Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain group.

I am so sorry for all your problems. My husband is a great help to me but
without him, I would have to move to an assisted living place. You are so
right. When you look good, which I try to most of the time, people don’t
realize how much pain you are in. People always say, “How are you?” but
do they really want to know? No, you are supposed to say “good” because
otherwise you are dubbed a complainer.

REPLY
@suebreen54

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

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Thank you. I will definitely go to the American Chronic Pain
Association’s web site.

Lois

REPLY
@suebreen54

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

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I checked Am Chronic Pain Assoc and found that I am a member, but they don’t send a newletter so I will have to get them too.

Sent from Windows Mail

REPLY
@suebreen54

Yes I see that people around you and maybe ever don’t understand pain. They
don’t have it so they don’t get it. It’s real and you deserve to be
validated and find relief. I suggest you go to the American Choronic Pain
association on the Internet. They understand. You will find validation
there. They will tell you you have a right to pain relief. Nothing takes
all the pain. No one should be suffering because people don’t understand
chronic pain and I don’t know why they think it’s up to them to say. At
your age what do they think tour up to no good. I would to seek with some
people because they just guess and think it’s true. The American Pain
Association has many different tools to help with pain and the latest
information. They can tell you about other associations to get info from.
They really helped me so much. I hope you look them up and use them. Don’t
let any one tell you what you and your body knows, they don’t know that.
Good look. You can do it. Keep with us let’s talk it’s great too.

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I think that’s great. You can get a lot from there site on the Internet

REPLY
@ladyjane85

To suebreen 54 – I have gone to to pain dr/anesthesiologists for over 20
years. Epidural shots of many locations have not worked on me.

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Likewise with me – nothing has worked through the years.

REPLY

Well, at least I know I’m not alone, unfortunately. Is there anything
that does help your pain?

Lois

REPLY

I am considering stem cell therapy for facet joint syndrome. May I ask what problems you were experiencing with your back? Glad ur better.

REPLY
@suebreen54

I think having this forum to talk to each other helps. If we go to a pain clinic and sign their paperwork follow the rules take as directed they arent going to take your medicine away. You have a right to pain relief. There are many people who are working for people in pain. Most people know nothing about chronic pain until it happens to them. Go to Amrican chronic pain association you will find that there are people to support you in findind pain relief. They have other sites to go to.

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I have heard that some people smoke pot for pain. But if u go to a pain clinic like I do they pee test and we r not aloud to smoke ( in pa). Or we will be kicked out of the pain clinic!!!! I am willing to try anything for pain but will have to wait on the law to catch up to the needs of the people. Many people have moved to other states to get help for there children. Can’t say I blame them. When u have pain you will try anything! Sharon

REPLY

We have to look to the people who understand our pain. People who are on
are side. They are there. I am not an addict. I have never been addicted to
anything except running eating healthy because they make you feel so good
you are at your bodies optimum. Now I can’t do a lot of moving. I was
getting injuries while healthy, while in physical therapy because I have
a degerative desease, that is hereditary. I used to drink socially. I grew
up in the 70s I grew up with a little drugs I never did anything alone or
to get wasted I just didn’t. When you grow up and have kids you hopefully
don’t have the genes for addiction and you don’t do those things.
Everything I have read opiots for severe chronic pain is exceptable.you
have to be responsible and so that there is nothing to indicate you are
addicted. So really if you were it’s better to find out how to treat your
pain within that. I do a lot of reading about my desease and my situation
you should too

REPLY

I’m not sure about pot taking pain away. If it did and was legal I would
want my Dr to OK it and my pain Dr and I don’t want to be high . I have my
son and daughter in law and grandchildren and I don’t want to be high
around them. T could maybe see if you are having a severe pain crises even
though you are on the most medications you can be. Pot might relax you
and help you sleep and stop the pain crises fast. But I’m sceptical. It
has to be excepted by the medical community for me .

REPLY

Dear Jane,
I am glad I ran into your post because I too have been researching
PRP, I was unaware that insurance didnt cover this. If you dont mind me
asking, about how much does one treatment cost?
Were your laser treatments: cold laser? Briefly about me: I’m 40yo in good
health and weight, save my 13 spine surgeries 8 of those being fusions both
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.
I’ve had over 35 epidurals and facet injections, and am kind of lost as to
where to look for alternative treatments. I’m on a small amount of opiots,
have a spinal cord stimulator etc.
How long did it take before you started getting some relief.
Thank you for your time and I look forward to your response.
seanbeck

Sincerely,
Brandon

REPLY
@19lin

I agree regarding TEMS and spinal cord stimulator, early on the doctors told me if the TEMS does not work neither will the stimulator, but I have heard of those who feel the stimulator was helpful to them. I think much of pain control is an individual thing. There is a lot about the pain process and the brain that science does not know yet. 19lin

Sent from Windows Mail

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I’m on my 2nd SCS, this one my St. Josephs, my first was Medtronics. St.
Joes also told me there would be no “tingling” or “shocking” feelings. Not
so. I spoke to the rep and he said that technology would be approved this
summer. Not getting my hopes up. I’ve also inquired about an intrathecal
pain pump. How has that worked for you? I’m tired of taking oral opiods
daily. I’m 40 w/13 spine surgeries, most of them being fusions both
cervically and lumbar. I’m going crazy here in AZ and dont know where to
look for help. Thank you for your post and I look forward to your response
and suggestions,

seanbeck
Sincerely,
Brandon

REPLY
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