Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by SpineAZ, bob815c

@19lin

I agree regarding TEMS and spinal cord stimulator, early on the doctors told me if the TEMS does not work neither will the stimulator, but I have heard of those who feel the stimulator was helpful to them. I think much of pain control is an individual thing. There is a lot about the pain process and the brain that science does not know yet. 19lin

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I am so glad to have found this site. I have has Diabetic Neuropathy for
probably 12 years. I have the Chronic pain type mostly in my feet up to
my knees. I also have Arthritis in my very crooked back. So I have two
different types of problems and pain. My average pain level is 5 to 6 on
my good days and worse on my bad days.

I have tried all of the shots for my back, burning of the nerves and
Laminectomy on L2 thru L 4 to take pressure off of the nerves. The only
thing that gave me Back relief was Decompression. After a 15 weeks of
Decompression I actually went about a year with little or no back pain.
After the year it began to come back.

For my Neuropathy I have had Bilateral Endovenous Laser Ablation in both
legs, had Tarsal Tunnel surgery in both ankles and about every medicine
known for Neuropathy. Finally settled on Lyrica, did not help much but
pain was some better. My Doctor took me all the way up to 900 mg of
Lyrica but the pain was no better that at 300 mg, so that is where I have
remained.

About 7 years ago, I was told the Spinal Cord Stimulator should help because
it would block the pain messages from getting to my brain. It was
different, definitely a shocking experience. It never blocked the pain
signals, I got where I would use it when my pain was so bad that I needed
something. You men, if you have ever had Jock Itch, the rawness and
itching will drive you crazy. I used to put Alcohol on it at times just
to stop the itching, it burned like Hell but it was not itching. That is
kind of what the Stimulator did for me. Pain was still there but the pain
was vibrating.

My Stimulator battery needed to be replaced so my Doctor told me about a new
Stimulator on the market made by Nevro. It is higher frequency so you
never feel it and don’t have to adjust before you lay down. My Doctor
and the Nevro technicians all told me that the Nevro worked on patients that
did not get relief from the old style. I was excited and agreed to have
it replaced with the new one. The Technicians told me that most patients
will get relief before they have tried 3 or 4 programs. Each program
will have 8 different stages, strengths or something. I don’t really
understand. I must be the lucky one or odd one because I have gone thru
10 programs so far and nothing. I am still optimistic because there are
supposed to be a lot of programs. So maybe I will get lucky yet.

That on top of my Pain pump and my average pain level is 5 to 6. This is
getting too long so that will be another story.

REPLY

I too cannot take opiates for my pain and nothing else helps. I try to
exercise some each day but it is hard. I have gained a lot of weight and
can’t seem to get it off. I have a lot of clothes that don’t fit. Nothing
seems to fit but I refuse to lie in bed all day. Distraction helps and being
with people.

Lois

Liked by salena54

REPLY
@ladyjane85

To suebreen 54 – I have gone to to pain dr/anesthesiologists for over 20
years. Epidural shots of many locations have not worked on me.

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Epidurals, trigger point injections, cortisone injections. None of them
work for me. I don’t understand why.

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@lolomarie

I too cannot take opiates for my pain and nothing else helps. I try to
exercise some each day but it is hard. I have gained a lot of weight and
can’t seem to get it off. I have a lot of clothes that don’t fit. Nothing
seems to fit but I refuse to lie in bed all day. Distraction helps and being
with people.

Lois

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I hear you. I have had trouble with opiates on and off at different times
and different injuries. I have degenerative disc desease and have had
several different injuries and then hit by a pick up. After getting hit
was the second time on opiates. The first time it helped me heal and I
didn’t need it any more. I didn’t have any withdrawal at all or any
dependence nothing.
I find it takes several different treatments when your in pain or chronic
pain and different things help different people.
It depends on where your pain comes from. I go to a really go pain clinic
and I love my Dr and trust him.
I don’t know your age or weight history, but I use to be very athletic and
healthy and thin. I’m 55 and my cervical spine is my worst area of my disc
desease. I don’t move around very well. Weight is a big problem. I just
don’t want to have to buy new clothes a size higher. I’m just restricting
calories and eating healthy. You are at an advantage you move around.
Maybe you can encourage me to walk or something. I use to run and teach
aerobics. You may be one or more medicines that make you gain weight there
are a lot of them. I know I’ve lost some weight maybe 5 lbs. Now I’m on a
pain med and it helps to lose weight. Let me know your plan. Maybe you can
help me. I have a degree in nutrition and health and would be happy to help
you. If you have any questions ask Dr’s but innocent questions I would love
to help you with. Let me know. I need help to move my body

Liked by salena54

REPLY
@lolomarie

I too cannot take opiates for my pain and nothing else helps. I try to
exercise some each day but it is hard. I have gained a lot of weight and
can’t seem to get it off. I have a lot of clothes that don’t fit. Nothing
seems to fit but I refuse to lie in bed all day. Distraction helps and being
with people.

Lois

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It is hard to have constant high pain levels. Through the years with all
that is wrong with my back even after 5 surgeries I am a young 85, in looks
much younger, but I cannot do much. I use a cane when out, but a walker
where I am in an Independent facility because there are long corridors to
walk to get to the dining room, entertainment, etc. I knew I could not live
in my home anymore since I could not do housework or even cook a small
meal. I only do bed exercises, can take no meds – I react badly to nearly
50 tried, and even different epidural procedures of all types have not
worked. I do have socialization every night in our dining room, and try to
go to some outside interests – walking, standing and sitting are bad. I do
try meditation. Doctors have given up on me. I think too, that when you
look great, they do not believe your pain level is always as they see you
on a visit. My pain is one of over 25 years……but everyone will say it
is your age!

REPLY

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

Liked by salena54

REPLY
@ladyjane85

To suebreen 54 – I have gone to to pain dr/anesthesiologists for over 20
years. Epidural shots of many locations have not worked on me.

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Right before I was diagnosed with degenerative disc desease I went to a
chiropractor that I liked and Then in my early 20s I was diagnosed wi
degenerative disc desease and I went to physical therapy and chiropractor
back and for and then my cervical spine was to bad for chiropractic care.
I was in physical therapy and went to college and to work and my discs got
worse anyway. So my treatments changed. I use a lot of different things for
pain relief. I worked for 23 years in pain. You can get use to pain. You
probably have a high pain tolerance now. Study your desease or your
injuries and all the treatments and ask your Dr of all treatments
possible. Hope will help positivity knowing you can do something someday
even if it’s be part robot in the future because you have to have a sense
of humor and watch comics and funny movies good luck and keep writing on
let’s talk

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@ladyjane85

To suebreen 54 – I have gone to to pain dr/anesthesiologists for over 20
years. Epidural shots of many locations have not worked on me.

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What type pain do you have. Is it Diabetic peripheral neuropathy pain or
what?

REPLY

Fibromyalgia and osteoarthritis.

Lois

REPLY

I am so sorry for all your problems. My husband is a great help to me but
without him, I would have to move to an assisted living place. You are so
right. When you look good, which I try to most of the time, people don’t
realize how much pain you are in. People always say, “How are you?” but
do they really want to know? No, you are supposed to say “good” because
otherwise you are dubbed a complainer.

Liked by salena54

REPLY
@suebreen54

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

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Thank you. I will definitely go to the American Chronic Pain
Association’s web site.

Lois

REPLY
@suebreen54

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

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I checked Am Chronic Pain Assoc and found that I am a member, but they don’t send a newletter so I will have to get them too.

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REPLY
@suebreen54

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

Jump to this post

I think that’s great. You can get a lot from there site on the Internet

REPLY
@ladyjane85

To suebreen 54 – I have gone to to pain dr/anesthesiologists for over 20
years. Epidural shots of many locations have not worked on me.

Jump to this post

Likewise with me – nothing has worked through the years.

REPLY

Well, at least I know I’m not alone, unfortunately. Is there anything
that does help your pain?

Lois

REPLY
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