MAC & Bronchiectasis Support Group

I have mild BE and EA, have been on Brinsupri 25mg for about 4mths. It has helped tremendously. After the first month I developed a...

Diagnosed with Bronchiecstasis and Mac about a year ago. My doctors said the we were going to wait to treat the Mac but one wanted...

Has anyone had issues with neuropathy and feet swelling while using Brinsupri?

I’ve been on Brinsupri 6 months and all my coughing has stopped plus last CT scan showed great improvement BUT now have intense itching. Derm...

It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different,...

After 6 months on Brinsupri I have hair thinning, I’m not sure if that’s what’s causing it though. Has anyone else experienced this?

My latest blood work at a yearly physical shows slightly abnormal numbers on 2 things related to liver function after taking Brinsupri for 2 months....

I’ve been on Brinsupri for a little over 2 months . I have slowly been gaining weight , up 5lbs now. The issue is, I...

I believe I saw a comment from someone regarding skin color changes on Brinsupri. I've been on it for 7 months. My only side effect...

FDA approved Brensocatib today. Hooray for us. Let’s hope we have access to it as soon as possible and it gives us some measure of...

Hi, Has anyone noticed more joint pain and stiffness since being on Brinsupri? I'm almost into my 5th month at 25 mg. I have advanced...

I've been on Brinsupri since last November. Thankfully, my inflammation and sputum have decreased. I need to send in a sputum sample to NJH next...

When you had brinsupri skin side effects what did you do? What was the decision about brinsupri? How did you know it was from brinsupri?

Those who are taking Brinsupri what time of day do you take it, and does it matter? I just got it!! 🤞🤞 Thanks!

I have been taking Brinsupri for about 6 months and initially, had a decrease in phlegm . At this time however, I am noticing a...

i have been on Brinsupri for three months. Since the 2nd week I developed two spots more sore like spots that itch a great deal....

This is the 3rd time I've tried writing this message. I get to the bottom and find it is gone. Pharmacist told me today that...

I have been taking BrinSupri for one month. So far I've had no side effects that I know of. Last week my cardiologist prescribed Repatha...

Brinsupri may take 3–6 months to reach full effect. Please use this thread to share first-hand experiences only if you have been on Brinsupri for...

Hello all! After failed NTM treatment and then RSV + Pneumonia + other infections while on Humira for crohns ... The Humira is on pause....