Mayo Clinic Connect
Are there any discussions for chronic pain?
Liked by SpineAZ, bob815c
Briansr, I’m not sure how to set up a group and I’m surprised not to see one. But I just got on this site this month. Maybe we can ask. I will check it out and see what I can find. Hope your day goes as sell as it can! I have a doctor appoint today at my pain clinic. Wish me ?luck! Sharon
Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!
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@leh09, you are right feeling that no one understands the pain you go
through. And there are others who feel the same way. My pain pain can put
me down for days. But I still have to take medication on my good days to
get things done. I was always an active person even with the health
problems I had to live with. There were Dr.s that wouldn’t take me
seriously, till my neurologist was doing a spinal tap and asked if I felt
any pain which I did. Back then I had a high tolerance to pain,(which I do
not have no more), which I had learned to live with. He told me because I
was trying to be tough is why the other Dr.s wouldn’t take me serious. I
love the Dr. I have now, he knows what I go through and has compassion for
me and his other patients. I hope and pray that you can find a Dr. that
will work with you and your pain. There are some on this post that truly
have severe pain and I don’t feel their pain but I understand their pain,
and what they are going through. Stay in touch, I would love to hear from
you and what you go through. Have a blessed day. Salena
Liked by jbyrd
Sale a, thanks a lot I think it will help
I’m not sure about pot taking pain away. If it did and was legal I would
want my Dr to OK it and my pain Dr and I don’t want to be high . I have my
son and daughter in law and grandchildren and I don’t want to be high
around them. T could maybe see if you are having a severe pain crises even
though you are on the most medications you can be. Pot might relax you
and help you sleep and stop the pain crises fast. But I’m sceptical. It
has to be excepted by the medical community for me .
@19lin. About the lack of smoking history, I am the same. But the
medical forms of marijuana are VERY expensive and not available in my
state. It is hard for me with 8 – 9 pain level and unable to take any
meds. So hard, bec you need your back to stand, walk and sit.
Thanks a lot! It is nice to talk to other people who understand what we are doing up at 3 am. Unable to sleep because of the pain.I will be looking forward to meat some more people! Which in my mind means more ideas for new treatment! Thanks, Sharon.
Liked by salena54
Brainsr, you sound like me! I would try anything once just to have some relief ! Now that my migraines are not as often,(I Have only had 2 this past month one lasted 2 days and the other I’m having right now so for 4 days.so far ) much better then the past 15 months I was in bed 20 days out of30! Sharon
I guess We just need to be thankful we can stand up and take one day at a time!!!!
(Sometimes that is hard to do!) I have been in chronic pain for around 25 years.( I guess it’s been more like 40 years!) I am now 62 yrs. old I have had migraine’s since I was 16!
But If we get my migraines under control I. Won’t be in to bad of shape I will always Hav pain. I’ve been using a fentenol patch 75 mg. and oxyconde. But that is not for my migranes. That is for low back pain. I had a double laminectomy done around age 42. My spine had fallen down and was crunching my spinal cord. The surgeon said I was about 2 months Away from a wheel chair!!!
One thing about pain you know your alive as soon as u open your eyes!! Lol
Hav a good restful sleep. Sharon
Liked by Vickie, salena54
I understand the forms(or skripts) to get pot will b $50. There will b 150 dispensing areas in the state of PA. The governor( tom wolf) will b singing it next week. It already passed through Cent. floor yesterday. Also i think u r right it will b given in candy, pills ect….. And they will Hav it for different reasons. Unlike street drugs, u don’t know what your getting!! I guess we will Hav to wait and c!!! Sharon
Hello everyone! I have dealt with Chronic Pain since I was about 19. I went to the PRC Program at Mayo Clinic in Jacksonville ran by Dr. Christopher Sletten. This program helped me so much in learning to deal with it and every aspect of my life. I would recommend this program to anyone who deals with Chronic Pain. I do believe all 3 Mayo campuses offer it now.
Agreed the cost and laws are a problem. Our legislature approved use for medical treatment but the health insurance companies didn’t, probably since it is still a federal offense. I like to try all alternatives and acupuncture and hypnosis have proven effective for some. Acupuncture helped my energy, but not really the pain and the needles still hurt depending where they put them. You need a certified acupuncturists to be sure they know what they are doing. Hypnosis does not work on everyone, but I have seen shows where people undergo surgery with only hypnosis as anesthesia. Still if you have not tried them you should if possible. At Mayo’s I tried an experimental use of ECT which helped, but the side effects stopped me from continuing with it. I do believe in trying all methods that seem to have some proven success. 19lin
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This is my very first post ever, and first “group” message board I’ve ever joined so please bear with me if this is a bit longer than a typical post (unclear to the unwritten rules). Sorry, so I recently turned 40, have been on long term SSDI since ’07, and am 3 mos. post-op from my 13th spine surgery. Since ’04 it was about one a year, then from ’08 on occasionally 2X a year. I’m fused both anterior and posterior cervically from 3-T1, with a bunch of lami’s and disc’s at T7-9, but also fused front ant back from L3-S1. I’m exhausted researching alternative modes of relief, like has anyone tried the following: INTRATHECAL PAIN PUMP, (I’m on my 2nd spinal cord stimulator, for those considering, save your time, money, and the rise in your expectations), COLD LASER THERAPY, PLATELET (or Plasma) REPLACEMENT THERAPY? I dont mean to complain, because I know they’re are far more people out there in more pain than myself. I’m just looking for alternatives to see what might help, besides popping a pill every 6 hours, because I would really love to get back to work. My apologies if my soapbox was a bit on the big side.
Just what I said would happen is happening read the following article : http://www.theepochtimes.com/n3/2009489-6-killed-22-overdosed-from-suspected-counterfeit-painkillers-in-california/?iid=ob_article_footer_expansion
Smugglers gave the medicine to unsuspecting users and they died; what did authorities do but add more regulations to make it harder for pain suffers to get pain medicine.
As I said before by making more restrictions on pain medicine and making it harder for doctors to give it out and patients to get it, the pain suffers will go to illegal or unsafe sites to get the medicine they need. The result will be more deaths that no pain suffer or anyone wants.
What is really needed? This is a question for everyone who uses this site.
From my point of view we need an objective method of measuring pain in each individual, not some personal estimate of how much pain we have today.
An objective measure would allow doctors and patients to determine how much pain a person is experiencing. It would let them see how effective or ineffective a pain medicine is in lessening the pain and help both doctor and patient determine what changes need to take place.
Another suggestion is to allow pain suffers the right to euthanasia or physician assisted dying, so that only those who want to and are willing to die to end their suffering will die, instead of some haphazard method that exists today where unwilling and innocent people take pills they think will help them, but end up dead or worst, from an overdose or street drug. By worst I mean how crippled you can become from using the wrong methods.
There definitely needs to be more research into pain, and better methods of treating pain.
In discussions with my doctor he had me review what long term use of opioids would do to me and how they would effect my body and brain. Such as frontal lobe atrophy and opioid induced hyperalgesia. He does not want me to get into a situation where I am more damaged by the medicine that is suppose to help me. He is making me very aware of the CONs as well as the pros of the treatment I am asking for, so that I will go into this with my eyes open.
My fear is the knee jerk reaction that our political leaders seem to have, where they will make all opioids illegal except for a very few which will result in more unintentional deaths as this article shows. 19lin
You’ve hit the nail on the head. One thing that needs to change is the pain
rating scale. I am asked give me a number, well do you want my low back, my
neck, my left shoulder, my hips, my lower legs, my right arm? All I know is
my dr needs to step up and help. I’m not the normal patient. I fee as
though I have cancer but have not been told how long do I have. Pain is
pain it is immeasurable from someone looking in, only the person looking
out ever knows! briansr
Liked by Jen, Volunteer Mentor
LOL!!!! You are so right.
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