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Luckyone4321 (@luckyone4321)

Total Pancreatectomy

Pancreatic Cancer | Last Active: Oct 22, 2020 | Replies (17)

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@marvinjsturing

There is also a Facebook group called Whipple Surgery Survivor Group. I sure you would find someone like you in that group.

I had my Whipple 5 1/2 years ago. The surgeon did not remove my entire pancreas, but the part that was left was so bad that it was not reattached to my digestive system. I asked the surgeon why he didn't remove the entire pancreas. He told me that my surgery had already lasted 8 1/2 hours and he didn't want to take the time to remove the rest of it.

I had been a Type II diabetic for 5 years before I was diagnosed with pancreatic cancer. I had learned to control my diabetes with exercise and diet. The only real difference now that I am a Type I diabetic is that I now use insulin as well as watching what I eat (along with Creon).

I also have to deal with fatigue. I have not been affected by nausea and sickness.

I was able to get on Social Security Disability. My understanding is that pancreatic cancer just about guarantees that you will qualify for disability. I filled out the application online. It may take some time, but don't become discouraged and give up trying.

I hope that you will find some answers with testing that you have scheduled.

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Replies to "There is also a Facebook group called Whipple Surgery Survivor Group. I sure you would find..."

Thank you for responding! It helps to not feel so alone throughout this! I’m happy you were approved for disability! They denied me my first time and said I should be able to work while seated (even though I lost my job because I had three seizures due to low blood sugar). Unfortunately I applied for disability after my surgery so I’m in remission right now so they won’t approve me under having pancreatic cancer because I’m in remission. It’s beyond frustrating. I am going to try introducing small and easy exercises to my daily routine to see if that helps, typically even sweeping my kitchen will make my sugar drop (no matter how I eat beforehand) and my fatigue/weakness takes over and I have to sit down. I try not to complain but I definitely miss my old life and my old body but people like you that show me it is possible to live a fulfilling life, keeps me going! So thank you again 🙂