Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by SpineAZ, bob815c

@seanbeck

This is my very first post ever, and first “group” message board I’ve ever joined so please bear with me if this is a bit longer than a typical post (unclear to the unwritten rules). Sorry, so I recently turned 40, have been on long term SSDI since ’07, and am 3 mos. post-op from my 13th spine surgery. Since ’04 it was about one a year, then from ’08 on occasionally 2X a year. I’m fused both anterior and posterior cervically from 3-T1, with a bunch of lami’s and disc’s at T7-9, but also fused front ant back from L3-S1. I’m exhausted researching alternative modes of relief, like has anyone tried the following: INTRATHECAL PAIN PUMP, (I’m on my 2nd spinal cord stimulator, for those considering, save your time, money, and the rise in your expectations), COLD LASER THERAPY, PLATELET (or Plasma) REPLACEMENT THERAPY? I dont mean to complain, because I know they’re are far more people out there in more pain than myself. I’m just looking for alternatives to see what might help, besides popping a pill every 6 hours, because I would really love to get back to work. My apologies if my soapbox was a bit on the big side.

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I would so recommend seeing a Pain Specialist at Mayo Clinic. They are on the cutting edge of alternatives. I know it might be expensive, but just go for a consult. Sometimes doctors will do courtesy phone consultations.

@seanbeck

This is my very first post ever, and first “group” message board I’ve ever joined so please bear with me if this is a bit longer than a typical post (unclear to the unwritten rules). Sorry, so I recently turned 40, have been on long term SSDI since ’07, and am 3 mos. post-op from my 13th spine surgery. Since ’04 it was about one a year, then from ’08 on occasionally 2X a year. I’m fused both anterior and posterior cervically from 3-T1, with a bunch of lami’s and disc’s at T7-9, but also fused front ant back from L3-S1. I’m exhausted researching alternative modes of relief, like has anyone tried the following: INTRATHECAL PAIN PUMP, (I’m on my 2nd spinal cord stimulator, for those considering, save your time, money, and the rise in your expectations), COLD LASER THERAPY, PLATELET (or Plasma) REPLACEMENT THERAPY? I dont mean to complain, because I know they’re are far more people out there in more pain than myself. I’m just looking for alternatives to see what might help, besides popping a pill every 6 hours, because I would really love to get back to work. My apologies if my soapbox was a bit on the big side.

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I did years ago for phantom pain and they used electric shock, which worked and got rid of the pain, but only for a few months. I did it a couple times again locally, but the side effects of the treatment were too strong and I decided to stop. If the effects lasted for a lot longer period I might have kept going. 19lin.

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@19lin

I agree with be your own advocate, a neurologist recommended muscle relaxant and it worked fairly well.

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I had been using a muscle relaxant due to cramps in my body, but until the doctor said to try them for the sciatic pain I never thought of it and it does help although it takes awhile before it works. I did go to the local ER once when my sciatic pain went on for days and the ER was less than helpful.

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@suebreen54

I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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I did try shots in the spine for awhile, but they did not help when I needed them so I stopped.

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@mrsg

I am with you!

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I, too, am getting fed up at present with the Constant pain which comes from no-where and then attacks a certain part of my body for a few weeks or so, and then moves onto another spot…………….such is the Fibromyalgia, ME and CFS…(I have had this for nearly 20 years and it is getting much worse, along with increased tremors)……..at present I have severe pain in L) shoulder radiating down into forearm, and nothing is relieving it. I also take Gabapentin, OxyContin, valium, osteo-panadol, Prozac, supplements of Magnesium, melatonin, a mixture of natural vitamins dissolved in my water bottle,, plus other meds for other conditions (husband says I own our local chemist)………….tonight I have resorted to taking an endone as well with my hot packs etc………………if anyone has any ideas re how to reduce the never ending pain that is destroying our lives, please let me know? In answer to the above lady who asks if her dosage of OxyContin is too much, and thinks she should try and reduce, I would say No Way……..we all know how unpleasant we get when in pain, so if this has been prescribed by your specialist, then you need it. (I know the feeling that others may think we are woosses, but they don’t know the pain)………………..thankyou

@seanbeck

This is my very first post ever, and first “group” message board I’ve ever joined so please bear with me if this is a bit longer than a typical post (unclear to the unwritten rules). Sorry, so I recently turned 40, have been on long term SSDI since ’07, and am 3 mos. post-op from my 13th spine surgery. Since ’04 it was about one a year, then from ’08 on occasionally 2X a year. I’m fused both anterior and posterior cervically from 3-T1, with a bunch of lami’s and disc’s at T7-9, but also fused front ant back from L3-S1. I’m exhausted researching alternative modes of relief, like has anyone tried the following: INTRATHECAL PAIN PUMP, (I’m on my 2nd spinal cord stimulator, for those considering, save your time, money, and the rise in your expectations), COLD LASER THERAPY, PLATELET (or Plasma) REPLACEMENT THERAPY? I dont mean to complain, because I know they’re are far more people out there in more pain than myself. I’m just looking for alternatives to see what might help, besides popping a pill every 6 hours, because I would really love to get back to work. My apologies if my soapbox was a bit on the big side.

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Hi @seanbeck. Welcome to Connect! We’re excited to have you. No soapboxes here… your post was fantastic. Thanks for joining in on the conversation!

I’ve had over 35 epidural and facet injections all to no avail, and I’m not
eligible to try nerve root blocks because of all the hardware. Thanks for
your response.

@seanbeck

This is my very first post ever, and first “group” message board I’ve ever joined so please bear with me if this is a bit longer than a typical post (unclear to the unwritten rules). Sorry, so I recently turned 40, have been on long term SSDI since ’07, and am 3 mos. post-op from my 13th spine surgery. Since ’04 it was about one a year, then from ’08 on occasionally 2X a year. I’m fused both anterior and posterior cervically from 3-T1, with a bunch of lami’s and disc’s at T7-9, but also fused front ant back from L3-S1. I’m exhausted researching alternative modes of relief, like has anyone tried the following: INTRATHECAL PAIN PUMP, (I’m on my 2nd spinal cord stimulator, for those considering, save your time, money, and the rise in your expectations), COLD LASER THERAPY, PLATELET (or Plasma) REPLACEMENT THERAPY? I dont mean to complain, because I know they’re are far more people out there in more pain than myself. I’m just looking for alternatives to see what might help, besides popping a pill every 6 hours, because I would really love to get back to work. My apologies if my soapbox was a bit on the big side.

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I know this is a difficult question to answer because each case is based on
the individual, but do you think they’d do anything differently than my
current Pain Mgmt. Dr. ?
I currently take 15mg MS Contin ER 1 2X a day, 5mg oxycontin IR 1 every 4
hours, and Gabapentin 800 mg 3X. Plus I’ve had over 35 epidural and facet
injections, and am unable to try the nerve root block shots because the
Doc’s cant get the needle to where it needs to be due to all the hardware
that takes up 80% of my spine.
I look forward to your response. Thanks

@suebreen54

I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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With epidurals, I think, it’s just luck, hopefully hitting the right area. I’ve had fusions and epidurals. Fusions made it worse and the epidurals did nothing (I guess that’s good–they could have done what the surgery did). I went to mayo and they are suggesting nervous spinal stimulator, which sounds like a good option.

@suebreen54

I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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I have had epidurals for years Not steadily They help with my
medacations for a while. This is what both pain clinics have for me I used
to go to one in Syracuse then I moved to Adirondacks and I’m very happy
with the one I’m in now. I am not very functional but my goal is less
pain and more function. I think maybe skill of the Dr doing the epidural
might be a factor. In Syracuse that is what he did epidurals. He did them
right in his office. The one I see now does everything he’s a very good Dr
he does it in hospital across the street. He’s great. I really like him
and trust him. I never had any problems.

I have had several spinals, but they were very painful and I was unsure how helpful they were, I needed them mostly for sciatic pain and I could not get in fast enough when the sciatic pain was bad. 19lin

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@19lin

I have had several spinals, but they were very painful and I was unsure how helpful they were, I needed them mostly for sciatic pain and I could not get in fast enough when the sciatic pain was bad. 19lin

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I wonder why they were painful. I have never had a painful epidural. Is a
spinal and a epidural the same thing I guess not. Were they really worth
it. You said you wanted them when in pain right. Did they work for a while.

@suebreen54

I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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The spinal did not help me enough to off set the pain of the shot. I did get shock treatment for phantom pain and it did stop the pain for awhile, but since I had to keep getting the ECT and it only lasted a few months to a year plus the side effects were pretty strong and I did not like them so I stopped taking the ECT. It was sort of experimental at Mayo’s, but I am glad I tried, I really think you have to try all the alternative methods you can to fight the pain. 19lin

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@19lin

I have had several spinals, but they were very painful and I was unsure how helpful they were, I needed them mostly for sciatic pain and I could not get in fast enough when the sciatic pain was bad. 19lin

Sent from Windows Mail

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The shot in the spine did hurt me, for some time one doctor gave his patients a sedative that sort of knocked you out for a few minutes while you get the injection so I tried it longer then. It was hard to say how much it helped since I was not able to get in for the injection at the same time as I was having the pain. It may have helped delay the pain more than I realized. The shots I got were for sciatic pain and my sciatic pain is intermittent. If I had it on a regular basis such as daily I do not think I would still be here as it is extremely painful to me. Then a neurologist I was seeing for another condition, reviewed my MRIs of my spine and said to use muscle relaxants, and I did and it helped. I know my back or spine is bad with bulging disks and other problems, but everyone I have talked to about back surgery has said that it can be risky as far as improving the pain so I have avoided it.

I have not tried a spine stimulator, but I did use a TEMs unit on my back and it did not help me that much. Still I think it is good to try everything you can to see what might help. 19lin

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Have you tried going to pain management. That’s were I go. That’s
probably why my epidurals don’t hurt. I love my Dr. I recommend seeing a
pain specialist in a pain clinic. Usually they are I’m totally drawing a
blank on what kind of Dr he is its on the tip of my tongue. Have ever
thought of going I saw a neurologists once he was rude and insulting and
didn’t make since to me. Do you need a new MRI? We have the right to not
live in pain. Although there will always be some pain. There are a lot
of organizations like the American Pain Association you can find on the
Internet it’s great. I recommend that too. What do you think. How long
have you been struggling with this?

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