Oral lichen Planus

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

@chari9

I am new and notice it has been a while since anyone posted about LP. My mouth had begun to be react to spicy foods and generally become uncomfortable. When I mentioned it to my dentist, he mentioned signs of LP but he didn't think it was active. He changed my toothpaste and mouthwash to Biotene products, which seemed to help. I already had osteoarthritis in my knees from wear and tear (age and weight), so I didn't think much about it again until I developed excruciating pain in the back of my neck. When my neck and ear on one side began to get numb and show no signs of stopping, I went to the ER. After ruling out heart attack and stroke, the doctor diagnosed Shingles! Eventually my jaw and the inner part of it (gums and lining) were becoming numb, and I couldn't feel my outer ear. I had no idea that Shingles could do those things! Gabapentin seems to be the common prescription for relieving pain in the nerve endings. It helped at first, but gave me a foggy feeling. Now when I take it I have terrible and vivid nightmares! I have read about LP and Shingles, and they both seem to be activated by stress. They also have similar symptoms and effects. I am not sure if I have one or both or if one is being activated by the other. I am tired all of the time, and the severity of the pain goes up and down the scale. I have so many things going on in my life, I have not been able to keep up with the groups I follow everyday, but any comments or advice would be appreciated. Thank you for listening to me.

Jump to this post

@chari6 thanks for sharing. good to know. I have severe Oral LP and am now being put on hydroxychloroquine because I also have LP all over my skin and now my eyes. The flare-ups never stop. I'll bring this up to my ear dr when she returns my call.

REPLY
@chari9

I am new and notice it has been a while since anyone posted about LP. My mouth had begun to be react to spicy foods and generally become uncomfortable. When I mentioned it to my dentist, he mentioned signs of LP but he didn't think it was active. He changed my toothpaste and mouthwash to Biotene products, which seemed to help. I already had osteoarthritis in my knees from wear and tear (age and weight), so I didn't think much about it again until I developed excruciating pain in the back of my neck. When my neck and ear on one side began to get numb and show no signs of stopping, I went to the ER. After ruling out heart attack and stroke, the doctor diagnosed Shingles! Eventually my jaw and the inner part of it (gums and lining) were becoming numb, and I couldn't feel my outer ear. I had no idea that Shingles could do those things! Gabapentin seems to be the common prescription for relieving pain in the nerve endings. It helped at first, but gave me a foggy feeling. Now when I take it I have terrible and vivid nightmares! I have read about LP and Shingles, and they both seem to be activated by stress. They also have similar symptoms and effects. I am not sure if I have one or both or if one is being activated by the other. I am tired all of the time, and the severity of the pain goes up and down the scale. I have so many things going on in my life, I have not been able to keep up with the groups I follow everyday, but any comments or advice would be appreciated. Thank you for listening to me.

Jump to this post

Hello @chari9 you must be quite miserable with both LP and shingles. The combination must be so difficult! LP is an autoimmune disease but the shingles virus is an opportunistic virus that takes advantage of a lowered immune system. Read through this discussion and see what others have done. I’m sure that members @bustrbrwn22 and @artist01 and @microgirl will step up to help you

You might also be interested in this discussion on shingles. The discussion itself is old but the information doesn’t change.
https://connect.mayoclinic.org/discussion/shingles-3/
Other than the Biotene products, are you being treated for LP?

REPLY

@chari9. Hi Chari. @ I note that @becsbuddy has mentioned my name to you with respect to your LP. I just replied to another member in this thread (I forget the name already. Sorry!) so I hope you can locate my response. Laurie

REPLY
@artist01

@chari9. Hi Chari. @ I note that @becsbuddy has mentioned my name to you with respect to your LP. I just replied to another member in this thread (I forget the name already. Sorry!) so I hope you can locate my response. Laurie

Jump to this post

Hi @chari9 I found the comments Laurie is referring to. She’d replied to @fdixon63 @bustrbrwn22 regarding LP. They are in this group.

REPLY
@loribmt

Hi @chari9 I found the comments Laurie is referring to. She’d replied to @fdixon63 @bustrbrwn22 regarding LP. They are in this group.

Jump to this post

@loribmt Hi Lori. Thankyou for that. I think I'd forget my own name some days! 😔

REPLY
@artist01

@loribmt Hi Lori. Thankyou for that. I think I'd forget my own name some days! 😔

Jump to this post

I’ve got your back. Laurie! 😘. Plus, there’s an easy way to check! If you click on your little profile picture, you’ll see the drop down menu for Profile & Settings. Click that, it will take you to another menu under your bio that says, Discussions, Comments, Likes, Bookmarks. Click on Comments and you’ll see all the comments you’ve ever made in order! So basically, I cheated! LOL.

REPLY
@loribmt

I’ve got your back. Laurie! 😘. Plus, there’s an easy way to check! If you click on your little profile picture, you’ll see the drop down menu for Profile & Settings. Click that, it will take you to another menu under your bio that says, Discussions, Comments, Likes, Bookmarks. Click on Comments and you’ll see all the comments you’ve ever made in order! So basically, I cheated! LOL.

Jump to this post

@loribmt. OH Lori, you're just so !%$#**!! SMART!! 😆 🤣 😂 At least I'm on the ball enough tonight to take a Screen Shot of your excellent directions so I'll know for next time!
Today has been one of those baddies. Blah. Tomorrow will be better. Promise!! Hugs, Laurie

REPLY
@becsbuddy

Hello @chari9 you must be quite miserable with both LP and shingles. The combination must be so difficult! LP is an autoimmune disease but the shingles virus is an opportunistic virus that takes advantage of a lowered immune system. Read through this discussion and see what others have done. I’m sure that members @bustrbrwn22 and @artist01 and @microgirl will step up to help you

You might also be interested in this discussion on shingles. The discussion itself is old but the information doesn’t change.
https://connect.mayoclinic.org/discussion/shingles-3/
Other than the Biotene products, are you being treated for LP?

Jump to this post

None of my doctors seem to be concerned about the LP. They are blaming everything on Shingles.

REPLY
@chari9

None of my doctors seem to be concerned about the LP. They are blaming everything on Shingles.

Jump to this post

Thank you for checking with your doctor for me. I appreciate all of the help I can get.

REPLY
@chari9

None of my doctors seem to be concerned about the LP. They are blaming everything on Shingles.

Jump to this post

@chari9. I would disagree. LP is no joke. Started on my skin, then my mouth, next my eyes. Started on high taper prednisone to get my mouth under control which I believe caused pre-diabetes condition. I have started and briefly stopped hydroxychloroquine because the inflammations never stop but it caused great ringing in my ears and vertigo. My dr said to start again in a couple days to see if I tolerate better. Be vigilant of any mucous membranes and get a treatment plan ASAP before it worsens. Clobetasol worked for a while in my mouth and skin but the lesions became ulcers and more aggressive treatment is needed. You need to find a dermatologist that takes LP seriously. Just my opinion.

REPLY
@lichenplanussufferer

I have had Lichen Planus for over 2 years on my gums with extreme bleeding. A few months ago I developed a sore on the side of my tongue. Hurt to eat talk..ect. My sister who is an RN suggested I take Valtrex. After taking 2 tablets a day for 4 days all Lichen Planus vanished. This leads me to believe it is viral. 2 months later and very little symptoms of LP.

Jump to this post

Is Valtrex on prescription, or over the counter? I think some OTCs in the States are on prescription in Canada, and some OTCs in Canada are only available on prescription. Are you in the States?

REPLY
Please sign in or register to post a reply.