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leh09
@leh09

Posts: 41
Joined: Mar 23, 2016

Chronic pain - Let's talk

Posted by @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by bob815c, SpineAZ

REPLY

@suebreen54

I have been suffering a severe pain crises for three days I’m hoping I won’t have it tomorrow. Stress and other things maybe. I’m on fentynle patches and Tylenol 4 Meloxacam Effexor and. A new neurologic I missed my epidural appointment. I have a big bag of ice around my neck. It’s my cervical disc desease I wish I could sleep more. I sleep at night because of the trozaldol I’m on. It’s just good to have somewhere to go. When I feel better I would love to talk to Joe

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Sorry to hear that you are in a severe pain crisis @suebreen54. I wish we could do more to help, but know that we’re here to listen and commiserate!

Liked by salena54

@mlemieux

HI @leh09, I’ve been through a great deal of chronic pain most of my life. What would you like to talk about?

Regards,
Martin R. Lemieux

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@miemieux, I’ve had pain for five years and my prognosis is poor that I’ll ever be free of pain. I’ve had two fusions of my neck and still have arm, shoulder, and scapular pain. I’ve had numerous injections that help for a few hours, but not long term. I take 900mg of gabepentin and a total of 45 mg of oxycodone every day. I’ve tried so many different types of treatment such as ice, PT, TENS, nerve burns, epidural so, steroids, accupuncture, etched. I don’t know what else to do. I can’t seem to wean down any further on the oxy, 15 mg, 3xday is my rock bottom dose. I can’t seem to go lower than that. Any suggestions of how to lower my dose. Cutting them in half doesn’t work. Or is this an acceptable dose?

Pain flairs are the worst. I have several funny movies that I try to watch small pieces of. I cant hang in there for long, but when I do I get a few laughs which improves my attitude. Otherwise my attitude would be angry. And……anger makes pain worse!

Has anyone out there been diagnosed with Central Sensitization?

@leh09

Has anyone out there been diagnosed with Central Sensitization?

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No I have never heard of that what is it?

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Chronic pain is complex. I have chronic pain in cervical spine, shoulders and arms. Doc says no surgical fixes. MRI shows several promblems in those regions. Recently cut way back in bydracodone due to constipation. Senna stopped being effective. Went to gastroenterologist and was told dependence on laxatives will cause no harm. What i use now TENS, topicals and the most effective is the large size tiger balm patches. If you have not tried them i suggest you do. Best price found on puritans pride web page. Ibalso take an herbal laxative which works.

Thank you for the information. It may take me awhile to process it all. I have read about different studies in journals and what I understand is that there is not a lot known about how pain works. My original pain was called phantom pain which is difficult to get doctors to treat in the 1970’s, but it is more recognized today as valid pain. I also have sciatic nerve pain, but at first I though it was all phantom pain until I recognized the difference between the two. As I got older I gained more different kinds of pain, so now I appreciate pain medicine and I do not like the attempts to prevent us from getting it. 19lin

You are correct in saying there isn’t a lot known about chronic pain. I
currently suffer from sciatic pain. It is some of the most excruciating
pain I have ever experienced. Even the first pain specalist I was seeing
did not take me seriously. I now see a very competent pain specalist who
listens. A nerve block helped imensely. You have to be your own advocate
because no one else will. Good luck.

I agree with be your own advocate, a neurologist recommended muscle relaxant and it worked fairly well.

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Thanks, I had pain without relief for years when a neurologists I went to for an other issue reviewed my MRI and recommened a muscel relax

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Don’t know if there is a permanent group….there should be….so many of us suffer and each have ways of coping and meds to try.

This is my very first post ever, and first “group” message board I’ve ever joined so please bear with me if this is a bit longer than a typical post (unclear to the unwritten rules). Sorry, so I recently turned 40, have been on long term SSDI since ’07, and am 3 mos. post-op from my 13th spine surgery. Since ’04 it was about one a year, then from ’08 on occasionally 2X a year. I’m fused both anterior and posterior cervically from 3-T1, with a bunch of lami’s and disc’s at T7-9, but also fused front ant back from L3-S1. I’m exhausted researching alternative modes of relief, like has anyone tried the following: INTRATHECAL PAIN PUMP, (I’m on my 2nd spinal cord stimulator, for those considering, save your time, money, and the rise in your expectations), COLD LASER THERAPY, PLATELET (or Plasma) REPLACEMENT THERAPY? I dont mean to complain, because I know they’re are far more people out there in more pain than myself. I’m just looking for alternatives to see what might help, besides popping a pill every 6 hours, because I would really love to get back to work. My apologies if my soapbox was a bit on the big side.

@suebreen54

I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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I’ve tried an epidural for my neck problems, unfortunately it didn’t help, however I’ve known others who have benefitted a great deal from the procedure.

@19lin

I agree with be your own advocate, a neurologist recommended muscle relaxant and it worked fairly well.

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A muscle relaxer is in my drug mix. It helps a tiny bit.

Liked by bekie

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