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Luckyone4321 (@luckyone4321)

Total Pancreatectomy

Pancreatic Cancer | Last Active: Oct 22, 2020 | Replies (17)

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@kimber361

@luckyone4321, You're welcome. I know how difficult it is to find a doctor and/or gastroenterologist that's knowledgeable in patients who have had Total Pancreatectomies, Whipple Procedure surgeries and/or Distal Pancreatectomies. I changed gastroenterologists after I underwent the Whipple. Through many phone calls & inquiries, I finally found a knowledgeable gastroenterologist & am very happy with him! You may want to seek a second or third consult opinion until you find a good gastroenterologist.

I haven't tried Zenpep, but I have a friend who takes it. He told me it works a bit better for him than Creon. You should ask your doctor tomorrow about increasing your Zenpep dosage, as I'm sure it will help you. Keep us posted on your visit tomorrow, okay? I hope your visit goes well!💜

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Replies to "@luckyone4321, You're welcome. I know how difficult it is to find a doctor and/or gastroenterologist that's..."

I went to my doctor appointment today with a full list of questions and concerns and I get there and they tell me he had to do a operation and that they tried to call me to reschedule it but I never had a missed call! And now that doctor can’t get me in until March. I’m wondering if I should look into a different doctor? I was looking forward to maybe getting some answers today but until then I will increase my Creon and see if that helps!