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boredsilly
@boredsilly

Posts: 17
Joined: Dec 06, 2017

On going shortness of breath

Posted by @boredsilly, Dec 6, 2017

Had cardio inversion, pacemaker, various inhalers, nebuliser/w/abutarol. ETC!! Dr. says no more to do, see a pulmonologist!

Liked by boredsilly

REPLY

I, too, endure shortness of breath. How do you get things done around the house/apartment?

dear cognac, i clean, i sit, clean, sit, sometimes i sit longer. turn the music louder clean some more. sometimes i do just the most important and wait a few hours or the next day to finish the rest. make a phone call, clean some more. rest, clean again and again.then it’s time to start over again. as it is said ‘THE NEVER ENDING STORY’. not an easy thing to do. the answer to this is: when you win the lottery, get a maid, a butler, gardener and you must keep moving or you will never live long enough to spend all the money. pass the pizza please.

@peach414144

dear cognac, i clean, i sit, clean, sit, sometimes i sit longer. turn the music louder clean some more. sometimes i do just the most important and wait a few hours or the next day to finish the rest. make a phone call, clean some more. rest, clean again and again.then it’s time to start over again. as it is said ‘THE NEVER ENDING STORY’. not an easy thing to do. the answer to this is: when you win the lottery, get a maid, a butler, gardener and you must keep moving or you will never live long enough to spend all the money. pass the pizza please.

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some days are ok. no shortness of breath. so, go swimming and then clean again.

@peach414144

dear cognac, i clean, i sit, clean, sit, sometimes i sit longer. turn the music louder clean some more. sometimes i do just the most important and wait a few hours or the next day to finish the rest. make a phone call, clean some more. rest, clean again and again.then it’s time to start over again. as it is said ‘THE NEVER ENDING STORY’. not an easy thing to do. the answer to this is: when you win the lottery, get a maid, a butler, gardener and you must keep moving or you will never live long enough to spend all the money. pass the pizza please.

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try Meditation, and stretching exercises (Yoga).

Many thanks for suggestions. Unfortunately, my back needs surgery and while the surgeon will do it, the anesthesiologist refuses because my lungs are in such bad shape. To quote him, “I can put her under, but I’m not sure I can bring her back”. The constant pain hampers my movements. But I’m trying meditation. Again, thanks.

Dear Peach414144, you sound like me! That’s what I do. So good to know I’m not alone in this. Thanks..

Hello @boredsilly, @cognac, @patriciapatricia,

I’d like to welcome you, and thank you for joining Mayo Clinic Connect.

@boredsilly, you are not alone in the symptoms you’ve described. I’d like to introduce you to @bergordon, who has had 2 cardioversions, and to @cherriann, whose husband also has shortness of breath; you can view their posts in these discussions:
https://connect.mayoclinic.org/discussion/chest-tightness-even-after-stents/
https://connect.mayoclinic.org/discussion/any-new-help-for-long-time-chf-diagnosis/

@cognac, we have some very active, insightful discussions in the “Lung Health” group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?

@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.

Pulmonogolist scheduled me for a return in 6 months,am I supposed to sit around and continue to have breathing issues? This ai’nt living!! Time for a second opinion!!!

Liked by Solo Act

Hi @boredsilly,

I understand how frustrating this must be! I’d like to invite @tresjur @jmgm @charlottemaxine Mentor @predictable to join this discussion as the’ve talked about cardioversion in previous posts; they may have some more information for you.

In this discussion, https://connect.mayoclinic.org/discussion/valve-repair/ Mentor @hopeful33250 has written about the CardioPulmonary Exercise test; have you had this type of stress test to measure your oxygen levels?

Hello @boredsilly

As @kanaazpereira mentioned, I have had 2 cardiopulmonary exercise tests and it is a good test, especially where breathing problems are concerned. It is different than the traditional stress exercise test in that you wear a facial mask apparatus over your mouth and your oxygen levels are recorded as well as the EKG (heart information). You will probably need to visit a larger medical center in order to have this test. Here is some information from Mayo regarding this test, http://www.mayoclinicproceedings.org/article/S0025-6196(11)60946-4/pdf

I would certainly recommend a second opinion. How long have you had this problem?

Teresa

@kanaazpereira

Hello @boredsilly, @cognac, @patriciapatricia,

I’d like to welcome you, and thank you for joining Mayo Clinic Connect.

@boredsilly, you are not alone in the symptoms you’ve described. I’d like to introduce you to @bergordon, who has had 2 cardioversions, and to @cherriann, whose husband also has shortness of breath; you can view their posts in these discussions:
https://connect.mayoclinic.org/discussion/chest-tightness-even-after-stents/
https://connect.mayoclinic.org/discussion/any-new-help-for-long-time-chf-diagnosis/

@cognac, we have some very active, insightful discussions in the “Lung Health” group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?

@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.

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patriciapatricia – In response to your question, I’m seeing a therapist for Depression and she suggested it.

@kanaazpereira

Hello @boredsilly, @cognac, @patriciapatricia,

I’d like to welcome you, and thank you for joining Mayo Clinic Connect.

@boredsilly, you are not alone in the symptoms you’ve described. I’d like to introduce you to @bergordon, who has had 2 cardioversions, and to @cherriann, whose husband also has shortness of breath; you can view their posts in these discussions:
https://connect.mayoclinic.org/discussion/chest-tightness-even-after-stents/
https://connect.mayoclinic.org/discussion/any-new-help-for-long-time-chf-diagnosis/

@cognac, we have some very active, insightful discussions in the “Lung Health” group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?

@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.

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kanaazpereia, Did I respond to your questions sufficiently? Do you need more information on my lung health or need for back surgery? I so, please let me know.

@kanaazpereira

Hello @boredsilly, @cognac, @patriciapatricia,

I’d like to welcome you, and thank you for joining Mayo Clinic Connect.

@boredsilly, you are not alone in the symptoms you’ve described. I’d like to introduce you to @bergordon, who has had 2 cardioversions, and to @cherriann, whose husband also has shortness of breath; you can view their posts in these discussions:
https://connect.mayoclinic.org/discussion/chest-tightness-even-after-stents/
https://connect.mayoclinic.org/discussion/any-new-help-for-long-time-chf-diagnosis/

@cognac, we have some very active, insightful discussions in the “Lung Health” group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?

@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.

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kanaazpereia, I forgot. Thank you for suggesting joining the lung group. I’m going there now.

@hopeful33250

Hello @boredsilly

As @kanaazpereira mentioned, I have had 2 cardiopulmonary exercise tests and it is a good test, especially where breathing problems are concerned. It is different than the traditional stress exercise test in that you wear a facial mask apparatus over your mouth and your oxygen levels are recorded as well as the EKG (heart information). You will probably need to visit a larger medical center in order to have this test. Here is some information from Mayo regarding this test, http://www.mayoclinicproceedings.org/article/S0025-6196(11)60946-4/pdf

I would certainly recommend a second opinion. How long have you had this problem?

Teresa

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After another hospital stay, diagnosed with UTI-feeling better as yesterday went shopping & to my appointment at the clinic.Tried to make dinner, but had a relapse, starting to sweat & the same old tired feeling! Guess I overdid it!!

@hopeful33250

Hello @boredsilly

As @kanaazpereira mentioned, I have had 2 cardiopulmonary exercise tests and it is a good test, especially where breathing problems are concerned. It is different than the traditional stress exercise test in that you wear a facial mask apparatus over your mouth and your oxygen levels are recorded as well as the EKG (heart information). You will probably need to visit a larger medical center in order to have this test. Here is some information from Mayo regarding this test, http://www.mayoclinicproceedings.org/article/S0025-6196(11)60946-4/pdf

I would certainly recommend a second opinion. How long have you had this problem?

Teresa

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Sounds like you’ve been through this routine a few times, so probably know what next step is. If like me, it is back to the doctor and meds.

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