Hypertrophic Cardiomyopathy (HCM) Support Group

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All comments are for Camzyos- I am starting Myqorzo - different drug - hopeful it will...

https://connect.mayoclinic.org/comment/1569147/

Discussion: Anyone started myqorzo 5 mg? Experience please.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 2:35pm

@bitsysmom24 Hello! Welcome to Connect! I see that this is your first post! There are several...

https://connect.mayoclinic.org/comment/1572085/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11 10:31am

Hi @graciechi and welcome to the Camzyos world. I hope you have the same fantastic results...

https://connect.mayoclinic.org/comment/1569254/

Discussion: Best time of day to take Camzyos? Best with food or on empty stomach?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 5:47pm

@dconner do you take Camzyos am or pm?

https://connect.mayoclinic.org/comment/1583117/

Discussion: typical side effect for Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 25 2:44pm

Hi, there! Wishing you the best…don’t be afraid. I started Camzyos in Oct 2025…5mg in the...

https://connect.mayoclinic.org/comment/1569742/

Discussion: Best time of day to take Camzyos? Best with food or on empty stomach?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 8 10:26am

@susiewordsmith i’ve been on 5 mg of Camzyos for maybe three years now. And I don’t...

https://connect.mayoclinic.org/comment/1547872/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 11 10:38am

@giolig68 Hello @giolig68! I used the magic of computers to translate your Italian message! "Hello everyone...

https://connect.mayoclinic.org/comment/1569151/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 2:38pm

@carolinca welcome to the forum. I think the link below will take you to a discussion...

https://connect.mayoclinic.org/comment/1568032/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 6 10:09am

Good morning @muddymudskipper. I've posted about my Camzyos experience frequently in various threads on this forum....

https://connect.mayoclinic.org/comment/1589830/

Discussion: Camzyos thoughts? Good or bad

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 2 days ago

@dconner I was also diagnosed in December and am 65 After 3 months on camzyos my...

https://connect.mayoclinic.org/comment/1567776/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 6 6:46am

Hi there...I started 5 mg morning Camzyos in Oct 25. Super dizzy...doc changed my Camzyos to...

https://connect.mayoclinic.org/comment/1572065/

Discussion: typical side effect for Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11 10:11am

Hello @snewbrough, and welcome to Mayo Clinic Connect. It sounds like you are getting progressively more...

https://connect.mayoclinic.org/comment/1536896/

Discussion: Your Experience on Camzyos first month?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 27 8:43pm

I have read that Camzyos has been a miracle drug for many, has done nothing for...

https://connect.mayoclinic.org/comment/1580436/

Discussion: Camzyos- Pros & Cons

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 22 8:43am

can you send me the camzyos link? i’m having trouble finding my questions and also responses...

https://connect.mayoclinic.org/comment/1114472/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 30, 2024

https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ Hi back at you @dwc62 and WELCOME to Mayo Connect! I have posted a link...

https://connect.mayoclinic.org/comment/956847/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 31, 2023

Hello @yayee, I moved your comment to an existing discussion on Camzyos and its effectiveness long-term,...

https://connect.mayoclinic.org/comment/1068923/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 16, 2024

Thanks everyone for sharing your personal experiences with Camzyos. I am still waiting to get started...

https://connect.mayoclinic.org/comment/1577649/

Discussion: typical side effect for Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 18 3:49pm

I've been on Camzyos for almost 4 months now, but prior to that had minimal issues...

https://connect.mayoclinic.org/comment/1583965/

Discussion: Camzyos- Pros & Cons

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 26 3:34pm

salve a tutti da l'Italia, prendo camzyos 2.5mg da 28 giorni sembra che funziona molto bene...

https://connect.mayoclinic.org/comment/1568987/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 11:16am

I’m absolutely fine. I didn’t stop the Camzyos when I took Legevrio. And it all worked...

https://connect.mayoclinic.org/comment/1355889/

Discussion: Is it safe to stop Csmzyos for 6 days?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 25, 2025

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