Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@parus

@lisalucier I have stage one prolapse and have chosen to go with a pesary which seems to be a good choice for me at this time. I had no idea this type of thing could even happen. Now I know. 🙁

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Can you please explain what Stage 1 Prolapse is? I will be going for a test on Tuesday. The test was explained to me, sitting on a chair that has an opening, urinating while the Tech. looking on a computer to see how the bladder is working. What is the Procedure to fix it?

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Thank You so much for investigating.

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I had mild prolapse for years without any urination issues. Yet it all gave way but I'm fixed up now. 1- The new mesh is to hold up the bladder. This mesh allows the tissue to grow through it to attach. With aging our own tissues aren't strong enough. 2- If that doesn't help with frequent urination or total voiding which is tested for like you did, a sling is placed permanently to lift the urethra, it's a small device.
Both procedures can be done vaginally.
You must see a surgeon who only specializes in this procedure. Do not expect the basic OB/GYN to give you good results. I made that mistake after my hysterectomy by a basic OB/GYN. I went to a highly regarded specialist surgeon and prolapse surgeon and all still holding after 4 years. No more needing to know where the bathrooms are when out on shopping trips!!!! Medicare approved for these procedures so do your homework on the surgeon.
For Stage 1 you may only need the sling. It is not a complicated surgery but you will need a general.

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@kimspr3

Thank You so much for investigating.

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Hello and I wish you the best of luck I do want to add if you are considering surgery and if you are in the state of DE DO NOT use Dr. Howard Goldstein. After my repair for bladder prolapse almost at stage 3 has left me with nerve damage even though the problem has been fixed correctly for 1 and 1/2 years after my surgery and much pain he misdiagnosed me over and over I had to go out of state to see another uro/gyn when you use the dr. thru Christian Care (there is only one practice in the state of DE) you can not go to another dr. in that practice so if you see one and you don't like them or are not happy with your results you can't see any other dr. in the practice you must go out of state please do your homework and I wish you the best of luck

Liked by gardeningjunkie

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@kimspr3

Can you please explain what Stage 1 Prolapse is? I will be going for a test on Tuesday. The test was explained to me, sitting on a chair that has an opening, urinating while the Tech. looking on a computer to see how the bladder is working. What is the Procedure to fix it?

Jump to this post

The different stages of prolapse range from 1-4 for the bladder which is what I had. I had a stage 4 bladder prolapse prior to my surgery. I have previously gone through my experience and the type of surgery I had on this forum so if you search for my posts you will see them. But briefly, I had a surgery called sacrocolpopexy with hysterectomy. The hysterectomy is usually done with this procedure because the uterus is basically in the way and it is a much simpler and shorter surgery if they remove it. I am 64 so I am post-menopausal and so there wasn't an issue of having future children, but I still was a little concerned at first when I was told it involved a hysterectomy. But after I thought about it and got used to the idea, I was okay with it. It is done with the DaVinci Robot and laproscopically. There were 4 little holes in my tummy below the belly button where I suppose instruments, etc. were inserted. I say "were" because you cannot see them anymore and my surgery was about 1.5 years ago. I am very glad I had it as it had gotten to the point where there was rubbing and tissue abrasion from the rubbing just from daily activity. At the end, I was having bleeding and soreness and just could not hardly move around because I would start to bleed.

They measure bladder prolapse by how far the bladder descends into the vagina. Mine was so extensive that I don't think anyone ever measured it or did a test as it was an obvious stage 4 (the most extensive). Stage 1 is the least extensive so it might be the case that your procedure will be different. But definitely see a urogynecologist and make sure you look into reports from patients who have had the procedure with them. I found 3 in my city (Austin, TX) and went to two of them. They both told me exactly the same thing and the procedure they intended to use was identical. It was just a matter of who I liked the best and felt most comfortable with.

Just take the time to do your homework and find a doctor that you are comfortable with. If you have issues with incontinence or frequent urination, your doctor should ask you about that as well and even if you don't, he/she should test you to see if you are likely to have such problems once your bladder is fixed. This is because sometimes bladder prolapse can mask incontinence due to the fact that the bladder drops down and gravity makes it harder for the urine to flow out when you have the prolapse. But if the bladder is raised as it is in surgery, then the urine can flow more readily and any incontinence issues may show up. The study my doctor did for this was called a urodynamics study and he determined that once my prolapse was fixed that I might have some incontinence. As such, he did some fix for this during the surgery in hopes that I would not have to have a second surgery to have this done. He must have estimated correctly because I have not had any problems with incontinence since my surgery.

So hopefully you can see that you definitely need a specialist (not just a OB/GYN or a urologist). There are just lots of things to consider. The mesh they use these days is not the same kind you hear about on the TV commercials with the lawyers. My doctor actually showed it to me and it is more like a piece of nylon than what I had envisioned so it is softer and more pliable. I don't feel it at all.

Please keep us all posted on your progress and any questions, concerns you have. You are right to ask questions and do your research. We are definitely here for you.
Best to you.

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@kimspr3

Can you please explain what Stage 1 Prolapse is? I will be going for a test on Tuesday. The test was explained to me, sitting on a chair that has an opening, urinating while the Tech. looking on a computer to see how the bladder is working. What is the Procedure to fix it?

Jump to this post

@kimspr3 That sounds like a test I went through. In my case it was to determine if I was a good candidate for botox injections, which I am.
JK

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@kimspr3

Can you please explain what Stage 1 Prolapse is? I will be going for a test on Tuesday. The test was explained to me, sitting on a chair that has an opening, urinating while the Tech. looking on a computer to see how the bladder is working. What is the Procedure to fix it?

Jump to this post

Hi, @kimspr3 – this Mayo Clinic information on uterine prolapse may also be helpful https://www.mayoclinic.org/diseases-conditions/uterine-prolapse/symptoms-causes/syc-20353458

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@baxtersmom

The different stages of prolapse range from 1-4 for the bladder which is what I had. I had a stage 4 bladder prolapse prior to my surgery. I have previously gone through my experience and the type of surgery I had on this forum so if you search for my posts you will see them. But briefly, I had a surgery called sacrocolpopexy with hysterectomy. The hysterectomy is usually done with this procedure because the uterus is basically in the way and it is a much simpler and shorter surgery if they remove it. I am 64 so I am post-menopausal and so there wasn't an issue of having future children, but I still was a little concerned at first when I was told it involved a hysterectomy. But after I thought about it and got used to the idea, I was okay with it. It is done with the DaVinci Robot and laproscopically. There were 4 little holes in my tummy below the belly button where I suppose instruments, etc. were inserted. I say "were" because you cannot see them anymore and my surgery was about 1.5 years ago. I am very glad I had it as it had gotten to the point where there was rubbing and tissue abrasion from the rubbing just from daily activity. At the end, I was having bleeding and soreness and just could not hardly move around because I would start to bleed.

They measure bladder prolapse by how far the bladder descends into the vagina. Mine was so extensive that I don't think anyone ever measured it or did a test as it was an obvious stage 4 (the most extensive). Stage 1 is the least extensive so it might be the case that your procedure will be different. But definitely see a urogynecologist and make sure you look into reports from patients who have had the procedure with them. I found 3 in my city (Austin, TX) and went to two of them. They both told me exactly the same thing and the procedure they intended to use was identical. It was just a matter of who I liked the best and felt most comfortable with.

Just take the time to do your homework and find a doctor that you are comfortable with. If you have issues with incontinence or frequent urination, your doctor should ask you about that as well and even if you don't, he/she should test you to see if you are likely to have such problems once your bladder is fixed. This is because sometimes bladder prolapse can mask incontinence due to the fact that the bladder drops down and gravity makes it harder for the urine to flow out when you have the prolapse. But if the bladder is raised as it is in surgery, then the urine can flow more readily and any incontinence issues may show up. The study my doctor did for this was called a urodynamics study and he determined that once my prolapse was fixed that I might have some incontinence. As such, he did some fix for this during the surgery in hopes that I would not have to have a second surgery to have this done. He must have estimated correctly because I have not had any problems with incontinence since my surgery.

So hopefully you can see that you definitely need a specialist (not just a OB/GYN or a urologist). There are just lots of things to consider. The mesh they use these days is not the same kind you hear about on the TV commercials with the lawyers. My doctor actually showed it to me and it is more like a piece of nylon than what I had envisioned so it is softer and more pliable. I don't feel it at all.

Please keep us all posted on your progress and any questions, concerns you have. You are right to ask questions and do your research. We are definitely here for you.
Best to you.

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Thank You Lisa, You confirmed I made the right decision. A Visiting Nurse suggested I see a Urogynecologist. I researched, liked what I read, had a visit now I am reassured. I go for the test tomorrow. Not found of that test. What I have is uncomfortable, don't remember if I mentioned when urinating either flow won't start, I wait, than starts and stops, at times can't tell if it stopped. are those the side effects? I hope you don't need a second surgery. Thank You again

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@contentandwell

@kimspr3 That sounds like a test I went through. In my case it was to determine if I was a good candidate for botox injections, which I am.
JK

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JK, Thank you for you input.

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@lisalucier

Hi, @kimspr3 – this Mayo Clinic information on uterine prolapse may also be helpful https://www.mayoclinic.org/diseases-conditions/uterine-prolapse/symptoms-causes/syc-20353458

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Went on the site very informative. Now I have a few more questions to ask the Dr. Thanks

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@gardeningjunkie

I had mild prolapse for years without any urination issues. Yet it all gave way but I'm fixed up now. 1- The new mesh is to hold up the bladder. This mesh allows the tissue to grow through it to attach. With aging our own tissues aren't strong enough. 2- If that doesn't help with frequent urination or total voiding which is tested for like you did, a sling is placed permanently to lift the urethra, it's a small device.
Both procedures can be done vaginally.
You must see a surgeon who only specializes in this procedure. Do not expect the basic OB/GYN to give you good results. I made that mistake after my hysterectomy by a basic OB/GYN. I went to a highly regarded specialist surgeon and prolapse surgeon and all still holding after 4 years. No more needing to know where the bathrooms are when out on shopping trips!!!! Medicare approved for these procedures so do your homework on the surgeon.
For Stage 1 you may only need the sling. It is not a complicated surgery but you will need a general.

Jump to this post

Thank Garden, I had the test, OMG, embarrasing. Smile. I also have a Hernia, my bladder is small. Because of all the nerve damage from spine next week is another test called Anorectal Manometry. Dr. wants to make surety 2 are not connected. my Dr. is a Urogynecology. I never heard of that kind of Specialist. A Visiting Nurse advised me. My Pain Management will be involved. Thank You

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We women must be tough! It goes against our nature to be poked and prodded in our private area. I hope your exam was done by someone with a gentle touch like my surgeon had. You mentioned your bladder being small, but my surgeon said a problem for many women was that they held their urine too long and stretched out their bladder and for them that had to be repaired. I wonder if your bladder will stretch to a normal size once you can contain and hold your urine longer.
Pain- I had no issues taking hydrocodone and I also took a muscle relaxer (tranquilizer) for a few days just to space me out and I watched mindless TV shows. I love to read but my eyes didn't focus right and also I didn't have a good attention span. Meds helped me not only with pain but the muscle relaxer helped not feeling guilty for being useless and not cooking and cleaning. I had no issues stopping those meds once the pain subsided.
I pre-cooked many meals and had the house stocked with food so my husband never went hungry.

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@parus

@lisalucier I have stage one prolapse and have chosen to go with a pesary which seems to be a good choice for me at this time. I had no idea this type of thing could even happen. Now I know. 🙁

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Hi, @parus – have you experienced symptoms with your stage 1 prolapse? Any tricks you've found with using the pessary that have made it more comfortable for you?

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@kimspr3

Thank Garden, I had the test, OMG, embarrasing. Smile. I also have a Hernia, my bladder is small. Because of all the nerve damage from spine next week is another test called Anorectal Manometry. Dr. wants to make surety 2 are not connected. my Dr. is a Urogynecology. I never heard of that kind of Specialist. A Visiting Nurse advised me. My Pain Management will be involved. Thank You

Jump to this post

@kimspr3 Yep, it is embarrassing. That is the test I had. The people monitoring the test make it as comfortable as possible though. They told me I might have some after-effects but I did not.

I also went to a urogynecologist. It is a relatively new specialty.

@gardeningjunkie I too have never had an issue coming off of hydrocodone, oxycodone or oxycontin. I think as long as you don't overdo them, and don't take them for a very prolonged amount of time, most people are fine. Supposedly some people do get somewhat addicted in a number of days though.
JK

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@contentandwell

@kimspr3 Yep, it is embarrassing. That is the test I had. The people monitoring the test make it as comfortable as possible though. They told me I might have some after-effects but I did not.

I also went to a urogynecologist. It is a relatively new specialty.

@gardeningjunkie I too have never had an issue coming off of hydrocodone, oxycodone or oxycontin. I think as long as you don't overdo them, and don't take them for a very prolonged amount of time, most people are fine. Supposedly some people do get somewhat addicted in a number of days though.
JK

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Hello JK, I had another test done to see how the muscles are in the bowel area. Well very weak, so that is another issue. I don't remember if I mentioned I have a chronic sever spine issues called, Adhesive Arachnoiditis and if I have the surgery I may become worse in some ways. Wonder if I do not have the surgery what might happen??? Either way, don't want to loose what independence I have left and I can not deal with MORE pain?

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