Oral lichen Planus

Posted by lovebug61 @lovebug61, Thu, Apr 4 8:57pm

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

I assume the doctor tried the usual treatment for OLP, which is steroids. They usually work, but have to be repeated. Otherwise, I can tell you that after many years of BMS, there are no effective treatments. Good luck. J

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Dear Lovebug61. I know the pain and frustration that come with OLP after many years. Because we are only 1% of the population it is a rare medical person who has interest in this disease. After 30+ year the severity ebbs and flows. Be sure that you see someone regularly/quarterly who can track your LP. After a particularly bad 6 months I have trays made for my teeth and use clobetazol 5% gel 3times a day until the inflammation and lesions are reduced. This was after Prednisone injections in my cheeks. I take 8000mg total of Tumeric with bioprine divided 3times a day with food. I have been told to eliminate ALL dairy as some patients seem to be allergic to the milk proteins…so I have been very diligent about reading labels. I am not yet sure if the diet change will help the LP but the Exema that I had developed about 3 years ago has disappeared and did so after about 5 days. My greatest success has been when we lived near Medical Schools and I was seen by Dr’s in the Oral Med or Stomotology clinics. They reviewed me quarterly, watched and tested for oral cancer. And tried various protocols etc to help. The pain at night was helped by using Xylimelts w/o mint, by OraCoat, During the day using small amount of Viscous Lidocaine. I also exercise daily to get my heart rate up as I believe that also increases the blood flow in my mouth which helps my healing. I hope some of this helps with your symptoms.

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I have oral lichen plays

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I have sores in mouth pain in cheeks and tongue has fires and burning. Help!!

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I was diagnosed with lichen planus many years ago. I was given Fluocinonide gel USP, 0.05%. I works overnight like a charm. I will not go anywhere for too long without taking it with me. It was found that I bite the inside of my check at times especially if I chew gum. I no longer chew gum. As we age, our muscles begin to sag (yes even in our face), and as a result we have to pay attention to our back teeth wearing and getting sharper around the edges. The dentist can round the sharp edges off. I know just how painful it is when we get the open sores in our mouth. As an FYI, should you get the script for the Fluocinonide, you will read that it is for external use only. Since everything we put on externally goes into our pores and into our body, I was not worried about reading "For external Use only". I am sure the Oral Surgeon would not have prescribed it if he felt there was danger in using it in my mouth. Good luck.

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