Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by SpineAZ, bob815c

Thank you crazycroatian60

REPLY
@suebreen54

We have to look to the people who understand our pain. People who are on

are side. They are there. I am not an addict. I have never been addicted to

anything except running eating healthy because they make you feel so good

you are at your bodies optimum. Now I can’t do a lot of moving. I was

getting injuries while healthy, while in physical therapy because I have

a degerative desease, that is hereditary. I used to drink socially. I grew

up in the 70s I grew up with a little drugs I never did anything alone or

to get wasted I just didn’t. When you grow up and have kids you hopefully

don’t have the genes for addiction and you don’t do those things.

Everything I have read opiots for severe chronic pain is exceptable.you

have to be responsible and so that there is nothing to indicate you are

addicted. So really if you were it’s better to find out how to treat your

pain within that. I do a lot of reading about my desease and my situation

you should too

Jump to this post

I take two rx’s from my doctor plus a pain pump and still can’t control my

pain. I’m 60. and have been dealing with this for 33 yrs. And I’m seeing a

surgeon on the 22nd. C7 t1 to t3 will only have t4 to t11 left if I have

surgery, which I may refuse. Surgery makes me worse and I can’t take much

more.

Liked by ladyjane85

REPLY

Thank you

REPLY

ladyjane replying – I am in your same round robin or 25 years –

3surgeries with fusion on lumbar and above, numerous epidurals which

do not woork, and cannot take over 40 pain meds. Had to have

neurostimulator removed bec no help, last hope was pain pump. But have

side effects to drugs so refusing that surgery. 4th and last pain

management dr says there is nothing more they can do for 20 odd years

of 8 to 9 pain if I get off the bed and get physical – dressing,

making a meal. I am a young 85. They cannot believe my age. I agree

no more surgeries – have had 5. Some of us do not respond to meds or

end up in hospital w/ side effects. One just has to be strong and

make sure you socialize some or depression is bad. Meditate, by

clearing your mind to peacefulness.

REPLY
@briansr

Thank you, but I don’t see a way out except death. The only thing is my

Grandfather lived until 98. I don’t want this kind of pain that long.!!

Jump to this post

I understand your feelings, but I can only advise here that you do not give up without a fight. If you would like to discuss it feel free to send me a private message.

Sent from Windows Mail

Liked by salena54

REPLY
@briansr

Thank you, but I don’t see a way out except death. The only thing is my

Grandfather lived until 98. I don’t want this kind of pain that long.!!

Jump to this post

Hi @19lin. Thank you for your activity on Connect and for responding to this discussion.

Please note that I removed your personal email address for your safety and to limit your getting unwanted spam. You can private message another Connect member by simply clicking on their name and then clicking email icon.

@briansr, I also want to add that if at any point you start to feel like you may consider hurting yourself, please call the National Suicide Prevention Lifeline at 1-800-273-8255 for immediate help. Your safety is the most important thing to us and needing to talk to a professional doesn’t show weakness, it shows strength!

Liked by salena54

REPLY
@mimsy313

Don’t know if there is a permanent group….there should be….so many of us suffer and each have ways of coping and meds to try.

Jump to this post

Hi Bruce (@user_ch715bb07),
Welcome to Connect.
Please post a message to this thread about multiple myeloma to reactivate the discussion. https://connect.mayoclinic.org/discussion/multiple-myeloma-299aae/

You can see other discussions in the Cancer group as well. https://connect.mayoclinic.org/group/cancer/#/!tab=discussions I’ll get you connected with others.

Liked by user_ch715bb07

REPLY
@suebreen54

I’m not sure about pot taking pain away. If it did and was legal I would

want my Dr to OK it and my pain Dr and I don’t want to be high . I have my

son and daughter in law and grandchildren and I don’t want to be high

around them. T could maybe see if you are having a severe pain crises even

though you are on the most medications you can be. Pot might relax you

and help you sleep and stop the pain crises fast. But I’m sceptical. It

has to be excepted by the medical community for me .

Jump to this post

I have read that there are certain elements in pot that help and you do not need to smoke it, but can take it in pill or some other form. I never smoked so I never used pot, but I have been exposed to second hand pot smoke and it always made me sick like I wanted to throw up, so I had to leave the area where anyone was smoking it. I do not know if it would work for me or not? I would be willing to try it in pill or some form if my doctor wanted me too. 19lin

Sent from Windows Mail

REPLY
@suebreen54

I’m not sure about pot taking pain away. If it did and was legal I would

want my Dr to OK it and my pain Dr and I don’t want to be high . I have my

son and daughter in law and grandchildren and I don’t want to be high

around them. T could maybe see if you are having a severe pain crises even

though you are on the most medications you can be. Pot might relax you

and help you sleep and stop the pain crises fast. But I’m sceptical. It

has to be excepted by the medical community for me .

Jump to this post

Good luck on that!!

REPLY

I have EMGUS which can turn into multiple myeloma, could you tell me how

your multiple myeloma affects you please? briansr

REPLY
@ladyjane85

ladyjane replying – I am in your same round robin or 25 years –

3surgeries with fusion on lumbar and above, numerous epidurals which

do not woork, and cannot take over 40 pain meds. Had to have

neurostimulator removed bec no help, last hope was pain pump. But have

side effects to drugs so refusing that surgery. 4th and last pain

management dr says there is nothing more they can do for 20 odd years

of 8 to 9 pain if I get off the bed and get physical – dressing,

making a meal. I am a young 85. They cannot believe my age. I agree

no more surgeries – have had 5. Some of us do not respond to meds or

end up in hospital w/ side effects. One just has to be strong and

make sure you socialize some or depression is bad. Meditate, by

clearing your mind to peacefulness.

Jump to this post

The pain pump will help and the meds can’t get into your system. Had mine

for five years and it helps my lower back, but that’s all. briansr

REPLY
@briansr

Thank you, but I don’t see a way out except death. The only thing is my

Grandfather lived until 98. I don’t want this kind of pain that long.!!

Jump to this post

I will never hurt myself but am not worried if a natural death comes my

way. I fight every day and will continue to fight. Thank you for the info

if I want to reach someone. How do we get a chronic pain group started?

briansr

Liked by salena54

REPLY
@briansr

Thank you, but I don’t see a way out except death. The only thing is my

Grandfather lived until 98. I don’t want this kind of pain that long.!!

Jump to this post

Keep trying to find some relief. Try everything! I hope so much you find relief somehow!

Have a beautiful Aloha Day!

REPLY
@ladyjane85

ladyjane replying – I am in your same round robin or 25 years –

3surgeries with fusion on lumbar and above, numerous epidurals which

do not woork, and cannot take over 40 pain meds. Had to have

neurostimulator removed bec no help, last hope was pain pump. But have

side effects to drugs so refusing that surgery. 4th and last pain

management dr says there is nothing more they can do for 20 odd years

of 8 to 9 pain if I get off the bed and get physical – dressing,

making a meal. I am a young 85. They cannot believe my age. I agree

no more surgeries – have had 5. Some of us do not respond to meds or

end up in hospital w/ side effects. One just has to be strong and

make sure you socialize some or depression is bad. Meditate, by

clearing your mind to peacefulness.

Jump to this post

I understand what u mean! Depression goes had in hand with pain!!!! I always say “I don’t want to live this way for the rest of my life!” It’s not that I want to die!! I just don’t want this pain!!!! It’s a hard thing to explain to others who are not in our shoe’s,they just don’t understand!! But we have to stay strong! Good luck to you!!! And God bless. Sharon

REPLY
@ladyjane85

ladyjane replying – I am in your same round robin or 25 years –

3surgeries with fusion on lumbar and above, numerous epidurals which

do not woork, and cannot take over 40 pain meds. Had to have

neurostimulator removed bec no help, last hope was pain pump. But have

side effects to drugs so refusing that surgery. 4th and last pain

management dr says there is nothing more they can do for 20 odd years

of 8 to 9 pain if I get off the bed and get physical – dressing,

making a meal. I am a young 85. They cannot believe my age. I agree

no more surgeries – have had 5. Some of us do not respond to meds or

end up in hospital w/ side effects. One just has to be strong and

make sure you socialize some or depression is bad. Meditate, by

clearing your mind to peacefulness.

Jump to this post

Thank you Sharon. I’m now facing a surgery consult on the 22nd. After my

last spinal c-3 to c-7 my disk below, c-7 thru t-1, 2, 3, is what their

after. It happens every time and if I don’t have to have the surgery I

won’t. I never get relief afterwords and more disk crumble above or below.

The other surgeries were have tos, I hope this one is not. This is like

having cancer, and I’ve taken care of alot of cancer patients, but the

doctor doesn’t tell you how long you’ve got. I would like to just be

comfortable, but my dr. doesn’t get it. Anyhow how can we set up a real

time discussion group on chronic pain? Have any ideas. Thank you briansr.

REPLY
Please login or register to post a reply.