Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by SpineAZ, bob815c

I am considering stem cell therapy for facet joint syndrome. May I ask what problems you were experiencing with your back? Glad ur better.

@suebreen54

I think having this forum to talk to each other helps. If we go to a pain clinic and sign their paperwork follow the rules take as directed they arent going to take your medicine away. You have a right to pain relief. There are many people who are working for people in pain. Most people know nothing about chronic pain until it happens to them. Go to Amrican chronic pain association you will find that there are people to support you in findind pain relief. They have other sites to go to.

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I have heard that some people smoke pot for pain. But if u go to a pain clinic like I do they pee test and we r not aloud to smoke ( in pa). Or we will be kicked out of the pain clinic!!!! I am willing to try anything for pain but will have to wait on the law to catch up to the needs of the people. Many people have moved to other states to get help for there children. Can’t say I blame them. When u have pain you will try anything! Sharon

We have to look to the people who understand our pain. People who are on
are side. They are there. I am not an addict. I have never been addicted to
anything except running eating healthy because they make you feel so good
you are at your bodies optimum. Now I can’t do a lot of moving. I was
getting injuries while healthy, while in physical therapy because I have
a degerative desease, that is hereditary. I used to drink socially. I grew
up in the 70s I grew up with a little drugs I never did anything alone or
to get wasted I just didn’t. When you grow up and have kids you hopefully
don’t have the genes for addiction and you don’t do those things.
Everything I have read opiots for severe chronic pain is exceptable.you
have to be responsible and so that there is nothing to indicate you are
addicted. So really if you were it’s better to find out how to treat your
pain within that. I do a lot of reading about my desease and my situation
you should too

I’m not sure about pot taking pain away. If it did and was legal I would
want my Dr to OK it and my pain Dr and I don’t want to be high . I have my
son and daughter in law and grandchildren and I don’t want to be high
around them. T could maybe see if you are having a severe pain crises even
though you are on the most medications you can be. Pot might relax you
and help you sleep and stop the pain crises fast. But I’m sceptical. It
has to be excepted by the medical community for me .

Liked by salena54

Dear Jane,
I am glad I ran into your post because I too have been researching
PRP, I was unaware that insurance didnt cover this. If you dont mind me
asking, about how much does one treatment cost?
Were your laser treatments: cold laser? Briefly about me: I’m 40yo in good
health and weight, save my 13 spine surgeries 8 of those being fusions both
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.
I’ve had over 35 epidurals and facet injections, and am kind of lost as to
where to look for alternative treatments. I’m on a small amount of opiots,
have a spinal cord stimulator etc.
How long did it take before you started getting some relief.
Thank you for your time and I look forward to your response.
seanbeck

Sincerely,
Brandon

@19lin

I agree regarding TEMS and spinal cord stimulator, early on the doctors told me if the TEMS does not work neither will the stimulator, but I have heard of those who feel the stimulator was helpful to them. I think much of pain control is an individual thing. There is a lot about the pain process and the brain that science does not know yet. 19lin

Sent from Windows Mail

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I’m on my 2nd SCS, this one my St. Josephs, my first was Medtronics. St.
Joes also told me there would be no “tingling” or “shocking” feelings. Not
so. I spoke to the rep and he said that technology would be approved this
summer. Not getting my hopes up. I’ve also inquired about an intrathecal
pain pump. How has that worked for you? I’m tired of taking oral opiods
daily. I’m 40 w/13 spine surgeries, most of them being fusions both
cervically and lumbar. I’m going crazy here in AZ and dont know where to
look for help. Thank you for your post and I look forward to your response
and suggestions,

seanbeck
Sincerely,
Brandon

@19lin

I agree regarding TEMS and spinal cord stimulator, early on the doctors told me if the TEMS does not work neither will the stimulator, but I have heard of those who feel the stimulator was helpful to them. I think much of pain control is an individual thing. There is a lot about the pain process and the brain that science does not know yet. 19lin

Sent from Windows Mail

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My bad. I meant St. Judes Medical, not St. Josephs.

@seanbeck

Dear Jane,
I am glad I ran into your post because I too have been researching
PRP, I was unaware that insurance didnt cover this. If you dont mind me
asking, about how much does one treatment cost?
Were your laser treatments: cold laser? Briefly about me: I’m 40yo in good
health and weight, save my 13 spine surgeries 8 of those being fusions both
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.
I’ve had over 35 epidurals and facet injections, and am kind of lost as to
where to look for alternative treatments. I’m on a small amount of opiots,
have a spinal cord stimulator etc.
How long did it take before you started getting some relief.
Thank you for your time and I look forward to your response.
seanbeck

Sincerely,
Brandon

Jump to this post

Hi, The injections cost $3,500.00 for the PRP, stem cells that were
injected from my neck all the way to my sciatica which was the worse pain I
was complaining about, and laser treatments. I was able to be at a pain
level around 3 or 4,( 9 before that my pain was 7 8 9),
and was much better over all. I had to have one more stem cell injection
on my sciatica, $2,500.00, about two months later and after that one, the
pain went right away. It takes several months for the cells to regenerate
the nerves as they are very delicate. That is the reason they give me
laser treatments to help them heal me. I will continue to get the laser
treatments as long as I need them. They are included in the price I paid.
It is an expensive way to go, but people who have had surgery, and other
forms of pain treatments end up getting the stem cells and PRP .
I am just praying I will get better and better as time goes on. I am back
at the gym working out with weights three time a week and I am 79.

One other note is they gave me the amniotic cells instead of my own bone
marrow as that would just be putting old cells back in my body. I hope I
have helped you with this information. You can go on line to
http://www.RestoraLife.com and check it out. This place is in Melbourne, Fl. I
do not know if they have other places, but more and more doctors are
getting involved with this new treatment for pain.

Gd bless, Jane

@suebreen54

We have to look to the people who understand our pain. People who are on
are side. They are there. I am not an addict. I have never been addicted to
anything except running eating healthy because they make you feel so good
you are at your bodies optimum. Now I can’t do a lot of moving. I was
getting injuries while healthy, while in physical therapy because I have
a degerative desease, that is hereditary. I used to drink socially. I grew
up in the 70s I grew up with a little drugs I never did anything alone or
to get wasted I just didn’t. When you grow up and have kids you hopefully
don’t have the genes for addiction and you don’t do those things.
Everything I have read opiots for severe chronic pain is exceptable.you
have to be responsible and so that there is nothing to indicate you are
addicted. So really if you were it’s better to find out how to treat your
pain within that. I do a lot of reading about my desease and my situation
you should too

Jump to this post

When pain takes control of one’s body they can’t function in every day
life. Most people in the seventies tried some type of drug, are alcohol.
But didn’t become addicted. But smoking are baking with the drug, one must
be careful, not to by from the street Because they add things to. It’s
better to get a prescription. I have seen some that have had terminal
cancer and had a card from the doctor. An most don’t understand what pain
does to a body, because they have never experienced anything more than
soreness from work hard.:!
salena

@seanbeck

Dear Jane,
I am glad I ran into your post because I too have been researching
PRP, I was unaware that insurance didnt cover this. If you dont mind me
asking, about how much does one treatment cost?
Were your laser treatments: cold laser? Briefly about me: I’m 40yo in good
health and weight, save my 13 spine surgeries 8 of those being fusions both
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.
I’ve had over 35 epidurals and facet injections, and am kind of lost as to
where to look for alternative treatments. I’m on a small amount of opiots,
have a spinal cord stimulator etc.
How long did it take before you started getting some relief.
Thank you for your time and I look forward to your response.
seanbeck

Sincerely,
Brandon

Jump to this post

Nice to hear of your stem cell treatments. Funny, I am Jane also;
living FL. I would be unable to pay the cost, and am a young 85. No drugs are tolerable for me, and none on the epidurals helped . Last week a new pain mngmnt Dr, my 4th in 25 odd years says there is nothing else he can do for my 8
and 9 pain level back. Five surgeries later, and with no drugs or meds it is tough.

Perhaps we could meet!!!! Please private message me.

@mimsy313

Don’t know if there is a permanent group….there should be….so many of us suffer and each have ways of coping and meds to try.

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Hi @mimsy313,
Given the interest in talking about pain management and the amount of activity on this thread, we will be making a group dedicated to pain management soon after we have completed the next phase of updates. I’ll keep everyone here informed as these changes are made.

Colleen
Connect Community Director

@excentrk

I take 200 mg Tramadol and 900 MG of gabapentin throughout the day. for pinched nerves and arthritis pain. I also take a full aspirin every morning and stil, I cannot walk more than 2 blocks without severe back pain. I am soooo tired. Anybody else who is just fatigued from constant pain?

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I have been in chronic pain for 33 years. I have had 8 spinal surgeries, c-2 to c-7, l-1 to s-1. Now they want to go after t-1to t-3 acd hook on to bottom or c-7, I don’t think I can take any more pain. All the surgeries did was to stablize my back but it keeps collapsing? Brian

Liked by jbyrd

@excentrk

I take 200 mg Tramadol and 900 MG of gabapentin throughout the day. for pinched nerves and arthritis pain. I also take a full aspirin every morning and stil, I cannot walk more than 2 blocks without severe back pain. I am soooo tired. Anybody else who is just fatigued from constant pain?

Jump to this post

I am sorry to hear about your condition. If nothing has worked you or your doctor might look for help in Europe or other countries. I remember seeing the story of a boy about 13 or 14 years old who had a neurological condition which could not be treated here. Any movement or even a slight breeze blowing on him would cause extreme pain for him and the pain shots were not helping that much. His family took him to France where they tried some experimental treatment that is not used here and he finally got relief.

What I am trying to say is don’t give up until you have tried every possible method and even some impossible ones. You never know when you might find relief. Did you see the earlier post about someone who got their doctor to try stem cells injected into their back and with time this caused the back to rebuild or regenerate her nerves. Of course this was expensive and took time, but it helped her. I will pray for you to find relief soon.

Sent from Windows Mail

Liked by mimsy313

Thank you, but I don’t see a way out except death. The only thing is my
Grandfather lived until 98. I don’t want this kind of pain that long.!!

@mimsy313

Don’t know if there is a permanent group….there should be….so many of us suffer and each have ways of coping and meds to try.

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Colleen – how do I access any threads regarding Multiple Myeloma?

Thanks,

Bruce Mandel

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