Chronic pain - Let's talk

It sounds like you have been through the mill, you might want to try acupuncture and even hypnosis as possible alternatives. There are a lot of options, but that only supports that no one really knows what causes pain and what to do about it. If there were one method that worked better than ever it would lead the pack, but there are none and with the current attack on opioids it makes it even worst. <br />
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I try not to show my pain, but when the sciatic pain hits I can not hide it. I just get away from others and take what I can until it passes, the best I have found so far is a muscle relaxant which I only found out about in the last couple years of the last 40+ years of pain. 19lin<br />
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I think having this forum to talk to each other helps. If we go to a pain clinic and sign their paperwork follow the rules take as directed they arent going to take your medicine away. You have a right to pain relief. There are many people who are working for people in pain. Most people know nothing about chronic pain until it happens to them. Go to Amrican chronic pain association you will find that there are people to support you in findind pain relief. They have other sites to go to.

You might think so, but the Veterans Administration medical centers have already started to restrict opioids to cancer patients only and the only others to get them would be for temporary pain. They will send you to a variety of alternate methods of pain control, but there is no proven method that works, even opioids do not work for everyone. A bill has been proposed in Congress now to make the VA system a law. <br />
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On another site like this I read of many people who had contracts with their doctors on pain medicine, but accidentally got thrown off them because of some minor problem such as going to the ER and receiving extra pain meds for some issue which then violated their contract. Some wrote that their doctor would not even discuss what happened with them. In some cases the clinics would bar opioids or insurance would no longer pay for the medication. <br />
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Hopefully you will not have this problem, but some are according to their post in the Web MD pain site.<br />
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I have had lower back pain for years,  bone on bone, sciatica down the legs. <br />
After trying everything I had PRP plus amniotic stem cell injections,  plus laser treatments 3 times a week,  then twice a week, and now twice a month.   The injections were done in November and my back is getting  better every day.  It takes a few months for the stem cells to regenerate all the nerves and to build collagen so I am very hopeful I will be completely pain free.   The downside is insurance does not pay for it, and it is rather expensive,  but it beats surgery. I am back at the gym working out three times a week. <br />
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This is great news. I have often wondered if stem cells would help. My only knee I still has no longer has anything between the bones and I talked to the doctor about stem cells but he did not know if they would help of not. Sciatic nerve pain is the worst kind for me and I know it is due to my spine problems but I do not know what is in my back. The last two MRIs I had I insisted on getting out early as right along my spine it really burned or felt like burning all along the my spine.<br />
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Has anyone else ever experienced burning along their spine during an MRI? It happened to me twice and the doctors look at me like I’m crazy, but I know what I felt. 19lin <br />
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I am so glad to have found this site. I have has Diabetic Neuropathy for<br />
probably 12 years. I have the Chronic pain type mostly in my feet up to<br />
my knees. I also have Arthritis in my very crooked back. So I have two<br />
different types of problems and pain. My average pain level is 5 to 6 on<br />
my good days and worse on my bad days.<br />
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I have tried all of the shots for my back, burning of the nerves and<br />
Laminectomy on L2 thru L 4 to take pressure off of the nerves. The only<br />
thing that gave me Back relief was Decompression. After a 15 weeks of<br />
Decompression I actually went about a year with little or no back pain.<br />
After the year it began to come back.<br />
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For my Neuropathy I have had Bilateral Endovenous Laser Ablation in both<br />
legs, had Tarsal Tunnel surgery in both ankles and about every medicine<br />
known for Neuropathy. Finally settled on Lyrica, did not help much but<br />
pain was some better. My Doctor took me all the way up to 900 mg of<br />
Lyrica but the pain was no better that at 300 mg, so that is where I have<br />
remained.<br />
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About 7 years ago, I was told the Spinal Cord Stimulator should help because<br />
it would block the pain messages from getting to my brain. It was<br />
different, definitely a shocking experience. It never blocked the pain<br />
signals, I got where I would use it when my pain was so bad that I needed<br />
something. You men, if you have ever had Jock Itch, the rawness and<br />
itching will drive you crazy. I used to put Alcohol on it at times just<br />
to stop the itching, it burned like Hell but it was not itching. That is<br />
kind of what the Stimulator did for me. Pain was still there but the pain<br />
was vibrating.<br />
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My Stimulator battery needed to be replaced so my Doctor told me about a new<br />
Stimulator on the market made by Nevro. It is higher frequency so you<br />
never feel it and don't have to adjust before you lay down. My Doctor<br />
and the Nevro technicians all told me that the Nevro worked on patients that<br />
did not get relief from the old style. I was excited and agreed to have<br />
it replaced with the new one. The Technicians told me that most patients<br />
will get relief before they have tried 3 or 4 programs. Each program<br />
will have 8 different stages, strengths or something. I don't really<br />
understand. I must be the lucky one or odd one because I have gone thru<br />
10 programs so far and nothing. I am still optimistic because there are<br />
supposed to be a lot of programs. So maybe I will get lucky yet.<br />
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That on top of my Pain pump and my average pain level is 5 to 6. This is<br />
getting too long so that will be another story.<br />
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I too cannot take opiates for my pain and nothing else helps. I try to <br />
exercise some each day but it is hard. I have gained a lot of weight and <br />
can't seem to get it off. I have a lot of clothes that don't fit. Nothing <br />
seems to fit but I refuse to lie in bed all day. Distraction helps and being <br />
with people. <br />
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Lois

Epidurals, trigger point injections, cortisone injections. None of them
work for me. I don't understand why.

I hear you. I have had trouble with opiates on and off at different times<br />
and different injuries. I have degenerative disc desease and have had<br />
several different injuries and then hit by a pick up. After getting hit<br />
was the second time on opiates. The first time it helped me heal and I<br />
didn't need it any more. I didn't have any withdrawal at all or any<br />
dependence nothing.<br />
I find it takes several different treatments when your in pain or chronic<br />
pain and different things help different people.<br />
It depends on where your pain comes from. I go to a really go pain clinic<br />
and I love my Dr and trust him.<br />
I don't know your age or weight history, but I use to be very athletic and<br />
healthy and thin. I'm 55 and my cervical spine is my worst area of my disc<br />
desease. I don't move around very well. Weight is a big problem. I just<br />
don't want to have to buy new clothes a size higher. I'm just restricting<br />
calories and eating healthy. You are at an advantage you move around.<br />
Maybe you can encourage me to walk or something. I use to run and teach<br />
aerobics. You may be one or more medicines that make you gain weight there<br />
are a lot of them. I know I've lost some weight maybe 5 lbs. Now I'm on a<br />
pain med and it helps to lose weight. Let me know your plan. Maybe you can<br />
help me. I have a degree in nutrition and health and would be happy to help<br />
you. If you have any questions ask Dr's but innocent questions I would love<br />
to help you with. Let me know. I need help to move my body<br />

It is hard to have constant high pain levels. Through the years with all<br />
that is wrong with my back even after 5 surgeries I am a young 85, in looks<br />
much younger, but I cannot do much. I use a cane when out, but a walker<br />
where I am in an Independent facility because there are long corridors to<br />
walk to get to the dining room, entertainment, etc. I knew I could not live<br />
in my home anymore since I could not do housework or even cook a small<br />
meal. I only do bed exercises, can take no meds - I react badly to nearly<br />
50 tried, and even different epidural procedures of all types have not<br />
worked. I do have socialization every night in our dining room, and try to<br />
go to some outside interests - walking, standing and sitting are bad. I do<br />
try meditation. Doctors have given up on me. I think too, that when you<br />
look great, they do not believe your pain level is always as they see you<br />
on a visit. My pain is one of over 25 years......but everyone will say it<br />
is your age!<br />
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