Ascending Aortic Dilation - Ascending Aortic Aneurysm

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

@debbydiane

Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else. I decided I wanted a second opinion and was referred to Mayo Clinic. In 9 days I will be having a CT Scan, Echo and labs done. Consult with the surgeon will follow. I am very anxious. I've never even had a broken bone or anything serious happen to me.

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I would also like to know about the bowel and heart issue too please. I'm afraid I might have the same problem

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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Hello @nancykare and welcome to Mayo Connect,

Your concern about your new cardiac diagnosis is certainly understandable. Here is some information from Mayo Clinic's website with some information regarding this disorder, https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188. I would encourage you to read this information. In most cases, the more a person understands their health condition, the better prepared they can be to ask good questions of their medical team and seek out the best treatment.

You mentioned getting a second opinion. This is always a wise decision. You mention living in Florida, there is a Mayo Clinic facility in Jacksonville, FL. If you like to set up an appointment there for a second opinion, here is some information about making an appointment:

"Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people. In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need, and the team members who will care for you or your family have the expertise and skills to provide the best care possible."

Mayo Clinic in Florida
904-339-5809
8 a.m. to 5 p.m. Eastern time, Monday through Friday

I look forward to hearing from you again. If you are comfortable sharing more, what symptoms led you to the diagnosis?

Teresa

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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I'd also like to invite @ginko @kdh1 @jpmerk @dixitworld @amiscott32 @lynnw @grandmajan to join in – I'm certain they will have some valuable insights and information to share intros group.

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@nancykare

Hi! I just found out a month ago that I have a 4.0 ascending aortic aneurysm. My calcium score was 116. I saw my cardiologist and have another appointment in 2 months. I am very nervous about this. I am 67. My sister who is 60 has the same thing. She has know about it for 5 or 6 years with no change. I would love a second opinion — I live in Florida.

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I wonder what would cause the elevated calcium. MYbe that’s worth looking into as part of the cause. Just asking only going on what I have been reading also.

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@hopeful33250

Hello @nancykare and welcome to Mayo Connect,

Your concern about your new cardiac diagnosis is certainly understandable. Here is some information from Mayo Clinic's website with some information regarding this disorder, https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188. I would encourage you to read this information. In most cases, the more a person understands their health condition, the better prepared they can be to ask good questions of their medical team and seek out the best treatment.

You mentioned getting a second opinion. This is always a wise decision. You mention living in Florida, there is a Mayo Clinic facility in Jacksonville, FL. If you like to set up an appointment there for a second opinion, here is some information about making an appointment:

"Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people. In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need, and the team members who will care for you or your family have the expertise and skills to provide the best care possible."

Mayo Clinic in Florida
904-339-5809
8 a.m. to 5 p.m. Eastern time, Monday through Friday

I look forward to hearing from you again. If you are comfortable sharing more, what symptoms led you to the diagnosis?

Teresa

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Thank you so much for the info. I will try to get an appointment in Jacksonville.

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Did any of you have symptoms?

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Hi this is my 1st post. I a 45 year old female. Not over weight but I smoke. After having what feels like muscle tearing and dizziness I went to the er a month ago. I was told I had a 3.2 dilation ascending aorta and to follow up with a doctor. The er called umc who said they would not even see me at that size, even with symptoms. The pain comes in goes. My primary did a new cta Friday it said it is 3.4. They gave me the number to the doctors at USA in mobile. I also am calling mayo I’m the morning.
It seems small but, I can hear my heart beat in my shoulder and I have a history of brain aneurysms. What doctors do I need to see at the mayo hospital? I’m so full of anxiety now.
What should I ask for and who should I see? I wanted to add I now have a appointment Thursday to see a surgeon at USA in mobile.
Thank you all for listening any advice would be helpful!!

Ps- this has went on for months. They have ran so many test on me and they all came back good till last month. I had a heart ultrasound 3 months ago that was fine.. I told them something was wrong.

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Hello @estanley2008,

Welcome to Connect. You may notice that I moved your first message and combined it with this existing discussion on ascending aorta dilation. I did this as I thought you might like to meet the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

This Mayo Clinic webpage has tons of information about thoracic aortic aneurysm, diagnosis & treatment, and care at the Clinic:
https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188
Here are a few conversations on Connect, which I encourage you to read:
– Large ascending aorta in young healthy 45 year old woman http://mayocl.in/2gwDknX
– New Diagnosis – ascending aorta aneurysm https://connect.mayoclinic.org/discussion/new-diagnosis-27f493/

I’m also tagging members @laverne @jimemerson @elsinann @teatime @thegoodwife @thankful @janet26 @debbydiane @ginko Mentor @hopeful33250 who can share their experiences and provide some guidance and thoughts.

@estanley2008, I can imagine your concern when, as you said, "The er called umc who said they would not even see me at that size, even with symptoms1" Did they give you any explanation?

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@kanaazpereira

Hello @estanley2008,

Welcome to Connect. You may notice that I moved your first message and combined it with this existing discussion on ascending aorta dilation. I did this as I thought you might like to meet the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

This Mayo Clinic webpage has tons of information about thoracic aortic aneurysm, diagnosis & treatment, and care at the Clinic:
https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188
Here are a few conversations on Connect, which I encourage you to read:
– Large ascending aorta in young healthy 45 year old woman http://mayocl.in/2gwDknX
– New Diagnosis – ascending aorta aneurysm https://connect.mayoclinic.org/discussion/new-diagnosis-27f493/

I’m also tagging members @laverne @jimemerson @elsinann @teatime @thegoodwife @thankful @janet26 @debbydiane @ginko Mentor @hopeful33250 who can share their experiences and provide some guidance and thoughts.

@estanley2008, I can imagine your concern when, as you said, "The er called umc who said they would not even see me at that size, even with symptoms1" Did they give you any explanation?

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They told the er doctor that even with symptoms that was to small to treat. To tell me to let my primary know and keep watching it.
Crazy, I know

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@kanaazpereira

I'd also like to invite @ginko @kdh1 @jpmerk @dixitworld @amiscott32 @lynnw @grandmajan to join in – I'm certain they will have some valuable insights and information to share intros group.

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I am wondering about after surgery follow up. I think I asked this once before. After my AAA surgery I had one following up with my vascular surgeon. He said everything was great and he would see me in five (5) years. Is that normal? Please reply. Thank you kdh1

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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I too am concerned because I have a measurement of 4.1 on my ascending aortic aneurysms . Why do we get these? What is the treatment? and when? anniejam

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@anniejam

I too am concerned because I have a measurement of 4.1 on my ascending aortic aneurysms . Why do we get these? What is the treatment? and when? anniejam

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Some aortic aneurysms are genetic issues and others I believe can be from lifestyle issues (smoking) or high blood pressure. From my understanding, the 4.1 cm measurement is not terribly large. I think the important thing right now is to monitor how fast it is growing, if at all. Mine has been about that size for a number of years and appears to be growing very, very slowly. I believe surgical intervention is considered when the aneurysm grows somewhere in the 5 cm range. In the meantime, I am sure your cardiologist has recommended not lifting over a certain weight — for me, no lifting over 25 lbs. Also, absolutely no snow shoveling no matter how light the snow.

At this point, I don't think you should be losing sleep over this issue but rather, assure you are being monitored, that you are following your cardio's lifestyle advice and hold off the worrying until you see how fast the aneurysm is growing. In my case, I hope to die of old age before needing surgery to repair the aneurysm.

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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I am 71 and have a 4.1 ascending aortic aneurysms and I am very concerned about it and what is the treatment for it? This is a repeat. Sorry. I just joined.

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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All not alone – in my case I’m 47 with a 3 and 5 year old . I have a 4.4 TAA with no reasonable cause that 3 dr’s can find . I fear self inflicted with blood flow supplements though told unrelated. I am devastated and petrified. All tell me monitoring and will only repair if 5-5.5 and to carry on but struggle especially when looking into my beautiful families eye’s.

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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@Drew944 I think you need to just take a deep breath and not be so scared. I am sure your cardio has you monitored for the rate the aneurysm is growing and that is the critical issue. If your aneurysm is as slow growing as mine is, it may be 20 + years or more before you need surgical repair. And by then, they may have an entirely different way of repairing it.

I suggest you talk to your cardio about how fast this is growing and knowing it is not growing at a fast rate might give you some peace of mind. I am sure your cardio has suggested limiting how much you lift and that must be tough when you have such little children. But you can sit and they can crawl into your lap and you can have the same cuddling without the lifting. When necessary, I do lift things that perhaps I shouldn't but so far, the aneurysm is hardly growing at all. I have been warned to NEVER shovel snow so I don't and I don't do any work/exercise outside in the cold of winter.

Think positively. Knowing you have this is better than having it and not knowing it is there. I understand your fear and how devastated you must feel but don't let your fear steal your enjoyment of life. I wish you well.

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