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Oral lichen Planus: What home remedies or medications help you?

Autoimmune Diseases | Last Active: Mar 16 5:59pm | Replies (297)
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@microgirl

Good morning Maryz,
I am about 6 months into treatment for OLP and vag lp. You have so much experience I wanted to ask you about symptoms. I am doing clobetazol 4x week and a liquid concoction of an anti-rejection medication. Some days my gums look "fine" and then they're flaming. I have had episodes of thrush. I am really frustrated. Before my diagnosis with biopsy, I had no lesions, no burning tongue-my dentist just seemed concerned that my gums were so red. He suspected lp and sent me to a specialist and my world turned upside down. Did you go through any allergy testing? I have some metal fillings-the specialist said, no that's not the cause, but I am considering having those replaced just in case it might make a difference. I am not satisfied treating the symptoms-I would like to know the cause and address that. what are your thoughts?

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Replies to "Good morning Maryz, I am about 6 months into treatment for OLP and vag lp. You..."
Becky, Volunteer Mentor | @becsbuddy | Apr 18, 2021

Good morning @microgirl I really do understand your wish to find the cause of the OLP. I would, too! OLP is an autoimmune disease which happens when your immune system gets out of whack. I, too, was shocked when my immune system went crazy and caused lesions on my brain. My research explained that most AD are genetic, but more research needs to be done. I attached a link to the Mayo Clinic site that will provide more information.

https://www.mayoclinic.org/diseases-conditions/oral-lichen-planus/symptoms-causes/syc-20350869
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spondee | @spondee | Apr 26, 2023

This is a mysterious autoimmune disease and usually the docs don't speak of causes but of triggers. Any old virus may trigger it--and Covid is a culprit, along with the flu and even maybe the vaccines for viral disorders. After all, vaccines elicit an immune response--and an immune response can be an autoimmune response too.

It is possible that a person has a non-symptomatic OLP condition that suddenly flares after an autoimmune response to a vaccine or an actual viral infection. I don't think I am saying anything controversial here. Drugs are also said to trigger OLP, in particular beta blockers and ace inhibitors but also NSAIDS--which is pretty wild. If you are using such drugs, consider tapering off.

I'm an OLP sufferer, not a doctor, but I've been researching like crazy. It is just so hard to find a dentist or a doctor who knows anything at all about OLP.

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