Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@tanglefoot

Thanks Kelsey for your comments. I am very passionate about helping ladies with prolapse. I suffered silently for so long because this is such an embarrassing topic to talk about. After all, who wants to be the poster girl for prolapse? When I was conducting research on my prolapse bladder, I discovered that 1 out of 5 women will suffer from some type of prolapse either after birth or before or after menopause. That is because our pelvic floors are weak and the organs become two heavy and start sliding down the inside walls of our vagina in the case of prolapse bladder. Rectocele prolapse is much more to the behind area of course and affects bowel movements and is very uncomfortable is one is constipated. So it is very important to keep those bowels moving and eat a good diet. Then there is uterus prolapse as well.
I believe that the doctors need to inform young mothers to conduct pelvic floor exercises by consulting with a physio therapist who will know exactly what each individual needs to do in order for these exercises to work for them and strengthen the pelvic floor that holds these organs.
The problem is, prolapse is known as the silent epidemic because no one wants to talk about it. So lets change that ladies and start to talk about it so we can make a difference in the lives of those who are suffering from prolapse. Don’t suffer alone, we are here to talk and trade ideas.

Blessings to all my prolapse sisters
Tanglefoot

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While I don't think prolapse is my own problem, there is so much good information in this discussion for me.. I am 76 year old woman and having vginal and vulva issues for the first time in my life. It is difficult to find any information for women of age about any of this, so I'm thankful to learn about anything pertaining to my latest problems. This all began with me when I developed a discharge that just wouldn't go away.. my doctor treated me for chlaydia, but it didn't help. so we treated it again, again no help. Then, to my horror, he tested me for all the STDs, and they all came back negative.. so at that point we pretty much gave up. Later, I had a tooth crown that needed work, so my dentist prescribed penicillin for that first.. Lo and behold, the discharge went away.. Now I've had 2 more bouts of the penicillin and each time it has cleared up the discharge for a few months. With the last bout of med tho, I developed my first case of yeast infection. I used an over the counter vaginal cream for that.. but still the tender burning vulva continued. My sister told me to try coconut oil, so I'm using that now and it does relieve the pain.. still I need to use it every day it seems.. Okay, I can do that! I never knew old age brought on so much pain and discomfort "down there"!! I would like to hear what other older women have to say about it..
and thank you all so very much for being here.. I feel like I've found more sisters!

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@hotfooted

While I don't think prolapse is my own problem, there is so much good information in this discussion for me.. I am 76 year old woman and having vginal and vulva issues for the first time in my life. It is difficult to find any information for women of age about any of this, so I'm thankful to learn about anything pertaining to my latest problems. This all began with me when I developed a discharge that just wouldn't go away.. my doctor treated me for chlaydia, but it didn't help. so we treated it again, again no help. Then, to my horror, he tested me for all the STDs, and they all came back negative.. so at that point we pretty much gave up. Later, I had a tooth crown that needed work, so my dentist prescribed penicillin for that first.. Lo and behold, the discharge went away.. Now I've had 2 more bouts of the penicillin and each time it has cleared up the discharge for a few months. With the last bout of med tho, I developed my first case of yeast infection. I used an over the counter vaginal cream for that.. but still the tender burning vulva continued. My sister told me to try coconut oil, so I'm using that now and it does relieve the pain.. still I need to use it every day it seems.. Okay, I can do that! I never knew old age brought on so much pain and discomfort "down there"!! I would like to hear what other older women have to say about it..
and thank you all so very much for being here.. I feel like I've found more sisters!

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Hi, @hotfooted – glad you are feeling like you have found more sisters and that the posts here in this discussion are useful, even though you've not had prolapse. Your post made me think of a discussion on Connect you might also be interested in checking out, on chlamydia https://connect.mayoclinic.org/discussion/problems-after-chlamydia.

Also, you might be interested in this Mayo Clinic information on that same condition https://www.mayoclinic.org/diseases-conditions/chlamydia/symptoms-causes/syc-20355349

@gardeningjunkie, I also had a hysterectomy at the time of prolapse repair, and I had rectal prolapse repair at the same time. I, too, would say the hysterectomy recovery was harder than I expected. Or, it might be accurate to say the recovery from the whole thing was harder than I expected. The surgeon and his nurse told me several times that this was "major surgery," but I don't think I really knew what that meant, as I'd never had a surgery in that category. I tried not to take the oxycodone in the hospital, as my husband thought I was so goofy on it, and this prolonged my hospital stay trying to control the pain. At home, I also found it was important to be really on top of the pain meds, and my husband would help me by setting alarms for me to take my next dose at first till I felt a little better and could manage this more on my own.

I'm now seven years out from my surgery, and I have noted a bit of falling back down of my bladder (I can feel it, since I got so attuned to the feelings in that area before my surgery). I went to a urogyn nurse practitioner in my surgeon's group, and it has fallen down partway, but not entirely like before. I'd had the situation where it was bulging out the bottom and I could only walk kind of like a cowboy prior to my surgery. Now it feels like some days I notice the bladder down further (than it was right after my surgery), and other days I give it no thought at all. Not sure if it actually varies, or if it's just my focus at the time. I also still wear a pantyliner every day, cause I think it helps me psychologically after dealing with the leakage I had before surgery, and every so often I leak just a tiny bit.

@gardeningjunkie – how far out are you from your surgery? Sounds like you are symptom-free now?

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@hotfooted,
I am glad you find the information helpful and I agree that it has been difficult to find information. When I was trying to decide what to do about my bladder prolapse a couple of years ago, I felt very helpless at first because the gynecologist kept sending me to the urologist and vice versa (back and forth). Once I got in to see the urogynecologist I felt a sense of relief when I realized that what I was going through was quite common. With regard to women who are post menopause, there are some things that I was told by the urogynecologist after my surgery. He told me to use Estrace cream at least 3 times per week and to keep my Rx filled. It is a tube and you just use a small bit in the applicator and insert it 3 times a week. My doctor said it will keep the tissue "young" . When I went in for my check up one year post surgery, he said he could tell I was using it and that I should keep using it forever. I told him it was sort of a chore and he said it would keep things from becoming itchy and dry and irritated because as you age, the tissue becomes dry and less elastic so it is prone to irritation. So I use the cream religiously as instructed and I do notice that if I forget about it more than twice, I do feel a little dry and less comfortable.

The last time I was in to see this same doctor he tried to sell me on a laser treatment "down there". He had invested in the same general equipment as the dermatologists who do laser treatments on the face have. He said it costs something like $3500 for the first treatment and then a little less for the second and third and he recommended at least 3 treatments. He said this would keep me from having to use the cream. I laughed and told him that if I were going to spend that kind of money on laser treatments I would do it on my face where more people could see it. But apparently you can now get a photo-facial "down there". I guess there is demand for this but I don't think I will be a customer unless I win the lottery and even then, I am not so sure. But there is definitely starting to be a lot more interest in treatment of vaginal discomfort in post menopausal women. There must be or he would certainly not have invested in that big expensive machine. He now sells packages (like packages of 3 or 5 treatments and you get a volume discount). This particular doctor is in a high end area of town and his office is always packed so "we" are not alone in our issues for sure.

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It's been 3 years since mesh surgery and urethra lift appliance. No bladder issues, no leakage even with a hard sneeze. No pad. Like you after hysterectomy I was surprised by the pain. I had natural childbirth so I figured I could handle pain, yet the difference between a few hours of pain and even the incredible pain of the delivery while the baby is in the birth canal happens is not the same as 24/7 misery recovering from hysterectomy. The hysterectomy pain goes on and on. I had medicare and spent only one night in the hospital. While in the hospital they put pain med into the IV and I think it is better stuff. A
After hysterectomy with bladder and colon lift it was dramatically improved, but knew it still wasn't like it was before prolapse and told it was swelling. It never right, felt like you described and could see something was lower than it should be. Not below the vulva area like previously, but wrong. I did my homework this time and saw a specialty surgeon and was told I should wait at least 6 months or a year before next surgery. As mentioned I have no more prolapse issues. Remember my warning- see a specialist in prolapse repair.

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@hotfooted

While I don't think prolapse is my own problem, there is so much good information in this discussion for me.. I am 76 year old woman and having vginal and vulva issues for the first time in my life. It is difficult to find any information for women of age about any of this, so I'm thankful to learn about anything pertaining to my latest problems. This all began with me when I developed a discharge that just wouldn't go away.. my doctor treated me for chlaydia, but it didn't help. so we treated it again, again no help. Then, to my horror, he tested me for all the STDs, and they all came back negative.. so at that point we pretty much gave up. Later, I had a tooth crown that needed work, so my dentist prescribed penicillin for that first.. Lo and behold, the discharge went away.. Now I've had 2 more bouts of the penicillin and each time it has cleared up the discharge for a few months. With the last bout of med tho, I developed my first case of yeast infection. I used an over the counter vaginal cream for that.. but still the tender burning vulva continued. My sister told me to try coconut oil, so I'm using that now and it does relieve the pain.. still I need to use it every day it seems.. Okay, I can do that! I never knew old age brought on so much pain and discomfort "down there"!! I would like to hear what other older women have to say about it..
and thank you all so very much for being here.. I feel like I've found more sisters!

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I am free of chronic yeast infections affecting my internal vulvae tissue. I have used anti yeast pill , like Diflucan on and off for years if I had the vaginal yeast issues with discharge. I am talking about a different type of yeast infection. It lives inside the vulvae tissues. No discharge, just burning. I never though of diet until I saw a different OB/Gyn doctor who said the key to killing yeast is starving it. Yeast needs sugar to live. I resisted doing this for a year. Then I came across an old book at a library sale by Dr. William Crook, "The Yeast Connection". Simple and straight forward and not complicated like other anti-yeast anti-inflammation diets. I followed his 2 month yeast detox diet and have been so successful I will follow it for life. Going on 5 months now. After the 2 month kill off it is less restrictive, but still no processed sugar or gluten for life. Also limited gluten free carbs and limited foods containing natural sugar like fruit. The 2 month detox is brutal. Zero carbs and zero sugar both processed and in foods like fruit. After 6 weeks the chronic swollen, red and burning vulvae became normal tissue again. Yes, lots of meat, fish, poultry and vegetables
.
Amazing results after decades of issues. I would tell myself while depriving myself of food, "When will you learn it's going to make you burn"?

No money for drug companies to market a deprivation diet. Plus I kid you not, you will need will power. I never went on a food restriction diet in my life as I never had a weight problem and was surprise how hard it was. Even with a full stomach of healthy foods you crave the sugars and carbs.

I do believe one has to be miserable to have the will power to experiment with diet change

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I finally decided to do it–april 2nd, having what they call vaginectomy bcause my prolapse is of the vaginal vault. dr. said it is the simplest one to do. i'm still scared. afraid I will be worse. please anyone who had vaginal vault prolapse repair reach out to me. thanks. ggm

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Dear ggm43, I feel for you! I had prolapse surgery (Birch procedure), pelvic floor redone, and a full hysterectomy and did fine! The pain was not bad, and the hardest part of recovery was being bored while waiting to heal! 25 years later my bladder has fallen again, but only because I lifted things way to heavy for years! The limit for lifting was supposed to be 20 pounds. I also would suggest learning some relaxing techniques to help you deal with the anxiety and you will feel so much better! I’ll be praying for you as you go through this! Hope this helps!

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dear corabells,
thank, thank you, thank you! i'm so scared as I fear the worst.it is the aftermath that really concerns me . since u did so well, I will keep that in my thoughts. ggm

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@ggm43

dear corabells,
thank, thank you, thank you! i'm so scared as I fear the worst.it is the aftermath that really concerns me . since u did so well, I will keep that in my thoughts. ggm

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Hi ggm43….I wish you the best of luck and health thru this time…I had prolapse repair surgery done 2 yrs. ago I am glad I had it I no longer feel as if my insides are going to fall out with each step I take however please ask your dr. about nerve damage or interruption with this surgery (mine was bladder and uteral lift done with stiches no mesh) and was left with pundeal nerve interruption…the hardest part was finding a dr. who understood this was a nerve issue I did go to a uro gyn for the surgery and 8 visits after the surgery he still didn't know what was wrong with me….he kept saying it was interstichal cycstis (sorry about the spelling) and it was not I went to another uro gyn out of my state and was correctly diogonest I would recommend the surgery just ask the right question good luck and I will be praying for you

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@pizon

Hi ggm43….I wish you the best of luck and health thru this time…I had prolapse repair surgery done 2 yrs. ago I am glad I had it I no longer feel as if my insides are going to fall out with each step I take however please ask your dr. about nerve damage or interruption with this surgery (mine was bladder and uteral lift done with stiches no mesh) and was left with pundeal nerve interruption…the hardest part was finding a dr. who understood this was a nerve issue I did go to a uro gyn for the surgery and 8 visits after the surgery he still didn't know what was wrong with me….he kept saying it was interstichal cycstis (sorry about the spelling) and it was not I went to another uro gyn out of my state and was correctly diogonest I would recommend the surgery just ask the right question good luck and I will be praying for you

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thank u pizon but now there is something else to be concerned about. what is pundeal nerve interruption and how do you treat it?should it deter me. thanks for your prayers. ggm

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@ggm43

thank u pizon but now there is something else to be concerned about. what is pundeal nerve interruption and how do you treat it?should it deter me. thanks for your prayers. ggm

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Good morning….I would just talk with your Dr. about the risk of nerve damage…..as with all surgeries it can be a side effect however in my case I had multiple ovary surgeries , 2 very large children and now the bladder and utrural repair…I would have the surgery again I no longer feel like my insides are going to fall out when I walk….if your prolapse is keeping you from enjoying your life then have the surgery god bless and keep me posted praying for a quick recovery

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@pizon

Good morning….I would just talk with your Dr. about the risk of nerve damage…..as with all surgeries it can be a side effect however in my case I had multiple ovary surgeries , 2 very large children and now the bladder and utrural repair…I would have the surgery again I no longer feel like my insides are going to fall out when I walk….if your prolapse is keeping you from enjoying your life then have the surgery god bless and keep me posted praying for a quick recovery

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dear @pizon
thank u again for responding. I will talk to dr. this Monday and the following week off to the race! I have been suffering with this for 5 years so I need to do something. just a very anxious,fearful person. I will keep u posted. ggm

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