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Luckyone4321 (@luckyone4321)

Total Pancreatectomy

Pancreatic Cancer | Last Active: Oct 22, 2020 | Replies (17)

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There is also a Facebook group called Whipple Surgery Survivor Group. I sure you would find someone like you in that group.

I had my Whipple 5 1/2 years ago. The surgeon did not remove my entire pancreas, but the part that was left was so bad that it was not reattached to my digestive system. I asked the surgeon why he didn't remove the entire pancreas. He told me that my surgery had already lasted 8 1/2 hours and he didn't want to take the time to remove the rest of it.

I had been a Type II diabetic for 5 years before I was diagnosed with pancreatic cancer. I had learned to control my diabetes with exercise and diet. The only real difference now that I am a Type I diabetic is that I now use insulin as well as watching what I eat (along with Creon).

I also have to deal with fatigue. I have not been affected by nausea and sickness.

I was able to get on Social Security Disability. My understanding is that pancreatic cancer just about guarantees that you will qualify for disability. I filled out the application online. It may take some time, but don't become discouraged and give up trying.

I hope that you will find some answers with testing that you have scheduled.

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Thank you for responding! It helps to not feel so alone throughout this! I’m happy you were approved for disability! They denied me my first time and said I should be able to work while seated (even though I lost my job because I had three seizures due to low blood sugar). Unfortunately I applied for disability after my surgery so I’m in remission right now so they won’t approve me under having pancreatic cancer because I’m in remission. It’s beyond frustrating. I am going to try introducing small and easy exercises to my daily routine to see if that helps, typically even sweeping my kitchen will make my sugar drop (no matter how I eat beforehand) and my fatigue/weakness takes over and I have to sit down. I try not to complain but I definitely miss my old life and my old body but people like you that show me it is possible to live a fulfilling life, keeps me going! So thank you again 🙂