Grover's Disease: What works to help find relief?

Hi~ After I chop the garlic, I let it sit on the plate for 10-15 minutes. Then I put it on the spoon and drizzle the honey on it and just coat the garlic by mixing it with the honey using the tip of the knife to stir it around. Then I eat it. I don't let it soak or marinate in the honey.

I'd love to hear if your try it and whether it works for you. Good luck!

Jump to this post

Does hydroxyzine cause you side effects? When I took it before bed when I did sleep I got nightmares and found I couldn't be productive until the afternoon. I started taking half a dose, to turn me less into a zombie. Still the itching was always present; worse at night with our elevated histamines. In truth I think the only thing that would knock me out enough to not be kept awake from itching was a sludge hammer, once again we're talking negative side effects.
You may not be able to force yourself to drink fresh or fresh frozen cilantro, yet from my experience the capsules success rate is extremely low.

Jump to this post

The only "side effect" I'm noticing from hydorxyzine is being groggy in the morning, kind of like a hangover without the headache. In the beginning I took one tablet but it didn't seem to be working very well so I upped it to two. I've read somewhere that it can affect your memory, but I can't remember where. Joke. It was on the AARP email I get daily.

Jump to this post

Severe years ago I had been diagnosed with Grover’s. After 2 months of symptoms I decided to try cilantro. I made a smoothie out of cilantro, yogurt and orange juice. Made in blender. In 5 days all symptoms disappeared. Just use plenty of raw cilantro from produce section of your grocery store.

Jump to this post

Frogger I feel an attachment to you because back in 2019 you were a part of the orginal test group that experimented with Kimass1's suggestion to try drinking blended cilantro to put GD into remission. Like me and a small group of others you were helpful in documenting your results. I'm assuming you are still GD free like me. But I'm always vigilant and if I notice any symtom that could be the return of GD I go back on my blended cilantro for a week. Do you occasionally resume the cilantro?

Jump to this post

Frogger I feel an attachment to you because back in 2019 you were a part of the orginal test group that experimented with Kimass1's suggestion to try drinking blended cilantro to put GD into remission. Like me and a small group of others you were helpful in documenting your results. I'm assuming you are still GD free like me. But I'm always vigilant and if I notice any symtom that could be the return of GD I go back on my blended cilantro for a week. Do you occasionally resume the cilantro?

Jump to this post

I’m interested in learning more about how large your group was back in 2019 that was involved in the study. How many participants were there? Was it published, if so is there a link ? Are you aware of any documented studies with cilantro? Fascinated to know. Thanks

Jump to this post

I'd estimate it was a group of about 10 who posted regularly to report on the effects ingesting cilantro. This was simply an active discussion followed by those of us with GD, nothing official and we all had differences in the amount or duration in our blended cilantro, a few tried the capsules (I did briefly to begin with and found no benefit, yet perhaps my dose wasn't enough, or perhaps something is lost during the processing).
I learned about cilantro following a Mayo discussion about GD, the usual discussion, participants desperate finding no prescriptions or doctor's able to provide relief.
Researching this would be an inexpensive study for a college, but it seems this disease, considered rare, generates little interest in the medical field. We're told it's usually transient, so just rub on an expensive worthless topical and put up with it and hope it goes dormant for a period of time. If you want to look it up, I believe it is still in the archives for GD discussion and as I mentioned it would be mid-February when Kimass1 enlightened us.
A study would find many willing to participate at no expense, the GD sufferers would gladly buy their own cilantro and report back to the study leader. What a great college project because most of us noticed results within a month.

Jump to this post