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MAC & Bronchiectasis Support Group

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Brinsupri Rash
I have mild BE and EA, have been on Brinsupri 25mg for about 4mths. It has helped tremendously. After the first month I developed a...
Support Group: MAC & Bronchiectasis
Last active: Aug 2 1:28pm
Discussion
Brinsupri for treatment of BE
Diagnosed with Bronchiecstasis and Mac about a year ago. My doctors said the we were going to wait to treat the Mac but one wanted...
Support Group: MAC & Bronchiectasis
Last active: Aug 9 10:47am
Discussion
Brinsupri & Neuropathy
Has anyone had issues with neuropathy and feet swelling while using Brinsupri?
Support Group: MAC & Bronchiectasis
Last active: Jun 4 6:37am
Discussion
Intense itching on Brinsupri
I’ve been on Brinsupri 6 months and all my coughing has stopped plus last CT scan showed great improvement BUT now have intense itching. Derm...
Support Group: MAC & Bronchiectasis
Last active: Aug 9 3:47pm
Discussion
Brinsupri follow-up
It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different,...
Support Group: MAC & Bronchiectasis
Last active: Jul 2 2:12pm
Discussion
Brinsupri and hair thinning
After 6 months on Brinsupri I have hair thinning, I’m not sure if that’s what’s causing it though. Has anyone else experienced this?
Support Group: MAC & Bronchiectasis
Last active: Aug 6 3:46pm
Discussion
Brinsupri and liver changes?
My latest blood work at a yearly physical shows slightly abnormal numbers on 2 things related to liver function after taking Brinsupri for 2 months....
Support Group: MAC & Bronchiectasis
Last active: Jun 16 9:55am
Discussion
Brinsupri Effects On Weight
I’ve been on Brinsupri for a little over 2 months . I have slowly been gaining weight , up 5lbs now. The issue is, I...
Support Group: MAC & Bronchiectasis
Last active: Aug 9 12:44pm
Discussion
Brinsupri (aka Brensocatib)
FDA approved Brensocatib today. Hooray for us. Let’s hope we have access to it as soon as possible and it gives us some measure of...
Support Group: MAC & Bronchiectasis
Last active: May 28 3:28pm
Discussion
Brinsupri and skin darkening
I believe I saw a comment from someone regarding skin color changes on Brinsupri. I've been on it for 7 months. My only side effect...
Support Group: MAC & Bronchiectasis
Last active: Jul 3 12:45pm