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lovebug61 (@lovebug61)

Oral lichen Planus

Autoimmune Diseases | Last Active: Sep 10 7:15am | Replies (71)

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@chari9

I am new and notice it has been a while since anyone posted about LP. My mouth had begun to be react to spicy foods and generally become uncomfortable. When I mentioned it to my dentist, he mentioned signs of LP but he didn't think it was active. He changed my toothpaste and mouthwash to Biotene products, which seemed to help. I already had osteoarthritis in my knees from wear and tear (age and weight), so I didn't think much about it again until I developed excruciating pain in the back of my neck. When my neck and ear on one side began to get numb and show no signs of stopping, I went to the ER. After ruling out heart attack and stroke, the doctor diagnosed Shingles! Eventually my jaw and the inner part of it (gums and lining) were becoming numb, and I couldn't feel my outer ear. I had no idea that Shingles could do those things! Gabapentin seems to be the common prescription for relieving pain in the nerve endings. It helped at first, but gave me a foggy feeling. Now when I take it I have terrible and vivid nightmares! I have read about LP and Shingles, and they both seem to be activated by stress. They also have similar symptoms and effects. I am not sure if I have one or both or if one is being activated by the other. I am tired all of the time, and the severity of the pain goes up and down the scale. I have so many things going on in my life, I have not been able to keep up with the groups I follow everyday, but any comments or advice would be appreciated. Thank you for listening to me.

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Replies to "I am new and notice it has been a while since anyone posted about LP. My..."

@chari6 thanks for sharing. good to know. I have severe Oral LP and am now being put on hydroxychloroquine because I also have LP all over my skin and now my eyes. The flare-ups never stop. I'll bring this up to my ear dr when she returns my call.

Hello @chari9 you must be quite miserable with both LP and shingles. The combination must be so difficult! LP is an autoimmune disease but the shingles virus is an opportunistic virus that takes advantage of a lowered immune system. Read through this discussion and see what others have done. I’m sure that members @bustrbrwn22 and @artist01 and @microgirl will step up to help you

You might also be interested in this discussion on shingles. The discussion itself is old but the information doesn’t change.
https://connect.mayoclinic.org/discussion/shingles-3/
Other than the Biotene products, are you being treated for LP?