Hello everyone! I am brand new to this site so please bear with me! I am a 31 year old female and here is my story and questions…in 2010 I had a benign tumor removed off of the tail of my pancreas without any problems, in 2017 I had a malignant tumor on the head of my pancreas and had to have a Whipple Procedure, and not even 6 months later the cancer had spread to the rest of my pancreas and I had Pancreatic Cancer. I didn't have time to do chemo or radiation, a total pancreatectomy was my only option. They removed my entire pancreas, gall bladder, spleen, some of my stomach, and some of my small intestine (Duodenum). Recovery wasn't easy, especially adapting to now being a Type 1 Diabetic and having to take pancreatic enzymes before eating anything just to be able to digest any food. I had several complications following the Whipple and Total Pancreatectomy (as well as removing other organs). I am coming up on two years post op and I feel like I am still struggling! I suffer from severe fatigue, nausea/vomiting (causing me to lose over 20 pounds), diarrhea, stomach pain, and uncontrollable blood sugars. I have been searching the internet for someone "like me!" I have found people who have had the TPAIT procedure or a Distal Pancreatectomy but not a Total Pancreatectomy due to Pancreatic Cancer. I stumbled upon this page and I am hoping someone can give me some insight on what I'm going through. Since my pancreatectomy, every single time I eat I get sick and it has affected all aspects of my life including my relationships and my job. I lost my job due to my current health condition and am fighting hard to get disability, spending most of my days in bed (which is hard having a young child). Anyway, I take Creon with all of my food and am about to have a Gastric Emptying Test done to check for Gastroparesis or Dumping Syndrome. Has anyone had a total pancreatectomy and struggled so bad after the surgery? If so, did you ever really get your life back or did your body eventually get used to digesting food this way and did the constant stomach pain ever stop? My surgeon made it sound like I would absolutely have issues for at least one year after the surgery and that Gastroparesis was very likely but since they removed some of my stomach and a specific valve…I feel like I would have the opposite and have Dumping Syndrome. My apologies for such a long post and for jumping all over the place. If anyone has any recommendations or suggestions to possibly improve my quality of life, that would be much appreciated. I am desperate and looking for answers or wanting to find someone who can at least relate. Thank you for all of your help!