Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@sulli

I’m new just tonight but I would think that if there are products that would make a difference to our situations, it would be great to know that. I dont mind as long as it isn’t a pushy experience.

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Hello, @sulli – I wanted to add my welcome to Mayo Clinic Connect. Sounds understandable you are looking for what might make a difference in your situation. Wondering if you might share a little more background on yours? Do you have a bladder or other prolapse?

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@lisalucier

Hello, @sulli – I wanted to add my welcome to Mayo Clinic Connect. Sounds understandable you are looking for what might make a difference in your situation. Wondering if you might share a little more background on yours? Do you have a bladder or other prolapse?

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I have a vaginal vault prolapse. i'm age 76 and scheduled for surgery april 2, which i'm going to cancel due to severe anxiety disorder.
the procedure to be obliterative which is closing the vaginal canal. do u know of others who have had this and some who still live with the prolapse?? I do kegels everyday but I am stage 3/4. thanks for a reply. ggm

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@lisalucier

Hello, @sulli – I wanted to add my welcome to Mayo Clinic Connect. Sounds understandable you are looking for what might make a difference in your situation. Wondering if you might share a little more background on yours? Do you have a bladder or other prolapse?

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I am looking for anyone who has had previous prolapse surgery with complications of nerve damage where stitch was put!

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@pizon

Hello and thank you for asking I am 7 weeks out of the removal of the 2 eroded stiches I am better but I still feel as if I am sitting on a ball some days are worse then others I have just started back to stretching and kegals…..I wish I never had the surgery it has left me with nerve issues and pain all on the left side of my hip/pelvic area….I did 2 yrs of p/t which helped before the surgery I no longer have pelvic floor muscle spasms…the dr.'s say within 3 to 6 months I should be 80% pain free…I go to Dr. Marvel the nerve specialists in Dec so I guess time will tell …. I am just trying to live with it…all the nerve pain meds they give me make me very groggy the next day that I can't function and the inns. co will not approve lyrica so I am using herbs that take the edge off and cbd oil dose help me to sleep … so yes I am better but still not right I guess time will tell…if you can live with your prolapse I suggest not to have the surgery

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I also have nerve damage due to nerve entrapment, hard to live with, but no one wants problem patient with previous surgery!

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@barbnelson23

I also have nerve damage due to nerve entrapment, hard to live with, but no one wants problem patient with previous surgery!

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barbnelson. haven't had surgery yet. can u explain what u mean by nerve entrapment and what kind of surgery did u have?

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@barbnelson23

I also have nerve damage due to nerve entrapment, hard to live with, but no one wants problem patient with previous surgery!

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Not real sure what you mean by problem patient? We all are on this site for the same reason to try to help others with advise from our personal experience..i gave my personal honest experience as to what happened with my stiches….think you should rethink your reply if I read the question right "looking for anyone who has had previous prolapse surgery with complications of nerve damage where stich was put"..that was my exact same problem not sure I appreciate being called a problem patient .. sorry if I took it wrong but have never had that tone used to me on this site

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@pizon

Not real sure what you mean by problem patient? We all are on this site for the same reason to try to help others with advise from our personal experience..i gave my personal honest experience as to what happened with my stiches….think you should rethink your reply if I read the question right "looking for anyone who has had previous prolapse surgery with complications of nerve damage where stich was put"..that was my exact same problem not sure I appreciate being called a problem patient .. sorry if I took it wrong but have never had that tone used to me on this site

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@pizon
Sorry if you felt that your concerns were not being treated with the proper care. @barbnelson23 can certainly speak for herself but I took her message as her referring to herself and that her experience had been that doctors had treated her as a "problem patient" when she went to them with issues from a previous surgery that they did not perform. I have actually had this experience with an ankle surgery that did not go too well so maybe that is why I took it that way. I believe you are correct that most often on this site we all try our best to be respectful and compassionate. Hopefully this time it was just a miscommunication.

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@ggm43

barbnelson. haven't had surgery yet. can u explain what u mean by nerve entrapment and what kind of surgery did u have?

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please c my e-mail and let me know what happened with the nerve? ggm thanks

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@baxtersmom

Yes @gardeningjunkie, you and I must both have interesting backyards as I hauled what we figured out was over 18000 pounds of rocks in one weekend alone to build some pathways and seating in my backyard. Not to mention I had been doing things like this for years. I also have another hernia (hiatal hernia) which I have had dating back to at least the early 2000s (at least that is when it was first detected). My urogynecologist asked me if I had any other hernias since I had no children. Women who have experienced childbirth are more prone to prolapse so they say. He said either I had tissue that tended to be somewhat elastic or easily weakened, or I had overdone the heavy lifting over time or both. Early on, I was just wanting to know the cause of my prolapse as it seemed to happen overnight and I discovered it while showering..

And everyone, please, ask questions of your doctors. Do not treat them like they should not be questioned. They should welcome patients who want to understand their conditions.

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Wow, we do have a connection Gail, maybe we should have stayed indoors and knitted. Yet, doctor told me nuns who never had children had the same percentage of prolapse as the general population saying that age thins the support tissues in all women. I had 2 vaginal births. What I find interesting is that I have never heard of any other woman in my family had prolapse happen. My mother had 4 children and I know she didn't have this issue. It does seem like a shameful thing, I don't go around talking about it. Probably more have had prolapse and don't discuss it. I think we have all heard that lifting can cause a hernia, yet some children are born with hernia's.

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@tanglefoot

Thanks Kelsey for your comments. I am very passionate about helping ladies with prolapse. I suffered silently for so long because this is such an embarrassing topic to talk about. After all, who wants to be the poster girl for prolapse? When I was conducting research on my prolapse bladder, I discovered that 1 out of 5 women will suffer from some type of prolapse either after birth or before or after menopause. That is because our pelvic floors are weak and the organs become two heavy and start sliding down the inside walls of our vagina in the case of prolapse bladder. Rectocele prolapse is much more to the behind area of course and affects bowel movements and is very uncomfortable is one is constipated. So it is very important to keep those bowels moving and eat a good diet. Then there is uterus prolapse as well.
I believe that the doctors need to inform young mothers to conduct pelvic floor exercises by consulting with a physio therapist who will know exactly what each individual needs to do in order for these exercises to work for them and strengthen the pelvic floor that holds these organs.
The problem is, prolapse is known as the silent epidemic because no one wants to talk about it. So lets change that ladies and start to talk about it so we can make a difference in the lives of those who are suffering from prolapse. Don’t suffer alone, we are here to talk and trade ideas.

Blessings to all my prolapse sisters
Tanglefoot

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While I don't think prolapse is my own problem, there is so much good information in this discussion for me.. I am 76 year old woman and having vginal and vulva issues for the first time in my life. It is difficult to find any information for women of age about any of this, so I'm thankful to learn about anything pertaining to my latest problems. This all began with me when I developed a discharge that just wouldn't go away.. my doctor treated me for chlaydia, but it didn't help. so we treated it again, again no help. Then, to my horror, he tested me for all the STDs, and they all came back negative.. so at that point we pretty much gave up. Later, I had a tooth crown that needed work, so my dentist prescribed penicillin for that first.. Lo and behold, the discharge went away.. Now I've had 2 more bouts of the penicillin and each time it has cleared up the discharge for a few months. With the last bout of med tho, I developed my first case of yeast infection. I used an over the counter vaginal cream for that.. but still the tender burning vulva continued. My sister told me to try coconut oil, so I'm using that now and it does relieve the pain.. still I need to use it every day it seems.. Okay, I can do that! I never knew old age brought on so much pain and discomfort "down there"!! I would like to hear what other older women have to say about it..
and thank you all so very much for being here.. I feel like I've found more sisters!

Liked by Lisa Lucier

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@hotfooted

While I don't think prolapse is my own problem, there is so much good information in this discussion for me.. I am 76 year old woman and having vginal and vulva issues for the first time in my life. It is difficult to find any information for women of age about any of this, so I'm thankful to learn about anything pertaining to my latest problems. This all began with me when I developed a discharge that just wouldn't go away.. my doctor treated me for chlaydia, but it didn't help. so we treated it again, again no help. Then, to my horror, he tested me for all the STDs, and they all came back negative.. so at that point we pretty much gave up. Later, I had a tooth crown that needed work, so my dentist prescribed penicillin for that first.. Lo and behold, the discharge went away.. Now I've had 2 more bouts of the penicillin and each time it has cleared up the discharge for a few months. With the last bout of med tho, I developed my first case of yeast infection. I used an over the counter vaginal cream for that.. but still the tender burning vulva continued. My sister told me to try coconut oil, so I'm using that now and it does relieve the pain.. still I need to use it every day it seems.. Okay, I can do that! I never knew old age brought on so much pain and discomfort "down there"!! I would like to hear what other older women have to say about it..
and thank you all so very much for being here.. I feel like I've found more sisters!

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Hi, @hotfooted – glad you are feeling like you have found more sisters and that the posts here in this discussion are useful, even though you've not had prolapse. Your post made me think of a discussion on Connect you might also be interested in checking out, on chlamydia https://connect.mayoclinic.org/discussion/problems-after-chlamydia.

Also, you might be interested in this Mayo Clinic information on that same condition https://www.mayoclinic.org/diseases-conditions/chlamydia/symptoms-causes/syc-20355349

@gardeningjunkie, I also had a hysterectomy at the time of prolapse repair, and I had rectal prolapse repair at the same time. I, too, would say the hysterectomy recovery was harder than I expected. Or, it might be accurate to say the recovery from the whole thing was harder than I expected. The surgeon and his nurse told me several times that this was "major surgery," but I don't think I really knew what that meant, as I'd never had a surgery in that category. I tried not to take the oxycodone in the hospital, as my husband thought I was so goofy on it, and this prolonged my hospital stay trying to control the pain. At home, I also found it was important to be really on top of the pain meds, and my husband would help me by setting alarms for me to take my next dose at first till I felt a little better and could manage this more on my own.

I'm now seven years out from my surgery, and I have noted a bit of falling back down of my bladder (I can feel it, since I got so attuned to the feelings in that area before my surgery). I went to a urogyn nurse practitioner in my surgeon's group, and it has fallen down partway, but not entirely like before. I'd had the situation where it was bulging out the bottom and I could only walk kind of like a cowboy prior to my surgery. Now it feels like some days I notice the bladder down further (than it was right after my surgery), and other days I give it no thought at all. Not sure if it actually varies, or if it's just my focus at the time. I also still wear a pantyliner every day, cause I think it helps me psychologically after dealing with the leakage I had before surgery, and every so often I leak just a tiny bit.

@gardeningjunkie – how far out are you from your surgery? Sounds like you are symptom-free now?

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@hotfooted,
I am glad you find the information helpful and I agree that it has been difficult to find information. When I was trying to decide what to do about my bladder prolapse a couple of years ago, I felt very helpless at first because the gynecologist kept sending me to the urologist and vice versa (back and forth). Once I got in to see the urogynecologist I felt a sense of relief when I realized that what I was going through was quite common. With regard to women who are post menopause, there are some things that I was told by the urogynecologist after my surgery. He told me to use Estrace cream at least 3 times per week and to keep my Rx filled. It is a tube and you just use a small bit in the applicator and insert it 3 times a week. My doctor said it will keep the tissue "young" . When I went in for my check up one year post surgery, he said he could tell I was using it and that I should keep using it forever. I told him it was sort of a chore and he said it would keep things from becoming itchy and dry and irritated because as you age, the tissue becomes dry and less elastic so it is prone to irritation. So I use the cream religiously as instructed and I do notice that if I forget about it more than twice, I do feel a little dry and less comfortable.

The last time I was in to see this same doctor he tried to sell me on a laser treatment "down there". He had invested in the same general equipment as the dermatologists who do laser treatments on the face have. He said it costs something like $3500 for the first treatment and then a little less for the second and third and he recommended at least 3 treatments. He said this would keep me from having to use the cream. I laughed and told him that if I were going to spend that kind of money on laser treatments I would do it on my face where more people could see it. But apparently you can now get a photo-facial "down there". I guess there is demand for this but I don't think I will be a customer unless I win the lottery and even then, I am not so sure. But there is definitely starting to be a lot more interest in treatment of vaginal discomfort in post menopausal women. There must be or he would certainly not have invested in that big expensive machine. He now sells packages (like packages of 3 or 5 treatments and you get a volume discount). This particular doctor is in a high end area of town and his office is always packed so "we" are not alone in our issues for sure.

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It's been 3 years since mesh surgery and urethra lift appliance. No bladder issues, no leakage even with a hard sneeze. No pad. Like you after hysterectomy I was surprised by the pain. I had natural childbirth so I figured I could handle pain, yet the difference between a few hours of pain and even the incredible pain of the delivery while the baby is in the birth canal happens is not the same as 24/7 misery recovering from hysterectomy. The hysterectomy pain goes on and on. I had medicare and spent only one night in the hospital. While in the hospital they put pain med into the IV and I think it is better stuff. A
After hysterectomy with bladder and colon lift it was dramatically improved, but knew it still wasn't like it was before prolapse and told it was swelling. It never right, felt like you described and could see something was lower than it should be. Not below the vulva area like previously, but wrong. I did my homework this time and saw a specialty surgeon and was told I should wait at least 6 months or a year before next surgery. As mentioned I have no more prolapse issues. Remember my warning- see a specialist in prolapse repair.

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@hotfooted

While I don't think prolapse is my own problem, there is so much good information in this discussion for me.. I am 76 year old woman and having vginal and vulva issues for the first time in my life. It is difficult to find any information for women of age about any of this, so I'm thankful to learn about anything pertaining to my latest problems. This all began with me when I developed a discharge that just wouldn't go away.. my doctor treated me for chlaydia, but it didn't help. so we treated it again, again no help. Then, to my horror, he tested me for all the STDs, and they all came back negative.. so at that point we pretty much gave up. Later, I had a tooth crown that needed work, so my dentist prescribed penicillin for that first.. Lo and behold, the discharge went away.. Now I've had 2 more bouts of the penicillin and each time it has cleared up the discharge for a few months. With the last bout of med tho, I developed my first case of yeast infection. I used an over the counter vaginal cream for that.. but still the tender burning vulva continued. My sister told me to try coconut oil, so I'm using that now and it does relieve the pain.. still I need to use it every day it seems.. Okay, I can do that! I never knew old age brought on so much pain and discomfort "down there"!! I would like to hear what other older women have to say about it..
and thank you all so very much for being here.. I feel like I've found more sisters!

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I am free of chronic yeast infections affecting my internal vulvae tissue. I have used anti yeast pill , like Diflucan on and off for years if I had the vaginal yeast issues with discharge. I am talking about a different type of yeast infection. It lives inside the vulvae tissues. No discharge, just burning. I never though of diet until I saw a different OB/Gyn doctor who said the key to killing yeast is starving it. Yeast needs sugar to live. I resisted doing this for a year. Then I came across an old book at a library sale by Dr. William Crook, "The Yeast Connection". Simple and straight forward and not complicated like other anti-yeast anti-inflammation diets. I followed his 2 month yeast detox diet and have been so successful I will follow it for life. Going on 5 months now. After the 2 month kill off it is less restrictive, but still no processed sugar or gluten for life. Also limited gluten free carbs and limited foods containing natural sugar like fruit. The 2 month detox is brutal. Zero carbs and zero sugar both processed and in foods like fruit. After 6 weeks the chronic swollen, red and burning vulvae became normal tissue again. Yes, lots of meat, fish, poultry and vegetables
.
Amazing results after decades of issues. I would tell myself while depriving myself of food, "When will you learn it's going to make you burn"?

No money for drug companies to market a deprivation diet. Plus I kid you not, you will need will power. I never went on a food restriction diet in my life as I never had a weight problem and was surprise how hard it was. Even with a full stomach of healthy foods you crave the sugars and carbs.

I do believe one has to be miserable to have the will power to experiment with diet change

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I finally decided to do it–april 2nd, having what they call vaginectomy bcause my prolapse is of the vaginal vault. dr. said it is the simplest one to do. i'm still scared. afraid I will be worse. please anyone who had vaginal vault prolapse repair reach out to me. thanks. ggm

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