad to make your acquaintance and to follow along with you as your heart valve issues are resolved. I won't be able to offer any vital information about your heart valve, because I haven't encountered that. My son-in-law did 20 years ago, and his surgery fixed his problems; he is in good health and hardy enough to enjoy hiking, hunting, and other outdoor activities.

My experience has been with enlargement of the left ventricle and thickening of its wall, which has reduced my EF somewhat in the last 8 years. I also contracted atrial fibrillation in the left atrium about 4 years ago. Even so, the combination of the two conditions has not greatly hindered my lung or heart functions, although my endurance has fallen off somewhat, and I have given up bicycle racing as a result.

We have the good fortune to be helped in this case by a real trooper, Teresa (@hopeful33250), who has had an experience like yours. She also has given good advice, I think, in suggesting a third opinion — and especially from doctors at a Mayo Clinic, or at a nationally recognized cardiac center. Another possibility that occurs to me, since you spotlighted the expertise of the two cardiac surgeons you have dealt with: Could they be persuaded to coordinate their recommendations for valve surgery and agree on a course of action? This would relieve you of the burden of being a referee between competing surgeons with differing treatment plans. Perhaps the three of you could get together and develop a strategy that you'd feel comfortable with. Whaddayathink?
Martin

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@hopeful33250

@dixitworld

I would first like to welcome you to Mayo Connect and to thank you for posting about your health concern regarding an aortic valve problem.

I understand your concerns, I have an aortic valve (with aortic insufficiency) that some doctors think need replacing, but not all. I could only wish for a concise decision from two doctors so that I could have some confidence on making an informed decision and going forward.

In thinking about your situation I'm wondering how this change in your EF (which you state is now 50) is affecting your symptoms. How are you feeling? What type of symptoms are you having? Has your energy level, ability to exercise, changed since your EF has dropped to 50?

I have one cardiologist who says "we treat the patient, not the report." Which basically refers to treating the symptoms the patient is having (in my case I have a hard time exercising without a lot of fatigue, however, my EF is still at 60). While I have a leakage of the aortic valve, I also have some loss of functioning with the heart muscle which results in more fatigue, especially upon exercise.

Perhaps thinking about your symptoms can help you move forward. Also, a third opinion in a matter like this would certainly not be inappropriate, especially if you seek out a good heart center with an excellent reputation. I'm not sure what geographical area you live in but Mayo has 3 facilities in the U.S. (Minnesota, Florida and Arizona).

I look forward to hearing from you again.

Teresa

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My EF is 65 and more currently , I think my post was not clear. I had EF down at age23 when my valve was changed.
Now I don’t have any valve issue or EF issue. I have aortic root and asc aorta aneurysm.

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@dixitworld

Hello All

I am 31/M
I had my bicuspid aortic valve replaced 8 years back with ATS Mechanical 22 Mm valve.
Now I am diagnosed with ascending aorta size of 5.2 and aortic root of 4.4.
I talked to 2 surgeons in diff hospital.
One surgeon says that no need to replace well functioning mechanical valve and will cut root just before the valve and cover the little rim and existing valve with graft.he gives reason if a mechnical valve passes 1 year successfully it typical remain forever and should not be changed. His recommendations is not to touch the place where valve is sewn to root.

Other surgeon is of opinion that when we will open we will be able to see the condition of root and if it need to be replaced we will put new composite graft already fitted with a new St.Jude valve.
He also believe my current valve is 100 percent functioning but as per him existing valve should have some tissues deposited and replacing a new is always better.

What to choose. Both surgeon are top notch surgeon in diff hospitals

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My current surgeon are Craig Miller at Stanford and Dr Svensson at Cleveland Clinic. What I understand is more surgeon in diff hospital I talk more diff opinion comes up resulting in more tension and headache. I was looking for any patient similar in condition like me who can tell what was done in his or her case

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