@kimspr3
No I did not have spine surgery. I was told the only surgery they could do because of my curved spine is to put a rod all the way down the spine. I am 64 years old and I just did not want to do that since I had little assurance that it would make things better. I have had little trouble getting off the opiods and in fact, I was the one who asked the doctor about getting off. He has been my pain doctor for years and knows me well. I just retired from 30 years of college teaching and while I have taken norco for a long time, cutting down to a lot less has been really easy. This is particularly true now that I am retired because I don't worry about how changes in medication will affect me. That is why I was able to try the newer medication which is not an addiction risk. As I mentioned, it is called Belbuca and is working great on my nerve pain. Seems like few people have tried it but it has worked miracles for me. It is very new though.
You should ask your doctor about it.

I just wrote the name of your medication down, definatly will ask my Dr.. Thank You

@maisie2

Hi everyone. I am so glad to have found this group as I’m very confused. I don’t know whether I have a prolapse or not and my last OBGYN visit, she said everything was great. I didn’t notice this until I got really constipated and I can feel a bulge between my vagina and rectum. Although I have hemorrhoids from childbirth I don’t seem to have anything else back there unusual and nothing is coming out the vagina either. It’s just this bulge like the rectum is taking a turn down before deciding to come out…This is so hard to discuss…does anyone else feel this way. I am actually blushing writing this stuff. How do I know if it’s bladder? Vagina? Rectal? Do I speak with my OB? I am 56. Menapause for about 5 years on HRT. I also noticed that a very strong orgasm seems to make everything push down? What to do?

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It could have been OK one day and pushed out the next. A professional will have to determine what’s what but yes, an orgasm can tend to push it all down. I have had diagnosed prolapses (rectal and bladder that present inward toward the vagina) since I was 65. I’m 69 now and wear a pessary that I remove at least every 24 hours. Best wishes for an easy resolution.

@baxtersmom

@kimspr3
No I did not have spine surgery. I was told the only surgery they could do because of my curved spine is to put a rod all the way down the spine. I am 64 years old and I just did not want to do that since I had little assurance that it would make things better. I have had little trouble getting off the opiods and in fact, I was the one who asked the doctor about getting off. He has been my pain doctor for years and knows me well. I just retired from 30 years of college teaching and while I have taken norco for a long time, cutting down to a lot less has been really easy. This is particularly true now that I am retired because I don't worry about how changes in medication will affect me. That is why I was able to try the newer medication which is not an addiction risk. As I mentioned, it is called Belbuca and is working great on my nerve pain. Seems like few people have tried it but it has worked miracles for me. It is very new though.
You should ask your doctor about it.

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Hello Gail, I'm just wondering if anyone was given Clonidine [100.0 mcg/ml] either injection or pain pump. I am having side effects. Went to Mayo site listed a few side effects that I have. Calling my Allergist today if I can get someone to answer.

@kimspr3

Hello Gail, I'm just wondering if anyone was given Clonidine [100.0 mcg/ml] either injection or pain pump. I am having side effects. Went to Mayo site listed a few side effects that I have. Calling my Allergist today if I can get someone to answer.

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kimspr3,
I was not given clonidine that I know of. At least not to take on my own or any kind of pain pump. If I was given it in the hospital during or surrounding my surgery, then I don't know as I would not have been aware of it. Did you have surgery already? I would definitely call your allergist or the doctor that prescribed it for you in order to ask about side effects. I believe clonidine is given to adults for blood pressure/hypertension and sometimes for pain. In kids it is for hyperactivity sometimes as well but not so much in adults I don't think. I know about it because of blood pressure as my father had hypertension. It can make you tired and a bit dizzy at first but sometimes that goes away after a while. What are your side effects? Please don't be shy about letting your doctor know and getting your questions answered. But just wondering if you had your surgery yet?

@baxtersmom

kimspr3,
I was not given clonidine that I know of. At least not to take on my own or any kind of pain pump. If I was given it in the hospital during or surrounding my surgery, then I don't know as I would not have been aware of it. Did you have surgery already? I would definitely call your allergist or the doctor that prescribed it for you in order to ask about side effects. I believe clonidine is given to adults for blood pressure/hypertension and sometimes for pain. In kids it is for hyperactivity sometimes as well but not so much in adults I don't think. I know about it because of blood pressure as my father had hypertension. It can make you tired and a bit dizzy at first but sometimes that goes away after a while. What are your side effects? Please don't be shy about letting your doctor know and getting your questions answered. But just wondering if you had your surgery yet?

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I have been given Clonidine 0.1MG to take when my blood pressure spikes. I hate hate hate this med. My IQ drops to the moron level. No short term memory- makes it hard to cook a basic meal or make a decision. I didn't know it helped with pain, but I wasn't in pain when I needed it. Surely there must be better choices for pain meds. Now my cardiologist has prescribed nitroglycerin if I spike because I hate Clonidine so much.

@gardeningjunkie and @kimspr3,
Definitely there are better pain meds. I think it is off label when they do use it for that. Mainly a BP medicine. I take Verapamil for benign irregular heart beat and BP spikes. I have no side effects from it at all. Nothing like what you describe gardeningjunkie.

@baxtersmom

@gardeningjunkie and @kimspr3,
Definitely there are better pain meds. I think it is off label when they do use it for that. Mainly a BP medicine. I take Verapamil for benign irregular heart beat and BP spikes. I have no side effects from it at all. Nothing like what you describe gardeningjunkie.

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I'll research the Verapamil. I don't have an irregular heart beat, but have severe spikes even on high does of other blood pressure meds. I do believe I have figured out that stress or excitement causes my spikes as high as 215/115, just last week 204/104. I was watching Stranger Things a Nexflix horror series just before bed. I didn't notice my symptoms when watching it but when I lay down to sleep I know my blood pressure is up as I can hear it in both each and on my left side the vein or artery pulses hard in my neck, enough to visually see the beat. Sadly will resign myself to less exciting television or reading which is better than having a stroke. I also get a happy stress when entertaining house-guests which we have frequently. I like everything to be perfect and I know I expect too much from myself.

@baxtersmom

kimspr3,
I was not given clonidine that I know of. At least not to take on my own or any kind of pain pump. If I was given it in the hospital during or surrounding my surgery, then I don't know as I would not have been aware of it. Did you have surgery already? I would definitely call your allergist or the doctor that prescribed it for you in order to ask about side effects. I believe clonidine is given to adults for blood pressure/hypertension and sometimes for pain. In kids it is for hyperactivity sometimes as well but not so much in adults I don't think. I know about it because of blood pressure as my father had hypertension. It can make you tired and a bit dizzy at first but sometimes that goes away after a while. What are your side effects? Please don't be shy about letting your doctor know and getting your questions answered. But just wondering if you had your surgery yet?

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The Clondine has been added to my pain pump because of my spine disease chichis very painful. It's a high dose. Trying to get in-touch all day with my Allergist. Recordings. For me, side effects are tongue swollen, not to bad, gums also, effecting my legs, breathing, have an inhaler for that, lower spine pain, Waiting for my P.M. Dr. to call again. Hard to walk, feels like I'm pushing agains water. Waiting for return calls.

@kimspr3,
Are you by yourself? If you feel that you are having serious enough side effects to be dangerous, please get to an ER or call 911. You probably know yourself best but if you feel it is necessary, I would definitely not hesitate. We are keeping you in our thoughts.

@gardeningjunkie

I'll research the Verapamil. I don't have an irregular heart beat, but have severe spikes even on high does of other blood pressure meds. I do believe I have figured out that stress or excitement causes my spikes as high as 215/115, just last week 204/104. I was watching Stranger Things a Nexflix horror series just before bed. I didn't notice my symptoms when watching it but when I lay down to sleep I know my blood pressure is up as I can hear it in both each and on my left side the vein or artery pulses hard in my neck, enough to visually see the beat. Sadly will resign myself to less exciting television or reading which is better than having a stroke. I also get a happy stress when entertaining house-guests which we have frequently. I like everything to be perfect and I know I expect too much from myself.

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baxtersmom hi, a good sense of humor is a must in life. I love horror shows. Husband and I, 4 pets lay in bed watching Nexflix. Gets my mind off of my spine pain. Clonidine is injected into my Pain Pump. My home means a lot to me. It become hard to keep it the same as I used to. I understand what you mean. Have a good rest of the day.

@baxtersmom

@kimspr3,
Are you by yourself? If you feel that you are having serious enough side effects to be dangerous, please get to an ER or call 911. You probably know yourself best but if you feel it is necessary, I would definitely not hesitate. We are keeping you in our thoughts.

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Thank You so much. I stopped the extra dosage. It's like a remote called a BolusI put on pump to add an extra dose. Allowed 8 times a day. My case is so complexed going to the E.R. is stressful. My husband should be home soon. Waiting for my P.M. Dr. to call. Every one is soooo nice here it's a good feeling. Hope I can do the same.

@kimspr3

baxtersmom hi, a good sense of humor is a must in life. I love horror shows. Husband and I, 4 pets lay in bed watching Nexflix. Gets my mind off of my spine pain. Clonidine is injected into my Pain Pump. My home means a lot to me. It become hard to keep it the same as I used to. I understand what you mean. Have a good rest of the day.

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As Gail mentioned it sounds like you shouldn't be alone right now. You may not be thinking clearly because of your pain and meds and allergic reaction!!!!! The swelling of tongue and breathing issues worries me. I have a grandson with a p-nut allergy and his symptoms sound similar to what you are experiencing. Going to the ER is stressful and often the wait time is hours (I know I just was dealing with BP spite last Thursday and went to the ER at midnight). Often we have to tell the ER doc, who is not a specialist in our health issues what to do! Point is something is very wrong with way you are feeling and your tongue swelling and breathing issues is nothing to wait around all alone! Could you just call 911 and tell them of your concerns and have them check back in with you every 5 minutes until your husband is home if you don't want to call an ambulance. Have you ever been prescribed an epipen?

I agree! You are having an allergic reaction that is very serious. If the swelling goes from the tongue to the throat you won’t be able to breathe! Call 911!

@kimspr3

Thank You so much. I stopped the extra dosage. It's like a remote called a BolusI put on pump to add an extra dose. Allowed 8 times a day. My case is so complexed going to the E.R. is stressful. My husband should be home soon. Waiting for my P.M. Dr. to call. Every one is soooo nice here it's a good feeling. Hope I can do the same.

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He is going to lower the does dose back to where is was. BUT his is practice is multiplying seeing him from other states so, not sure when he can see me!!! When you start to loose that something that he once had including being in a rush now. Staff over worked. He called, but I did STUPID thing, I told his nurse I have it PTSD so he keeps saying it's stress. I told my dr. I want an MRI maybe something happened to the fusion? He told me to ask my primary care, WHAT? Does he know something I don't know? He's changed. I will not have the prolapse surgery too scared. My husband is Passive Aggressive. for those who never heard of please read about it. Some cheat he does not but I wouldn't care. Has the damaged from the large increased does already begun? Patients with AA please be careful if scar tissue removal mentioned, it made me much worse. Dr. Tennant told me NOT to do it, With the pump majority of the time did not oral Hydro. Now I take the pills with the pump hardly works. told him pills don't wk. anymore may I have a different pills. Ignored. It maybe he rather not see me anymore. Hey, your profession did it to me!. I thought that. I have never abused my hydromorphone there have been days I didn't use at all because of the pain pump. I took my husband off of Medical Power Attorney. I texted him how afraid I am of the AA. He only respond to, We need treats for the cats. I have ruined my life marrying him. I hate that I need him. Patient Portal, asking P.C. do I need a neurologist, does she know the side effects of 100 MCG, Clonidine, how does the 2 other medications work with them? Hydromorphone 15.0mg/ml Bupivacaine 15.0 mg/ml My hair is falling out so fast. I have no idea where to turn. I forgot, told him about tongue, ignored. Mentioning PTSD is usually used against us in some cases. Now have to stay mostly in bed. Clonidine makes it to walk properly. My husbands eyes se me but his brain doesn't compute it. He does say, I don't because I see you every day. Is anyone familiar with the drug combination I'm taking but in a pain pump, it takes a different route. Thank You all. Not 1 dr. is willing to see as soon as they ask why, "Doctor is not familiar with A.A." Tongue is same, gums also , Pharmacist suggested I take Benadryl. I will.