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Second Transplants @ Mayo

Posted by coky @coky, Nov 13, 2016

Does Mayo Clinic in Phx do second lung transplants? I had a bilateral Feb 2015 & this spring developed chronic rejection BOS. My Dr's @ UHC in Colo. won't to a second transplant & suggested I find another hospital. I am 62 years old & have Alpha 1 and was healthy except for my lung prior to transplant. Any advise?

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coastalgirl | @coastalgirl | Nov 14, 2016

I do not know any details but i would get to Mayo ASAP. I had a kidney transplant at Mayo Florida campus and i regard Mayo as the premium in all things health related. Best wishes.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Nov 14, 2016

@coky I would like to welcome you to our Mayo Clinic Connect Transplant Discussion. I am sorry that you are experiencing some difficulties with your transplant situation. I encourage you to take the advice from @coastalgirl and contact Mayo. I have included the general phone contact number for Mayo Arizona. Call them, and you will be connected with someone who will be able to answer your questions.
I sincerely hope that you will soon have answers that you seek.
Let us know what you find out.
Rosemary - (liver/kidney - Mayo Rochester)

Arizona — Scottsdale/Phoenix

Mayo Clinic

13400 E. Shea Blvd.
Scottsdale, AZ 85259

General number 480-301-8000

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Kristen Quick, Marketing Specialist | @kequick | Nov 15, 2016

Hi @coky,

Welcome to the group! Mayo Clinic’s lung transplant program in Phoenix is currently on a voluntary pause. We recommend you contact Mayo Clinic's campus in Jacksonville, Florida as they will consider doing a second lung transplant.

To request an appointment by phone call 904-956-3309, 8 a.m. to 5 p.m. Eastern time, Monday through Friday.

To request an appointment online visit http://mayocl.in/1mtmR63

Good luck and please let us know if we can do anything else to help!

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coky | @coky | Nov 24, 2016

Mayo in Phoenix contacted me and they basically said no, but then my original hospital is reconsiding re-transplanting me. I have my finger crossed that it works out. Thank you for your advise.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 25, 2016
In reply to @coky "Mayo in Phoenix contacted me and they basically said no, but then my original hospital is..." + (show)
@coky

Mayo in Phoenix contacted me and they basically said no, but then my original hospital is reconsiding re-transplanting me. I have my finger crossed that it works out. Thank you for your advise.

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Hi Coky, as Kristin mention Mayo Phoenix is taking a voluntary pause. I cross my fingers too that your original hospital will reconsider a re-transplant. Should that not work out, you may consider contacting Mayo Clinic, Florida http://mayocl.in/1mtmR63

How are you feeling these days?

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