Camzyos thoughts? Good or bad

Posted by muddymudskipper @muddymudskipper, 2 days ago

Camzyos has been offered as a treatment for my HCM. Those that have tried or are taking this medication, what are you thoughts? Can you tell a difference or any side effects you notice?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Good morning @muddymudskipper. I've posted about my Camzyos experience frequently in various threads on this forum. Instead of boring the heck out of everyone who has already seen them, I'll let you seach them (or not) and just summarize by saying that I've been on Camzyos for over 2 years now and have had zero negative side effects except for a minor bump in blood pressure. All of my debilitating symptoms were gone less than 2 weeks after I started Camzyos, and it feels like I have no oHCM anymore. Not everyone has such great results, but my experience was 100% positive. Good luck whatever path you take.

REPLY

Welcome to Mayo Clinic Connect @muddymudskipper,
@boatsforlife is a wonderful resource for you to check out. Click on his name and you will be taken to all his wise and insightful posts.
Along with @boatsforlife's posts, have you had a chance to check out the Camzyos groups posts?
Here is the link to that information (started in 2022):
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
And here is another link to the Mayo Clinic's HCM information, so you can learn as much as you can and be your own best advocate:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
Is your cardiologist educated in the treatment of HCM/HOCM?
When is your next visit?

REPLY

Thank you both for your insight into your experiences. I will definitely be reading up on @boatsforlife page. We are slated to return to MN in a few weeks time.

REPLY
Please sign in or register to post a reply.