Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@kimspr3

He is going to lower the does dose back to where is was. BUT his is practice is multiplying seeing him from other states so, not sure when he can see me!!! When you start to loose that something that he once had including being in a rush now. Staff over worked. He called, but I did STUPID thing, I told his nurse I have it PTSD so he keeps saying it's stress. I told my dr. I want an MRI maybe something happened to the fusion? He told me to ask my primary care, WHAT? Does he know something I don't know? He's changed. I will not have the prolapse surgery too scared. My husband is Passive Aggressive. for those who never heard of please read about it. Some cheat he does not but I wouldn't care. Has the damaged from the large increased does already begun? Patients with AA please be careful if scar tissue removal mentioned, it made me much worse. Dr. Tennant told me NOT to do it, With the pump majority of the time did not oral Hydro. Now I take the pills with the pump hardly works. told him pills don't wk. anymore may I have a different pills. Ignored. It maybe he rather not see me anymore. Hey, your profession did it to me!. I thought that. I have never abused my hydromorphone there have been days I didn't use at all because of the pain pump. I took my husband off of Medical Power Attorney. I texted him how afraid I am of the AA. He only respond to, We need treats for the cats. I have ruined my life marrying him. I hate that I need him. Patient Portal, asking P.C. do I need a neurologist, does she know the side effects of 100 MCG, Clonidine, how does the 2 other medications work with them? Hydromorphone 15.0mg/ml Bupivacaine 15.0 mg/ml My hair is falling out so fast. I have no idea where to turn. I forgot, told him about tongue, ignored. Mentioning PTSD is usually used against us in some cases. Now have to stay mostly in bed. Clonidine makes it to walk properly. My husbands eyes se me but his brain doesn't compute it. He does say, I don't because I see you every day. Is anyone familiar with the drug combination I'm taking but in a pain pump, it takes a different route. Thank You all. Not 1 dr. is willing to see as soon as they ask why, "Doctor is not familiar with A.A." Tongue is same, gums also , Pharmacist suggested I take Benadryl. I will.

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Glad for the update and hope you can find a doctor who can give you answers because as you know something is very wrong. I realize your primary care doctor is probably not able to help sort out your complicated issues, but he can guide you in finding specialists, especially if he is in a major group of doctors that work for the same hospital. It seems you need a team of specialists working together. in the same group, for example we have 2 major groups in my area, Mercy and Cox which also have major hospitals with ER's. These doctors can link the information on their computers if in the same group If you see a doctor outside the group it takes time to get records transferred and they don't cooperate with each other.

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@gardeningjunkie

I have been given Clonidine 0.1MG to take when my blood pressure spikes. I hate hate hate this med. My IQ drops to the moron level. No short term memory- makes it hard to cook a basic meal or make a decision. I didn't know it helped with pain, but I wasn't in pain when I needed it. Surely there must be better choices for pain meds. Now my cardiologist has prescribed nitroglycerin if I spike because I hate Clonidine so much.

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You are confirming how I feel. My dose is much higher. If I have to make a call I'm a bit apprehensive, afraid I will not make sense. My dr. started me on a lower dose and said, you didn't have these problems before????? Are you in pain now? I know my pain has been the worst ever since he increased the dose. Has your doctor mentioned that is one of these effects, brain fog, added pain?

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@tanglefoot

Hello Restless 67

Please do not underestimate the pain of prolapse SURGERY. I have spoke with hundreds of women who have had that surgery. Some were in extreme pain afterwards, some had a relapse prolapse within a short length of time ( A YEAR OR TWO) others were fine. One size does not fit all and I am not interested in going through an operation that is not necessary for me or women like me.

I do have a normal sex life and when one has a prolapse bladder , it goes back up where it belongs as soon as you lay down in bed. No problem there. When I get up, I do not have a piece of cloth on. I have a very supportive prolapse support garment called the Hideaway. If you google Hideaway prolapse garment you can read about it and what the testimonials say from other ladies like me who are not having surgery. This Hideaway is not just a pad, it is supportive material inside a sling with adjustment elastic for your comfort. It stops the prolapse from coming out all day long and you cannot even remember you have it on it is so comfy.

Now as far as bleeding and dryness goes. I have none of that because I use natural Vitimin E gel capsuls and stick a pin in them, squeeze out the gel and apply it every night to inside of the vagina area all around the prolapse etc. It is a great natural mostiurizer for menopausal women as well and it has healing properties in Vtiimin E natural gel capuls. You can also apply coconut oil if you are allergic to Vitimin E.
I know someone who has a rectal prolapse and she is wearing the Hideaway support garment as well and she is fine. She puts the Vtiimin E gel on her rectocele and like you said she gently pushes it back in, puts on her support garment and she is good to go for the day. Not everyone wants surgery or needs surgery.

Of course if you are in pain, cannot go to the bathroom, have sexual issues, then you would probably have to have some sort of surgery. In the meantime those who are managing their prolapse without surgery are doing just fine. There is no messy sex as you say, it is quite natural and fine, as again, the prolapse goes back up inside when one lays on their back. So for those out there suffering silently, don’t be afraid. A prolapse is not life threatening, it is life altering and you have to learn what is best for you. Blessings to all the ladies who walk in my shoes.

TANGLEFOOT

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I had three way vaginal prolapse that caused constant urinary tract infections. I had the surgery done a year ago, and have had no pain and no longer have urinary tract infections. I do not need a prolapse garment, but need to make sure I urinate on a regular basis to eliminate an accident. A pad on occasion is used in the event of emergency. But not necessary on a regular basis. The surgery beats having a urinary tract infection every three months.

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@shirls1948

I had three way vaginal prolapse that caused constant urinary tract infections. I had the surgery done a year ago, and have had no pain and no longer have urinary tract infections. I do not need a prolapse garment, but need to make sure I urinate on a regular basis to eliminate an accident. A pad on occasion is used in the event of emergency. But not necessary on a regular basis. The surgery beats having a urinary tract infection every three months.

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Dear Shirls 1948,
Thank you for shearing your story. Can you tell us if you still have vaginal prolapse? And if it’s not a secret who was the doctor who did the successful surgery? Will be much appreciated.
Kind regards

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I am looking for any success stories from women who have had luck with any non surgical options for their prolapse issues

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@christiet

I am looking for any success stories from women who have had luck with any non surgical options for their prolapse issues

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Hi, @christiet – I moved your post here so that you could join in this larger discussion on prolapse and be where a variety of members might respond to your query.

I have had prolapse personally, and I never tried any undergarments to help with it. I did try a pessary, which I'm not in love with. The taking it in and out is kind of unpleasant, and I never fully got used to it. I finally had surgery when my prolapse got so bad I could not stand it anymore.

I think that @baxtersmom @shirls1948 @kimspr3 @sulli @gardeningjunkie may have some further input for you on nonsurgical options, like undergarments or other modalities, to manage prolapse.

Do you have prolapse, christiet? If so, have you tried any undergarments to help with it?

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I had new mesh in bladder prolapse surgery and also a sling to lift up the urethra.

Liked by Lisa Lucier

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I had bladder prolapse surgery in Oct. 2017 and have had no issues since then. I wish I had done it sooner. I had it done with mesh in a procedure called a sacrocolcopexy with the DaVinci robot. I think you can find my previous detailed posts in this forum as well documenting more about my experience. I live in Austin TX and my surgeon was Tomas Antonini who is a Urogynecologist. I believe he is wonderful. His office is literally packed all the time. Two years ago it was not quite as busy but prolapse is a very common problem that I had never heard of when I first realized I had it. One reason a lot of women have to have it redone is that they do not have the proper procedure. If you just get your ligaments repaired and do not have the mesh then it is more likely that your ligaments will tear again. My surgeon discussed both types of procedures but he told me that there was a high probability that a simple ligament repair would not hold given the extent of my prolapse (stage 4) and the condition of my ligaments.

With regard to UTI's, I have not had any since my surgery although I was not prone to them throughout my life. I did have a couple right before my surgery when the prolapse got really bad (UTI is common in women with prolapse) and these were the first I had in years. It got to the point where the prolapse was making it difficult to urinate and I kept having to go to the doctor to get a catheter. This is probably what caused the UTI's, at least that is what the doctor said.

I tried the pessary and it caused bleeding due to rubbing so I stopped wearing it. The research shows that most women who try the pessary are no longer using it within a few years later as it does not seem to agree with most women for various reasons. As far as other garments, if you have a very severe prolapse, the inability to urinate and the UTI's will still occur. I never tried anything other than the pessary but truly if you have a prolapse of any kind, find a doctor that is good even if you have to see several. I saw 4 (my gynecologist, a urologist, and 2 urogyecologists) before deciding who to have the surgery with. And I had a list of a couple more if I had not liked Dr. Antonini. Talk to some of their patients and see if they have had successful surgeries.

If you are interested in nonsurgical options try the website Whole Woman. Christine Kent is the person who runs the site and she has a lot of options for exercises and has written a number of books and has a lot of things posted about options and her philosophy. She is fairly anti surgery but I think if someone had a mild prolapse or was just completely against having surgery, Whole Woman might be a good resource.

Liked by Lisa Lucier

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My surgeon bladder prolapse surgery was Christian Quintero, MD FACOG with the Nevada School of Medicine in Las Vegas Nevada. A wonderful gentile and kind man. All he does is female pelvic and reconstructive surgery. It's been 4 years and no issues. I was especially concerned because I have severe Allergic Contact Dermatitis, a form of allergic eczema in which I must avoid specific contacts for life and feared rejection. I was assured the components were not on my Patch Tested list of allergens. I have had no allergic issues with the mesh or sling.
I used to have to go to the restroom at every store on a shopping trip and get up at least 3 times a night to urinate. Now on shopping trips I never to use a public bathroom. I still need to get up once a night to urinate but I do love my evening cup of decaf. My big mistake when I had my hysterectomy (due to prolapse) 5 years ago is that I went to a basic ob/gyn doctor in my local town. He removed the uterus ok and said he tied up the bladder. He was not a bladder specialist and it not only didn't work but I could still feel and see the dropped bladder which hung slightly below the vulva. It didn't feel comfortable, it's an odd sensation I would never get used to I still needed to urinate frequently. He did not put in the mesh or add a urethra sling. I did my homework and traveled to a highly regarded specialist. Seems like Gail did her homework initially; wish I hadn't assumed any ob/gyn doctor could do it.

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@shirls1948

I had three way vaginal prolapse that caused constant urinary tract infections. I had the surgery done a year ago, and have had no pain and no longer have urinary tract infections. I do not need a prolapse garment, but need to make sure I urinate on a regular basis to eliminate an accident. A pad on occasion is used in the event of emergency. But not necessary on a regular basis. The surgery beats having a urinary tract infection every three months.

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I agree the prolapse repair with mesh, even done vaginally is painful afterwards and it required an overnight hospital stay. I can handle strong pain pills like oxy without addiction; I needed pain meds for a week. The sling is an easier, outpatient procedure and it extends time between bathroom visits. In a just a few days I was off of pain meds. All that was 4 years ago and glad I don't have to live the rest of my life with a prolapsed bladder which is a handicap.

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@gardeningjunkie

I agree the prolapse repair with mesh, even done vaginally is painful afterwards and it required an overnight hospital stay. I can handle strong pain pills like oxy without addiction; I needed pain meds for a week. The sling is an easier, outpatient procedure and it extends time between bathroom visits. In a just a few days I was off of pain meds. All that was 4 years ago and glad I don't have to live the rest of my life with a prolapsed bladder which is a handicap.

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@gardenjunkie Isn't the sling only for stress incontinence? I do not believe it is effective for urge incontinence which is what I have. I did have Botox for it and it has helped during the day but I am still up very frequently during the night. I plan to have Botox again and I believe the doctor will do a bit more Botox at that time.
JK

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@contentandwell

@gardenjunkie Isn't the sling only for stress incontinence? I do not believe it is effective for urge incontinence which is what I have. I did have Botox for it and it has helped during the day but I am still up very frequently during the night. I plan to have Botox again and I believe the doctor will do a bit more Botox at that time.
JK

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JK,
I did not have incontinence prior to my prolapse surgery but sometimes a prolapse can mask incontinence. When your bladder drops down, it makes it more difficult to urinate due to simple gravity (the urine cannot flow upward and out as it would need to when the bladder drops). My doctor told me that after the prolapse surgery I might have incontinence and so he did a urodynamics test to see if I was likely a person who would have incontinence once my prolapse was addressed. It turned out that I was and so he made some adjustments during my surgery to address incontinence as well. I do not recall him making a distinction between urge and stress incontinence but maybe he would have if that had been what I was primarily there for.

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Evidently there are many reasons for bladder repair. I was never incontinent or needed to wear a pad. If I had a hard sneeze I could leak, yet if I knew it was coming I would bear down, squeeze and if I could, cross my legs. My prolapse was a dropped bladder, uterus and somewhat of the colon and as I mentioned it was visible, dramatic and it dropped out in one day. This is a real shocker washing in the shower and seeing this between your legs!!!!!!!!!!!!!!!
I remember for years after a check up doctors would mention mild prolapse but since I wasn't noticing any symptoms I never paid attention. After age 60 I noticed I needed to urinate more frequently I knew where every restroom was in the stores I shopped even before the dramatic prolapse.
After the mesh was placed to lift up the bladder (nicely tucked up inside again) I urinated less, but I believed I was still urinating more frequently than I did when I was younger. To determine if I need the lift sling for the urethra to be straight, not droop and allow the bladder to clear out I was given a home test for when I urinated. Over the toilet bowl a plastic bowl with a rim to support it was placed. After each urination I recorded the time and amounts. Many doctors put one in along with the mesh surgery, but at that time my doctor felt it would not be needed. Glad for the sling addition. As mentioned I still need to get up once a night to urinate, but don't need to use public restrooms when going out to restaurants or shopping.

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@shirls1948

I had three way vaginal prolapse that caused constant urinary tract infections. I had the surgery done a year ago, and have had no pain and no longer have urinary tract infections. I do not need a prolapse garment, but need to make sure I urinate on a regular basis to eliminate an accident. A pad on occasion is used in the event of emergency. But not necessary on a regular basis. The surgery beats having a urinary tract infection every three months.

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Hi, @shirls1948 – just wanted to clarify what you meant when you talked about 3-way vaginal prolapse? Did you have prolapse in your rectum, bladder, urethra, small bowel, uterus or vagina? I had surgery over 7 years back to correct bladder and rectal prolapse.

How was your surgical recovery?

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@gardeningjunkie

Evidently there are many reasons for bladder repair. I was never incontinent or needed to wear a pad. If I had a hard sneeze I could leak, yet if I knew it was coming I would bear down, squeeze and if I could, cross my legs. My prolapse was a dropped bladder, uterus and somewhat of the colon and as I mentioned it was visible, dramatic and it dropped out in one day. This is a real shocker washing in the shower and seeing this between your legs!!!!!!!!!!!!!!!
I remember for years after a check up doctors would mention mild prolapse but since I wasn't noticing any symptoms I never paid attention. After age 60 I noticed I needed to urinate more frequently I knew where every restroom was in the stores I shopped even before the dramatic prolapse.
After the mesh was placed to lift up the bladder (nicely tucked up inside again) I urinated less, but I believed I was still urinating more frequently than I did when I was younger. To determine if I need the lift sling for the urethra to be straight, not droop and allow the bladder to clear out I was given a home test for when I urinated. Over the toilet bowl a plastic bowl with a rim to support it was placed. After each urination I recorded the time and amounts. Many doctors put one in along with the mesh surgery, but at that time my doctor felt it would not be needed. Glad for the sling addition. As mentioned I still need to get up once a night to urinate, but don't need to use public restrooms when going out to restaurants or shopping.

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I remember that measuring the urine with the plastic bowl, @gardeningjunkie. Fond memories … 🙂

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