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Luckyone4321 (@luckyone4321)

Total Pancreatectomy

Pancreatic Cancer | Last Active: Oct 22, 2020 | Replies (17)

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I’m so glad to ‘meet you’ @luckyone4321 – welcome to Mayo Clinic Connect. I also wanted to let you know that I really appreciate the details you’ve shared in your your detailed post – being specific definitely helps bring more people into the conversation:)

@bszychow @sandras @2011panc @steve_b @marvinjsturing @moo1 @kimber361 @mcantr @beachgirl23 @susan2018 @ahtaylor, I’d like to invite you to share your insights about pancreatic surgery, pancreatectomy, transplant, as I’m confident that your insights will help @luckyone4321.

Also, take a look at this discussion started by @marvinjsturing:
– Celebrating Life after Pancreatic Cancer! https://connect.mayoclinic.org/discussion/celebrating-life-after-pancreatic-cancer/

@luckyone4321, you are not alone in your recovery struggles; could you share a bit more about how you’re managing or coping at present? Have you found anything that helps?

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Replies to "I’m so glad to ‘meet you’ @luckyone4321 – welcome to Mayo Clinic Connect. I also wanted..."

I am going to be completely honest…I am having a hard time accepting my “new life” and accepting my limitations. My son keeps me on my feet which helps both my mind and body. I would love to be able to go for short walks (we live by a lake) and enjoy some physical activity but unfortunately every time I’ve tried, my blood sugar drops very low. I’ve tried eating slow burning carbs prior to the walk but I will still get extremely weak and need to stop and sit down. I have seizures quite often due to my low blood sugars even though I do have a CGM device (Dexcom) and a insulin pump. My doctors are still trying to figure out the right amount of insulin for certain times of the day to prevent lows. I did however just get a newer version of the Continuous Glucose Monitor (in my arm) and it automatically shuts off all insulin when it senses that my blood sugar is dropping! It’s amazing. But I still deal with the extreme fatigue/weakness and that I can’t seem to find a fix for. To cope with my stomach pain/discomfort I've tried over the counter medication like Tums and I take Zofran for nausea as well as andi-gas pills. I’ll use a heating pad or a weighted blanket, I’ve tried lying down as well as standing and it doesn’t seem to make a difference.
I hope I answered your question correctly! I am still mourning my old self and sometimes I find myself in sort of a “denial phase.” I am open to new ways to cope and manage both mentally and physically! I appreciate your response and I am so happy I found this page! Thanks again!