On going shortness of breath

Posted by boredsilly @boredsilly, Dec 6, 2017

Had cardio inversion, pacemaker, various inhalers, nebuliser/w/abutarol. ETC!! Dr. says no more to do, see a pulmonologist!

Liked by boredsilly

@boredsilly

Well here I go again: Tooka trip of about 150 miles, thoufgt I was going to pass out, rythum of the road affected my driving? Finall ygot home. What does this mean? Next, since I have had this breathing problem, my CPAP) water has changed. Prior to the problem, the water resavoir woul use less than 1/2 the water. Now, I have to refill it about 3AM each day. Uses 1 & 1/4 of the resovior. Whats up with that?

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@boredsilly– I have been using a C-pap for over 15yrs. and my guess is that you may of changed the adjustment for adding more moisture w/o knowing? I've done this before. I adjust mine based on the climate I'm in. When I'm at the coast I cut way back or I will get moisture in the hose and when I am in the desert I go the other way to add moisture for the dry air. I can always tell if the adjustments are right the next morning based on how my throat is feeling. Hope that helps!

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@boredsilly

Well here I go again: Tooka trip of about 150 miles, thoufgt I was going to pass out, rythum of the road affected my driving? Finall ygot home. What does this mean? Next, since I have had this breathing problem, my CPAP) water has changed. Prior to the problem, the water resavoir woul use less than 1/2 the water. Now, I have to refill it about 3AM each day. Uses 1 & 1/4 of the resovior. Whats up with that?

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I would definitely ask the company that helps you with the CPAP machine. I have only minor breathing problems but severe sleep apnea. I use hardly any water, although it's useless to say how much because there are different machines with different "reservoirs."

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Went to walk-in clinic yesterday for light headedness-everything checked out OK-now what?

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I feel you. I've been telling people for years till I'am blue in the face that I can't breathe. I have 13 stents and a pacemaker and still can't breathe. Finally went to the pulmonologist again. She said "I notice all your heart caths were only done on the left side of your heart". I thought a heart cath was a heart cath. She told me I need to be checked for pulmonary hypertension. This was the first time I ever heard of this. I don't know why they wouldn't have done it years ago. So I'm scheduled for a right heart cath next Thursday, March 15. From what I've read, I hope it isn't that but then again, I getting tired of being told they can't find anything wrong.

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Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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Thank you Teresa. I will definitely post after the cath how things went and if it is in fact PH.

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@racerjon

I look forward to hearing from you!

Teresa

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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Well, I'm still at a standstill. I had a right heart cath done yesterday and sure enough, it showed no pulmonary hypertension. This is bringing back memories as a child. I started having epilepsy at eight years old. Test after test showed nothing wrong. I was told I was acting out for attention until finally, at 13 years old, an EEG showed brain damage on the right temporal lobe. This is where I'am today. No one believes me that I can't breaths and since the tests show nothing, then there is nothing wrong.

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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I have the same problem, sorta kinda, first they told me that I had Pul. hypertension and after several years they did another RT CATH and said I didn't, I also have trouble breathing at times…have you seen a pulmonologist yet? I think they probably believe you but if their test is negative then they should look at other possible causes.

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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Yes, I have seen a pulmonologist. It was her who told me all the caths I've had were on the left side and I need to have a right side done. They did that yesterday and said I didn't have PAH. I'm beginning to think it all the medications I'm taking. They once put me on Renexa to try to help with the angina. One of the first warnings with Renexa is "Do not take this medication if you take Dilantin for seizures". Guess what I take for seizures? I don't know what or who to believe anymore. If I had the money I'd call for an appointment right now. I have reached the and of my rope with this.

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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Where are you located?

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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I'm located in NE Tennessee right near Virginia and North Carolina.

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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I had high pulmonary pressures 13 years ago and still do. Had the catherization done and was told I did not have pulmonary hypertension. Well, in 2015 I experienced Afib and long story short I went to Mayo. They found I have heart failure. Also, I have pul hypertension. I was told that because I was given a sedative for the previous catherizaton that is what brought my pressures in the normal range. Not sure this could apply to you but just letting you know.

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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Thank you so much for the information. This use to be frustrating. It is now angering me. (I know that is now good for me either)

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@hopeful33250

@racerjon

I look forward to hearing from you!

Teresa

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Went to the pulmonologist today. I told her that my breathing is getting worse. She said that they have tried everything possible that can help me to no avail. They don't know why it's getting worse or what is causing it. So, since the cardiologist and pulmonary doctor have no idea what is wrong, I sure don't. What's worse is when the doctor tells them that during my last pulmonary function test my O2 stats never dropped below 87%, the insurance company will take my oxygen from me. For the first time in my 64 years, I' am at a loss for what to do.

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