Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@ggm43

Dear @baxtersmom, Thanks so much for an intelligent and compassionate reply. I did go into the office yesterday but I was in such a state of anxiety, I'm not sure what the nurses (who I saw not the dr) said but that the bleeding could be considered normal for a couple of more weeks, which is not what I read. It's not as supposed to be, getting browner and lighter, but i'm going to try to hang in until tomorrow when I will call and ask if I can just speak to dr. for a few minutes. I would feel better if he would clue me in. the nurses were wonderful but my fear is excessive. I value your advice and will go on from there. must deal with the fears that I think they might have knicked something or something went wrong. in that case only the dr. will be able to give me comfort. I will hang in and thank you again for your concern. ggm

Jump to this post

@ggm43 I agree with you on wanting to consult directly. At one point my first line of communication was to a nurse who I think was basically lazy. Rather than check to get the correct answer she often answered off the top of her head and I did not trust her answers. Now that she is gone I know I was correct.
JK

Liked by Parus

REPLY
@helenr

Go to another doctor. Trust your gut instinct. Your health is far more important than hurting your doctor’s feelings.

Jump to this post

I AGREE

REPLY
@ggm43

Dear @baxtersmom, Thanks so much for an intelligent and compassionate reply. I did go into the office yesterday but I was in such a state of anxiety, I'm not sure what the nurses (who I saw not the dr) said but that the bleeding could be considered normal for a couple of more weeks, which is not what I read. It's not as supposed to be, getting browner and lighter, but i'm going to try to hang in until tomorrow when I will call and ask if I can just speak to dr. for a few minutes. I would feel better if he would clue me in. the nurses were wonderful but my fear is excessive. I value your advice and will go on from there. must deal with the fears that I think they might have knicked something or something went wrong. in that case only the dr. will be able to give me comfort. I will hang in and thank you again for your concern. ggm

Jump to this post

@ggm43, the fear related to the bleeding you are experiencing sounds very hard. You are doing the right thing going back to your doctor and support staff.

I also wanted to bring into this conversation @tobiw, who has previously mentioned colpocleisis surgery and may have some further information on the recovery process from this surgery and the blood you've been seeing in the bowl.

REPLY
@baxtersmom

@hotfooted,
I am glad you find the information helpful and I agree that it has been difficult to find information. When I was trying to decide what to do about my bladder prolapse a couple of years ago, I felt very helpless at first because the gynecologist kept sending me to the urologist and vice versa (back and forth). Once I got in to see the urogynecologist I felt a sense of relief when I realized that what I was going through was quite common. With regard to women who are post menopause, there are some things that I was told by the urogynecologist after my surgery. He told me to use Estrace cream at least 3 times per week and to keep my Rx filled. It is a tube and you just use a small bit in the applicator and insert it 3 times a week. My doctor said it will keep the tissue "young" . When I went in for my check up one year post surgery, he said he could tell I was using it and that I should keep using it forever. I told him it was sort of a chore and he said it would keep things from becoming itchy and dry and irritated because as you age, the tissue becomes dry and less elastic so it is prone to irritation. So I use the cream religiously as instructed and I do notice that if I forget about it more than twice, I do feel a little dry and less comfortable.

The last time I was in to see this same doctor he tried to sell me on a laser treatment "down there". He had invested in the same general equipment as the dermatologists who do laser treatments on the face have. He said it costs something like $3500 for the first treatment and then a little less for the second and third and he recommended at least 3 treatments. He said this would keep me from having to use the cream. I laughed and told him that if I were going to spend that kind of money on laser treatments I would do it on my face where more people could see it. But apparently you can now get a photo-facial "down there". I guess there is demand for this but I don't think I will be a customer unless I win the lottery and even then, I am not so sure. But there is definitely starting to be a lot more interest in treatment of vaginal discomfort in post menopausal women. There must be or he would certainly not have invested in that big expensive machine. He now sells packages (like packages of 3 or 5 treatments and you get a volume discount). This particular doctor is in a high end area of town and his office is always packed so "we" are not alone in our issues for sure.

Jump to this post

After reading about your experience with this malady, I will be talking with my doctor about using Estrace, too.. I am only now beginning to figure out how to use Connect and get around on it.. so it's been a while since reading your response the first time. I used an over the counter moisturizer for a week or two.. it did burn me some, but when the burning stopped I felt alright for a few hours.. I was able to stop using that and presently only spray with water when I shower.. so far, so good… Thank you so much for posting your own experience..

REPLY
@ggm43

Gail, I have been scheduled for surgery for April for vaginal vault prolapse and the procedure would be vaginal, sewing up the vagina. I am going to cancel because since I have an anxiety disorder as well, I can't bring myself to do it. what kind of surgery did you have and how long was the recovery? Did u have any complications? ggm

Jump to this post

I did it! I had the surgery and pain was not the problem. I am frightened of bleeding. I was ok until the 6th day when I poured bowls full of blood when I had bowel movements. this went on for 2 days and I thought I was dying. I saw the nurse and she tried to reassure me everything was alright. it settled down to a yellowsh brown discharge. It will be 6 weeks this Monday and I have noticed a slight staining. I am again getting panicky. of course the office is closed and I don't want to call the emergency # because it is not really an emergency. but I just don't understand why there would be some light blood. does anyone know if it accompanies the dissolving of stiches at 6 weeks? would appreciate any answers. thanks. ggm

REPLY
@ggm43

I did it! I had the surgery and pain was not the problem. I am frightened of bleeding. I was ok until the 6th day when I poured bowls full of blood when I had bowel movements. this went on for 2 days and I thought I was dying. I saw the nurse and she tried to reassure me everything was alright. it settled down to a yellowsh brown discharge. It will be 6 weeks this Monday and I have noticed a slight staining. I am again getting panicky. of course the office is closed and I don't want to call the emergency # because it is not really an emergency. but I just don't understand why there would be some light blood. does anyone know if it accompanies the dissolving of stiches at 6 weeks? would appreciate any answers. thanks. ggm

Jump to this post

I only had a bladder tie up with the "new mesh" and the sling to lift the urethra. Your vaginal closing surgery is a different procedure. My bleeding afterwards was unremarkable. Yet if I had that much bleeding I would be panicked also as I would assume something broke loose. If upsets me that with all that bleeding you only got to see a nurse. Now 6 weeks later you should be healed and don't understand why the doctor isn't examining you for your residual discharge. Why not be assertive and go to the office and park yourself there until your doctor will take the time to examine you.

REPLY
@gardeningjunkie

I only had a bladder tie up with the "new mesh" and the sling to lift the urethra. Your vaginal closing surgery is a different procedure. My bleeding afterwards was unremarkable. Yet if I had that much bleeding I would be panicked also as I would assume something broke loose. If upsets me that with all that bleeding you only got to see a nurse. Now 6 weeks later you should be healed and don't understand why the doctor isn't examining you for your residual discharge. Why not be assertive and go to the office and park yourself there until your doctor will take the time to examine you.

Jump to this post

I should add that previously my uterus and ovaries were removed 6 months earlier because of prolapse. I did need to wear a pad for weeks, not a heavy discharge but still a pad was needed. I did have considerable pain for 3 weeks afterwards and then still for months had pain issues. I needed the follow up bladder prolapse surgery because my hysterectomy was preformed by a "baby doctor" not a specialist who only worked on prolapse. He removed the uterus but didn't recognize I needed bladder repair also. Big mistake on my part. This is a reminder to to those of you considering prolapse repair. Do not go to your OB/GYN doctor. Search for a prolapse specialist!!! New and great techniques and this is all these surgeons do and they are more successful. I am glad I did my homework this time. Still I had to drive 2 1/2 to see for specialist, yet so worth it.

REPLY
@gardeningjunkie

I should add that previously my uterus and ovaries were removed 6 months earlier because of prolapse. I did need to wear a pad for weeks, not a heavy discharge but still a pad was needed. I did have considerable pain for 3 weeks afterwards and then still for months had pain issues. I needed the follow up bladder prolapse surgery because my hysterectomy was preformed by a "baby doctor" not a specialist who only worked on prolapse. He removed the uterus but didn't recognize I needed bladder repair also. Big mistake on my part. This is a reminder to to those of you considering prolapse repair. Do not go to your OB/GYN doctor. Search for a prolapse specialist!!! New and great techniques and this is all these surgeons do and they are more successful. I am glad I did my homework this time. Still I had to drive 2 1/2 to see for specialist, yet so worth it.

Jump to this post

Thank you for sharing this information. Much appreciated.

REPLY
@asegura

Thank you for sharing this information. Much appreciated.

Jump to this post

Hi, @asegura – have you also experienced bladder prolapse?

REPLY
@lisalucier

Hi, @asegura – have you also experienced bladder prolapse?

Jump to this post

No I have not yet but feel well informed in case I need it in the future.

REPLY
@tanglefoot

Thank you for posting my discussion here to help other ladies with prolapse. I have not had any surgery and that is because I don’t want surgery for prolapse. I am 65 and cannot wear a pessary either. There is so much more we can try to do for ourselves to avoid surgery. My only problem was my prolapse was starting to drop down further towards the opening of the vagina area. I can go to the bathroom fine, no problems. I found out that walking, good posture and pelvic floor exercises can help a lot to control and manage a prolapse. I am a stage 3 prolapse bladder and I am surviving with a prolapse bladder without surgery for the last ten years. I learned that you cannot lift heavy things, you must keep your urine and bowels moving well by eating the right foods. Avoid coughing if you can, it pushes the prolapse out, just like lifting does or pushing if you are constipated pushed the prolapse out too. I am wearing a support for my prolapse that is very comfy and stops my prolapse from coming out. Hope others can find ways to survive without surgery if possible.

Tanglefoot

Jump to this post

Dear Tanglefoot, can you share what kind of support you wear for your prolapse. Where can we buy it? Will appreciate it! Thanks

REPLY
@upartist

Hello,
I am new this discussion, and I wanted to see what people were saying about prolapse. I personally have been through extreme things with this issue. Because of the extent of my individual situation, I did have an extensive reconstruction of my pelvic floor done by a very experienced surgeon. My advanced global prolapse was a result of damage from oversized babies and a forceps delivery when I was younger. As each woman’s situation is very very unique to their lives, it is so important to consider the impact the prolapse is causing, the woman’s age and general health with the anticipated recovery time, the preparedness of the clinicians providing services and wisdom of the plan specific to that woman, and the importance of attempting all options before the surgical decision is made. I have had a good outcome, but it took great work to get here in combination with guidance and ongoing targeted exercise. This is in fact my new normal, but a good one. My prayers and best wishes to any woman who is considering any kind/degree of pelvic floor surgery. Go in prepared and take the recovery seriously. Try all options of treatment first. There are many knowledgable clinicians out there to guide you.

Jump to this post

Dear @upartist, can you share who was the doctor who did your prolapse bladder surgery. Did you use mesh in the surgery?It will be much appreciate it. Thanks

REPLY
@ggm43

I did it! I had the surgery and pain was not the problem. I am frightened of bleeding. I was ok until the 6th day when I poured bowls full of blood when I had bowel movements. this went on for 2 days and I thought I was dying. I saw the nurse and she tried to reassure me everything was alright. it settled down to a yellowsh brown discharge. It will be 6 weeks this Monday and I have noticed a slight staining. I am again getting panicky. of course the office is closed and I don't want to call the emergency # because it is not really an emergency. but I just don't understand why there would be some light blood. does anyone know if it accompanies the dissolving of stiches at 6 weeks? would appreciate any answers. thanks. ggm

Jump to this post

@ggm43 – just wanted to check in with you and see how your recovery is going? Are you still having some light blood?

REPLY
Please login or register to post a reply.