Ascending Aortic Dilation - Ascending Aortic Aneurysm

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

@alysebrunella

Hi @mariejnd, and welcome to Connect. I’m Alyse – one of the community moderators here. I found some information on aortic aneurysms, which includes services, as well as the experience Mayo Clinic provides for patients (http://www.mayoclinic.org/diseases-conditions/aortic-aneurysm/care-at-mayo-clinic/why-choose-mayo-clinic/con-20032573).

Mayo Clinic has a list of doctors who are specialists in this area sorted by location. Have you researched any doctors?

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Hi Alyse,
Thank you so much for replying.  I do have another question.  You asked whether I have researched any doctors.  I have not done so because I don’t know a reliable and credible route to take for the research.  Any suggestions?   I live  In the Minneapolis, MN area therefore the Mayo Clinic in Rochester is convenient for me. 
Thank you, again.

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@mariejnd

I am a 68 year old woman diagnosed with a 4.2 ascending aortic aneurysm. I plan to make an appointment at the Mayo Clinic . I am wondering if I should request a certain doctor.

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I am so sorry about your husband’s health problem with NPH. I would like to be followed by a cardiologist experienced with monitoring ascending aortic aneurysms until such time I have to make that dreadful surgery decision. I live in Minnesota and a reasonable distance from the Mayo Clinic in Rochester.

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@mariejnd

I am a 68 year old woman diagnosed with a 4.2 ascending aortic aneurysm. I plan to make an appointment at the Mayo Clinic . I am wondering if I should request a certain doctor.

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Does anyone out there know of a good cardiologist for an ascending aortic aneurysm? I need to make an appointment but have no idea what doctor(s) to request.

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@mariejnd

I am a 68 year old woman diagnosed with a 4.2 ascending aortic aneurysm. I plan to make an appointment at the Mayo Clinic . I am wondering if I should request a certain doctor.

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Hi @mariejnd,
I’m tagging @HeartPatches, @cynaburst, @lynnkay1956 and @ronpetrovich. They have been treated at the Mayo Clinic and may have cardiologist recommendations although their diagnosis is not the same as yours.

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@alysebrunella

Hi @mariejnd, and welcome to Connect. I’m Alyse – one of the community moderators here. I found some information on aortic aneurysms, which includes services, as well as the experience Mayo Clinic provides for patients (http://www.mayoclinic.org/diseases-conditions/aortic-aneurysm/care-at-mayo-clinic/why-choose-mayo-clinic/con-20032573).

Mayo Clinic has a list of doctors who are specialists in this area sorted by location. Have you researched any doctors?

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Hi @mariejnd you can use this link to inquire about cardiologists at Mayo Clinic http://mayocl.in/1mtmR63.

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@jend

I am a runner and work out every day. I eat right and in good shape. I just found out I have a 4.0 cm ascending aorta. I found out by accident through a CT scan for something else and then had an echo and confirmed this. I am a single mom and only 45 and scared to death of how this will shorten and change my
life . Any feedback would be great.

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Hi @jend,
I’m glad you posted your concern here and are being proactive about your health with this new information. Were you told that there’s an aneurysm in your aorta? Here’s some information about thoracic aortic aneurysm https://connect.mayoclinic.org/discussion/thorcic-aneurysm/

I’m tagging members @johnwburns @elsinann @teatime @thegoodwife @thankful who can share their experiences and provide some guidance and thoughts.

Jen, have you seen your doctor to discuss the results of the scan and echo?

Liked by Elsinann

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@colleenyoung

Hi @jend,
I’m glad you posted your concern here and are being proactive about your health with this new information. Were you told that there’s an aneurysm in your aorta? Here’s some information about thoracic aortic aneurysm https://connect.mayoclinic.org/discussion/thorcic-aneurysm/

I’m tagging members @johnwburns @elsinann @teatime @thegoodwife @thankful who can share their experiences and provide some guidance and thoughts.

Jen, have you seen your doctor to discuss the results of the scan and echo?

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I have to meet with the cardiologist and find out the details. It is an ascending aorta measuring 4.0 and the main pulmonary artery is 2.5. I am very worried as I am a huge runner and cross train with weights. I have low blood pressure but my cholesterol is high as is is heredity. I’m very active and have never smoked, am not overweight and eat fairly healthy so this was a shock. I am just hoping it won’t change my lifestyle or shorten my life expectancy.

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@jend

I am a runner and work out every day. I eat right and in good shape. I just found out I have a 4.0 cm ascending aorta. I found out by accident through a CT scan for something else and then had an echo and confirmed this. I am a single mom and only 45 and scared to death of how this will shorten and change my
life . Any feedback would be great.

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Good to join this group @jend to help your prepare your questions for your appointment with the cardiologist. @caretothepeople @joem and @cynaburst, what questions would you recommend Jen ask?

Liked by caretothepeople

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@colleenyoung

Good to join this group @jend to help your prepare your questions for your appointment with the cardiologist. @caretothepeople @joem and @cynaburst, what questions would you recommend Jen ask?

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Thanks for the tag @colleenyoung! @jend, it’s great to hear you are being proactive about things, and the shock is understandable – getting a diagnosis can trigger a range of emotions. It sounds like you’re doing a lot to educate yourself and prepare.

Mayo Clinic’s guide to preparing for a thoracic aortic aneurysm appointment may be a great place to start: http://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/diagnosis-treatment/preparing-for-appointment/ptc-20122088

They offer some basic questions to ask the doctor including:

What’s the most likely cause of my symptoms?
What kinds of tests will I need to confirm a thoracic aortic aneurysm?
What treatments are available, and which do you recommend for me?
What’s an appropriate level of physical activity?
Do I need to change my diet?
How often should I be screened for an aneurysm?
Should I tell other family members to be screened for an aneurysm?
I have other health conditions. How can I best manage these conditions together?
Is there a generic alternative to the medicine you’re prescribing me?
Are there any brochures or other printed material that I can take home with me? What websites do you recommend visiting for more information?

It may also be helpful to check out these questions suggested by The Texas Heart Institute: http://www.texasheart.org/HIC/HeartDoctor/answer_1410.cfm
And the American Academy of Cardiology: https://www.cardiosmart.org/Heart-Conditions/Aortic-Aneurysm/Questions-to-Ask-Your-Doctor

Best of luck at your appointment…and please keep us all posted.

-Melody

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@colleenyoung

Good to join this group @jend to help your prepare your questions for your appointment with the cardiologist. @caretothepeople @joem and @cynaburst, what questions would you recommend Jen ask?

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Thank you so much for all the questions. I will be sure to bring those in. If anyone my age has this, I would love to hear if it impacted their lives. I am a single mom and very active so it is something I want to educate myself on as much as possible! I don’t know if there are any studies that I could get involved with? From what I’ve read this is usually found around age 60 so it is so concerning they found this by accident while looking at a CT of my lungs.

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@jend

I am a runner and work out every day. I eat right and in good shape. I just found out I have a 4.0 cm ascending aorta. I found out by accident through a CT scan for something else and then had an echo and confirmed this. I am a single mom and only 45 and scared to death of how this will shorten and change my
life . Any feedback would be great.

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@jend I wouldn’t worry about it to much it wont shorten your life I had dilated to 5.5 over years from Marfan syndrome just keep up with doctor appts only thing it might change is maybe you work out routine to less high impact exercises to aerobic where you not raising your heart rate so high . .At age 39 I had what they call a valve sparing aortic ascending root replacement almost four years ago after recovery from surgery I have been fine just have to change my work out routine a little. I am open to go more in depth with my experience

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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Hello @laverne, I’m so glad to see that you just joined Mayo Connect, welcome! I understand how panicky we can get when these “incidental findings” are discussed. Waiting until March for a follow up scan seems like a long time when you are thinking about an ascending aorta aneurysm. Don’t forget that it is always OK to get a second opinion. If you have a university or large research hospital in your area, that is a good place to start. Keep in touch and let us know how you are doing. Mayo Connect is a great online community for people who have health concerns. Best wishes!

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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Really out of my comfort zone. Small community along the east coat South Carolina. I don’t know healthcare here. MUSC in Charleston and DUKE in North Carolina. Really like my internal med Doctor and she has scheduled me with a cardiologist but not until March too. She is very laid back about it. More anxious now:(

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@laverne

Really out of my comfort zone. Small community along the east coat South Carolina. I don’t know healthcare here. MUSC in Charleston and DUKE in North Carolina. Really like my internal med Doctor and she has scheduled me with a cardiologist but not until March too. She is very laid back about it. More anxious now:(

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Hi @laverne, There was a time when I was facing vocal cord surgery and I wanted the “best of the best.” Well, I live in SE Michigan and I found out that Cleveland Clinic was the best place, however, it too was out of my comfort zone. So, I enlisted the help of a friend and then family members to drive with me (or drive me). It was worth it! Think about who could be supportive of you. You can still keep your internist, just to get a second opinion on the heart issue. Give it some thought. If you are concerned and worried, it is important to be proactive and become your own patient advocate.

Liked by segagirl

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@laverne

“Incidentental finding ” of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

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Thank you so much!

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