Oral lichen Planus: What home remedies or medications help you?
Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?
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@jshdma please read about @orangealert’s post here dated October 20, 2020, and tip. It may help you. Also @johnbishop and @artist101 have posted that they used Arm&Hammer toothpaste. Thankfully mine is under control with Methotrexate (took four to six months to clear, though) but I sure can relate to your experience! You have my full sympathy!
@joybringer1 I am in Canada!
@lichenplanussufferer Lichen Planus is not viral, it's an autoimmune disease.
I guess you got lucky, seeing yours disappear by using Valtrex. I sincerely hope it doesn't come back on you.
Best wishes, Laurie.
I convinced my dermatologist to prescribe Valtrix for me when I flared last fall based on a similar claim. The flare was the worse I had ever experienced. The Valtrix did not improve the LP but no side effects from the medication either. I felt it was worth a try. Just wanted to pass along my experience.
I am new to Lichen planus. About a year or so ago, my dentist commented on my gums that they were so red that this must be lichen planus, but he thought it weird that only areas of my gums were "fire engine" red! He said to watch it for a few weeks and call back if still red-I called back and I am not certain the message was relayed to him. I was not in discomfort so I let it go-had never heard of lichen planus, so on with life!
My next dentist appointment, he was alarmed that my gums looked so inflamed and gums recessed. I was sent to a periodontist who cleaned the roots of all my teeth and I am set up to have my teeth cleaned every 3 months alternating between the dentist and periodontist. He did a biopsy which confirmed erosive lichen planus and referred me to a specialist. Now I am alarmed-they were all so empathetic at the periodontist encouraging me that the gum tissue had improved after the root cleaning and I was feeling more positive!
My appointment with the specialist left me numb! He's a dermatologist and dentist. He looked at my mouth and said that it "was a mess"!
"We'll have to treat this aggressively"! So began clobetasol and minocycline daily and I ended up with oral thrush!!! They backed off the clobetasol to every other day. At three months, he was pleased with the results and removed the minocycline and added an "anti-rejection" medicine rinse. He checked and said I also have it vaginally! I am using another cream there.
My tongue often feels like it's been scraped. My husband and I had been going through a rough patch, but had just begun to iron things out and wanted to return to intimacy but the pain is incredible!
I am looking for advice, empathy, a place to share and find answers. I am frightened as this increases the chance of squamous cell carcinoma and I have had two spots removed elsewhere prior to the LP.
Thank you for any help
Hello @microgirl, Welcome to Mayo Clinic Connect. I read a post earlier in this discussion where @orangealert mentioned that mouthwashes and toothpaste containing sodium lauryl sulfate (SLS) can often make the symptoms worse. I don't have oral lichen planus but used to have a lot of canker sores frequently and switched to a toothpaste that does not contains SLS and it has helped me. @artist01 @rashida and other member may also have suggestions.
You mentioned the appointment with the specialist not going very well. Have you thought about a second opinion at a major teaching hospital or health facility like Mayo Clinic?
Thank you. I am currently using toothpaste and mouthwash specifically for sensitive gums, but I do need to check to make certain they do not contain SLS. I ordered auto-immune support lozenges this morning containing echinacea, zinc and vitamine C, which was suggested by someone.
The specialist seems very informative and he was pleased with the results so far, but I would like to get to ground zero as to why this is happening and see if I can remove the stimulus from my life rather than just treating the symptoms which is what I believe we are doing.
The second opinion may be a good direction. Thank you
@microgirl I got OLP 6 years ago. All my research leads me to believe that there are no treatments that work. It can go away spontaneously, but not always. In my case it seemed to become a version of "burning mouth syndrome," which also has no treatments. I have seen top specialists in NYS and Boston. Steroids do work, but they can create other problems. including causing it to return even worse than it started. There are numerous articles on OLP in a government website on orpahan diseases.
Hi-recently diagnosed-oral and vaginal. I am doing a steroid gel and a swish with an anti-rejection liquid. I am getting overwhelmed. I am so obsessed with checking my mouth! Some days everything looks somewhat normal and then I will look later in the day and my gums are red and my tongue looks swollen and scraped!
Good evening @microgirl OLP must be so difficult to deal with. I don’t have it but I had awful mouth sores when I started steroids. This link may give you some more information.
Do certain foods cause more trouble than others?