Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

kimspr3,
I had been meaning to respond to your post as I also have a spine issue myself. I have scoliosis, stenosis and several other abnormalities. I do not have a lot of pain in my back but do have it severely down my leg in what presents similar to sciatica. I have tried a lot of things and like you have been told that the only fix is what would amount to a very life altering surgery that may or may not help and could possibly make things worse. I also had a stage 4 bladder prolapse before I had the surgery that I have described here many times. I am very glad that I had the prolapse surgery. I had a bunch of tests prior to it and even though I have some nerve issues in my left side/leg and ankle, I did not have any complications from that when I had my surgery. I felt like you that I needed to have my prolapse addressed because it was a surgery that would likely improve my quality of life. Of course there are never any guarantees but indeed the prolapse surgery has allowed me to be much more mobile and active than I would be otherwise. I still have a severe limitation due to my spine but it did not cause any complications when I had my prolapse addressed. Since it seems we have similar issues, I am happy to communicate with you more as you go forward toward your decision. Are you approaching a decision about your surgery soon?
I will be watching for your posts and wishing you the best.

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@contentandwell

@kimspr3 Yep, it is embarrassing. That is the test I had. The people monitoring the test make it as comfortable as possible though. They told me I might have some after-effects but I did not.

I also went to a urogynecologist. It is a relatively new specialty.

@gardeningjunkie I too have never had an issue coming off of hydrocodone, oxycodone or oxycontin. I think as long as you don't overdo them, and don't take them for a very prolonged amount of time, most people are fine. Supposedly some people do get somewhat addicted in a number of days though.
JK

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Yes my son warned me not to take oxy as some are addicted after the first time they take it but that was after I was already on it a week. It helped get my hysterectomy pain down to a lower pain level (still miserable). I was on it for 2 weeks and made myself go off it trying other drugs my insurance company or Medicare wanted me to try, can't remember. Yes they called to counsel me and recommended substitutes. These other drugs were worthless. Went back on oxy for another week and then pain level was manageable with weaker drugs. Never once did I feel the urge to take another oxy. My strong and athletic husband just hurt his back severely, pulled a muscle on a Friday. He couldn't even walk to the bathroom. I got out my stash of leftover pain meds and found the oxy- dated 2013. He used it for 2 days with my left over muscle relaxer the doctor gave me and survived till he saw a doctor on Monday.

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@gardeningjunkie

Yes my son warned me not to take oxy as some are addicted after the first time they take it but that was after I was already on it a week. It helped get my hysterectomy pain down to a lower pain level (still miserable). I was on it for 2 weeks and made myself go off it trying other drugs my insurance company or Medicare wanted me to try, can't remember. Yes they called to counsel me and recommended substitutes. These other drugs were worthless. Went back on oxy for another week and then pain level was manageable with weaker drugs. Never once did I feel the urge to take another oxy. My strong and athletic husband just hurt his back severely, pulled a muscle on a Friday. He couldn't even walk to the bathroom. I got out my stash of leftover pain meds and found the oxy- dated 2013. He used it for 2 days with my left over muscle relaxer the doctor gave me and survived till he saw a doctor on Monday.

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@gardeningjunkie They really are overly cautious about these opioids now I think. I have been on them at least four different times and never had a problem. Last night when I was in the ER for what turned out to be Displaced fracture of greater trochanter of left femur which is very painful, the doctor would not prescribe anything despite that I cannot take any OTC pain relievers other than acetaminophen. I finally got him to give me a small prescription of tramadol.
JK

Liked by gardeningjunkie

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Evidence is out there that some are prone to opioid addiction, evidently we are not. After 2 weeks on oxy during hysterectomy surgery it was tramadol that was recommended I replace it with and I can testify it did nothing to ease my pain and went back on oxy.
Your fracture must have been extremely painful and I am surprised they were reluctant to prescribe stronger pain relief. As mentioned, even expired, my 6 year old leftover oxy helped my husband cope with his pain level for a few days. At first he tried a Motrin strength ibuprofen which didn't make a dent in his pain level. I didn't even bother giving him the tramadol, not sure why I still have it in my pain relief stash. He had no problem giving up his evening martini knowing the oxy would not be good to mix with alcohol.

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@baxtersmom

kimspr3,
I had been meaning to respond to your post as I also have a spine issue myself. I have scoliosis, stenosis and several other abnormalities. I do not have a lot of pain in my back but do have it severely down my leg in what presents similar to sciatica. I have tried a lot of things and like you have been told that the only fix is what would amount to a very life altering surgery that may or may not help and could possibly make things worse. I also had a stage 4 bladder prolapse before I had the surgery that I have described here many times. I am very glad that I had the prolapse surgery. I had a bunch of tests prior to it and even though I have some nerve issues in my left side/leg and ankle, I did not have any complications from that when I had my surgery. I felt like you that I needed to have my prolapse addressed because it was a surgery that would likely improve my quality of life. Of course there are never any guarantees but indeed the prolapse surgery has allowed me to be much more mobile and active than I would be otherwise. I still have a severe limitation due to my spine but it did not cause any complications when I had my prolapse addressed. Since it seems we have similar issues, I am happy to communicate with you more as you go forward toward your decision. Are you approaching a decision about your surgery soon?
I will be watching for your posts and wishing you the best.

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Hello Gail, Very happy it worked for you! I'm afraid though but it is a must I have it done because it also involves the muscles bowel area. Dr. told me they are very weak. I am in pain all the time did it make your back pain worse. I ask because every time I have something done than I have I become worse. Was it hard for you to urinate? I wait and wait nothing happens. I had to give the dr. a urine sample, I could not. Or stop and start. Frustrating. Was that your issue? I have Adhesive Arachnoiditis. Rare disease, cause. Doctor's, Neurosurgeons. Many know about it but will not admit it. I wanted it in August, Husband said September. So Sept. 9 so he can go fishing. Was you surgery for Stenosis a success? Stenosis, I had 2008, that started everything. That Dr. caused me to have Flat Back syndrome. Back does not curve anymore so sitting is painful sit to long. Lots of Lamina removed no fusion. I think we may have similar issues. I had a Pain Pump implanted. The cosplay who makes the pump also give something like a remote control called a Bolus. I'm allow to you use it 7 times a day if I need extra doses. Catheter implanted near the tailbone. Dr. wants to keep me overnight for 1 or 2 nights. He spoke with Pain Management Dr.. they decided it's better to be cautious. So thats the plan. May I ask, can you still drive, stand for long, limitations? Happy you replied. Hope I did not impose asking more personal questions. I wish you the best also. I have not been on line sorry it took so long.

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@kimspr3
I am glad you have your prolapse surgery scheduled. I actually have not ever had surgery on my back. Because of my scoliosis, they would have to put a rod in my back after working on the selected areas and I just did a bunch of research and decided I did not want it done. I did dance on point for 25 years and also have ankle and feet issues (I did have an ankle fused and some tendons repaired in my lower leg) but never anything in the back. I just tuff it out. I am transitioning from my Norco/Hydrocodone to something called Belbuca. It has worked wonders on my nerve pain down my legs. Not taken it away but it has sure helped. It is a tiny sticky film that you put in your mouth and it dissolves. It has allowed me to cut from 6 Norco a day down to 2 in a relatively short period of time. You might ask your pain doctor if he thinks it might help you.

You are wise to stay as many nights in the hospital after your prolapse surgery as you can. My doctor was going to have me stay one night but I asked if I could stay two since I live alone and he said fine so that is what I did. Prior to my prolapse surgery I had difficulty urinating because my bladder had dropped down so much. This is very common. After my surgery I had no problem urinating at all. I came home with a catheter in and had to keep it in for a week. But after that, urinating was not a problem at all. The surgery did not bother my back at all either. In fact it helped a little because there was no pulling on the muscles and ligaments in the pelvic area after surgery. My ligaments were very weak and that is why they had to use mesh for my surgery. Just repairing the ligaments would not have lasted as 2 different doctors told me they would not hold and I would be back in a few years going through surgery all over again. So I had the mesh and have had absolutely no problem at all. After your surgery there are a few landmarks you have to cross–one is having a BM. They assume because you have had pain meds in surgery and afterwards that you will be constipated. So they gave me something to combat constipation. But for some reason, I ended up with a little bit of diarrhea. I don't think I needed the meds for constipation as my body is very used to pain meds so the constipation medicine gave me diahhrea. I tried to tell them that but they didn't listen. I took all of my own medications to the hospital with me but some hospitals don't let you do that for liability reasons.

As far as driving, yes I do it every day. I don't like to stand or sit for long periods but that is due to my back and leg pain, not the prolapse surgery. After the prolapse surgery they did not want me to drive for a week until after the catheter came out. I took advantage of it and just stayed home and rested, cleaned out drawers and read. But I drove myself to the doctor to get the catheter out. I was so ready to get that thing out that I was 30 minutes early for my appointment.

I am happy to answer your questions. That is why we are here. Please keep me posted on how you are doing. Tell your husband he must catch some fish on his trip if you are putting off your surgery so he can go. If you think of any other issues, however minor, please send them my way.
Take care.

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@kimspr3

Hello JK, I had another test done to see how the muscles are in the bowel area. Well very weak, so that is another issue. I don't remember if I mentioned I have a chronic sever spine issues called, Adhesive Arachnoiditis and if I have the surgery I may become worse in some ways. Wonder if I do not have the surgery what might happen??? Either way, don't want to loose what independence I have left and I can not deal with MORE pain?

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@kimspr3 They feel my problem in that area could be related to my tearing through my anal sphincter when my son was born. I do not have any spine problems but yours certainly must compound the situation.

I really understand your feelings, I would feel the same way. Have you asked the doctor what might be the outcome if you do not have surgery? If not, you should.

I think we can deal with pain when we know the end is in sight, but when not it’s very hard to deal with it. I wish you wisdom in making a decision, and I hope you will keep us in the loop. You are going through a lot. I hope you feel free to vent here, or to bounce educated ideas off of anyone who may have some input.
JK

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@gardeningjunkie

Evidence is out there that some are prone to opioid addiction, evidently we are not. After 2 weeks on oxy during hysterectomy surgery it was tramadol that was recommended I replace it with and I can testify it did nothing to ease my pain and went back on oxy.
Your fracture must have been extremely painful and I am surprised they were reluctant to prescribe stronger pain relief. As mentioned, even expired, my 6 year old leftover oxy helped my husband cope with his pain level for a few days. At first he tried a Motrin strength ibuprofen which didn't make a dent in his pain level. I didn't even bother giving him the tramadol, not sure why I still have it in my pain relief stash. He had no problem giving up his evening martini knowing the oxy would not be good to mix with alcohol.

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@gardeningjunkie Many doctors are very reluctant to prescribe opioids these days, even my own PCP who knows me pretty well is that way. I assume an ER doctor doesn’t know the patient and is less apt to take a chance. I do have some leftover oxycodone so I tried that and it did help. I only take anything at bedtime. The tramadol bottle says 1 or 2 every four or six hours so I took two last night and that was helpful but he gave me a small number of pills so I don’t want to go through them quickly.

Being post liver transplant I cannot drink alcohol so that is not an issue.
JK

Liked by gardeningjunkie

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I would think giving up alcohol post liver transplant would be a matter of survival. Very motivating. I didn't give up alcohol until I learned about the white matter in our frontal lobe collects as we age and/or with alcohol consumption. At 66 I had a tonic clonic (grand mal) seisure after receiving a general for an outpatient surgery and the result was an electrolyte imbalance causing a seizure at home that night. Yes I am lucky to be alive.
I do encourage others if possible stay as long as you are allowed post surgery. You do need a caregiver present at your home for a few days while you recover, at least for 24 hours. Also you need to realize how important it is to eat and drink a sugar beverage afterwards. I was nauseated and couldn't make myself eat and I only wanted water thus low sodium, magnesium and potassium and all that water flushed out my minerals. At least eat soda crackers and sip 7-UP. Because of seizure I had several brain scans which showed this nasty white matter collecting in the frontal lobe. White matter, which will build in time with age even if you don't drink causes short term memory loss- for example, Why did I walk into this room? Once I saw the scan pictures I decided I didn't need to contribute to this part of aging. This was a big sacrifice because I loved my evening cocktails yet our will to live a good life is strong. What am I writing about? Ha, Ha, just kidding.

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@gardeningjunkie

I would think giving up alcohol post liver transplant would be a matter of survival. Very motivating. I didn't give up alcohol until I learned about the white matter in our frontal lobe collects as we age and/or with alcohol consumption. At 66 I had a tonic clonic (grand mal) seisure after receiving a general for an outpatient surgery and the result was an electrolyte imbalance causing a seizure at home that night. Yes I am lucky to be alive.
I do encourage others if possible stay as long as you are allowed post surgery. You do need a caregiver present at your home for a few days while you recover, at least for 24 hours. Also you need to realize how important it is to eat and drink a sugar beverage afterwards. I was nauseated and couldn't make myself eat and I only wanted water thus low sodium, magnesium and potassium and all that water flushed out my minerals. At least eat soda crackers and sip 7-UP. Because of seizure I had several brain scans which showed this nasty white matter collecting in the frontal lobe. White matter, which will build in time with age even if you don't drink causes short term memory loss- for example, Why did I walk into this room? Once I saw the scan pictures I decided I didn't need to contribute to this part of aging. This was a big sacrifice because I loved my evening cocktails yet our will to live a good life is strong. What am I writing about? Ha, Ha, just kidding.

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@gardeningjunkie From what I have read there really is no reason to have to not consume any alcohol unless your cirrhosis was due to alcohol. Mine was not, I had NASH (nonalcoholic steatohepatitis) which is an advanced stage of NAFLD – non-alcoholic fatty liver disease. Even so, I think we all do respect the rules and not drinking is one of them.

I did enjoy my glass of wine with dinner but giving that up was much easier than giving up foods with lactose. I have become lactose intolerant and that really is miserable. I don’t often eat ice cream due to calories and sugar, but now every time I drive by an ice cream stand I feel a loss. I am now planning the rehearsal dinner for my son’s wedding and trying to find options I can enjoy is not easy. 🙁
JK

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My kidneys and liver are perfect and my reason as mentioned was to lesson the aging of my brain and also I have other health issues, eczema, for which alcohol should be avoided.
Giving up alcohol, was easier than giving up sugar! I agree with you!!! But even after 9 months of no processed sugar, I will still allow a monthly dessert. Yet I no longer salivate looking at ice cream or sweets. I am allowed Stevia as an artificial sweetener on my anti-inflammation diet which so helps not only for my eczema (no longer need an annual cortico-steroid shot) and it solved my chronic yeast issues- gone!!! I have found Wal-mart makes a good pancake syrup and their jams are quite acceptable for when I do need something sweet. For me calories are not the issue and I have lost 15 lbs and do not want to loose more as I have never been overweight and am back to my teenage weight which doesn't look as good on a 70 year old woman's face. I eat volumes of food and except for desserts and alcohol consume as much as my 250 lb husband and I weigh less than half of that. Now after 3 months detox of all sugar- both processed and natural I can eat a small serving of fruit daily and this is thrilling.
Your sacrificing foods you love will make you feel better and stay healthier- hang in there.

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Thank You!

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@gardeningjunkie

My kidneys and liver are perfect and my reason as mentioned was to lesson the aging of my brain and also I have other health issues, eczema, for which alcohol should be avoided.
Giving up alcohol, was easier than giving up sugar! I agree with you!!! But even after 9 months of no processed sugar, I will still allow a monthly dessert. Yet I no longer salivate looking at ice cream or sweets. I am allowed Stevia as an artificial sweetener on my anti-inflammation diet which so helps not only for my eczema (no longer need an annual cortico-steroid shot) and it solved my chronic yeast issues- gone!!! I have found Wal-mart makes a good pancake syrup and their jams are quite acceptable for when I do need something sweet. For me calories are not the issue and I have lost 15 lbs and do not want to loose more as I have never been overweight and am back to my teenage weight which doesn't look as good on a 70 year old woman's face. I eat volumes of food and except for desserts and alcohol consume as much as my 250 lb husband and I weigh less than half of that. Now after 3 months detox of all sugar- both processed and natural I can eat a small serving of fruit daily and this is thrilling.
Your sacrificing foods you love will make you feel better and stay healthier- hang in there.

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I should have said Walmart makes a good sugar free syrup and jam.

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@baxtersmom

kimspr3,
I had been meaning to respond to your post as I also have a spine issue myself. I have scoliosis, stenosis and several other abnormalities. I do not have a lot of pain in my back but do have it severely down my leg in what presents similar to sciatica. I have tried a lot of things and like you have been told that the only fix is what would amount to a very life altering surgery that may or may not help and could possibly make things worse. I also had a stage 4 bladder prolapse before I had the surgery that I have described here many times. I am very glad that I had the prolapse surgery. I had a bunch of tests prior to it and even though I have some nerve issues in my left side/leg and ankle, I did not have any complications from that when I had my surgery. I felt like you that I needed to have my prolapse addressed because it was a surgery that would likely improve my quality of life. Of course there are never any guarantees but indeed the prolapse surgery has allowed me to be much more mobile and active than I would be otherwise. I still have a severe limitation due to my spine but it did not cause any complications when I had my prolapse addressed. Since it seems we have similar issues, I am happy to communicate with you more as you go forward toward your decision. Are you approaching a decision about your surgery soon?
I will be watching for your posts and wishing you the best.

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Gail, thank you. If I don't have the surgery the bladder may move further down and muscles in bowel will become worse. I don't have a choice. Wish I did. My concern for you if you decide to have surgery please be careful. You don't want to wind up like the AA patients. Did you have spine surgery?

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@kimspr3

Gail, thank you. If I don't have the surgery the bladder may move further down and muscles in bowel will become worse. I don't have a choice. Wish I did. My concern for you if you decide to have surgery please be careful. You don't want to wind up like the AA patients. Did you have spine surgery?

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Baxtersmom, I apologize sending you a wrong reply. I think I've been sending to wrong reply.s Not feeling well, having bad pain day.

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