Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

@lisalucier

I remember that measuring the urine with the plastic bowl, @gardeningjunkie. Fond memories … 🙂

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@lisalucier and all… The plastic bowl is referred to as a "hat", and it sure is better than trying to catch urine in a tiny cup. When I recently had a UTI and went to urgent care I had to give a specimen of course. When the nurse went to get a cup I asked for the "hat" and she obliged.
I did have one at home when I was measuring my output for the urogynecologist but they do use them in many places for regular specimens.
JK

Liked by Lisa Lucier

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@lisalucier

Hi, @shirls1948 – just wanted to clarify what you meant when you talked about 3-way vaginal prolapse? Did you have prolapse in your rectum, bladder, urethra, small bowel, uterus or vagina? I had surgery over 7 years back to correct bladder and rectal prolapse.

How was your surgical recovery?

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My prolapse was rectal, bladder and uterus; vagina okay. Yet as mentioned I went to an ob/gyn doctor for the hysterectomy who also said he repaired the bladder and rectum during surgery (rectum he said was minor). The bladder tie up was a total failure, but as mentioned I know now my tissues were not strong enough to support the tie up and this doctor didn't realize it. A mesh was never mentioned. The bladder repair with mesh and sling was a cakewalk compared to my hysterectomy. I was naive not realizing what was in store with a hysterectomy. I lived on Oxycontin for a good 5 weeks, doped up and watched TV. I never thought of myself as a sissy before. Even my insurance called and talked me into trying another pain med, which I did and it provide barely noticeable relief and went back on the oxy. Believe me I still had to deal with pain even on oxy. Now realize I am lucky because when the day came to give up oxy I never missed it or wanted it again. It will be a shame for others if oxy is banned. I still wonder about my hysterectomy gyn, as he left the practice a month after my surgery. As mentioned ladies- do your homework. I do for all my doctors now.

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@gardeningjunkie
I am so sorry you had to go through such pain but glad the oxy was easy to get off of.
When my doctor told me he was going to do a hysterectomy along with my bladder prolapse surgery, I was surprised and did not want to do it. After I understood that it is mostly because the uterus is in the way and it makes the prolapse surgery with the robot so much shorter and less invasive, I agreed to the hysterectomy. I did not have a lot of pain from the surgery at all. I normally take hydrocodone for my spinal stenosis and stopped taking it while in the hospital since I knew they were giving me oxy and tylenol. After 2 days I went home and resumed my normal doses of hydrocodone I take for my back. I didn't need any extra and really the only pain I had after surgery related to the surgery was when they came in and took the tubing out of one of the tiny holes in my tummy. Beyond that I don't recall anything other than my back continuing to hurt like it always does even on the hydrocodone. As you point out, there is some pain even pain medicine does not take away.
Sounds like this doctor may have not done everything perfectly for you. Reminds me of the orthopedic surgeon that did my ankle surgery in 2011. My ankle still hurts and no one knows where he is now.

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I agree about my the doctor that did my hysterectomy lacked skills surgical skills, perhaps he should just stick to delivery babies vaginally and not even to a c-section. I have no idea how many hysterectomy's he even preformed before me. I'm glad you found a good prolapse surgeon to begin with. Is there anything that can be done for your ankle to repair it?

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@gardeningjunkie

My surgeon bladder prolapse surgery was Christian Quintero, MD FACOG with the Nevada School of Medicine in Las Vegas Nevada. A wonderful gentile and kind man. All he does is female pelvic and reconstructive surgery. It's been 4 years and no issues. I was especially concerned because I have severe Allergic Contact Dermatitis, a form of allergic eczema in which I must avoid specific contacts for life and feared rejection. I was assured the components were not on my Patch Tested list of allergens. I have had no allergic issues with the mesh or sling.
I used to have to go to the restroom at every store on a shopping trip and get up at least 3 times a night to urinate. Now on shopping trips I never to use a public bathroom. I still need to get up once a night to urinate but I do love my evening cup of decaf. My big mistake when I had my hysterectomy (due to prolapse) 5 years ago is that I went to a basic ob/gyn doctor in my local town. He removed the uterus ok and said he tied up the bladder. He was not a bladder specialist and it not only didn't work but I could still feel and see the dropped bladder which hung slightly below the vulva. It didn't feel comfortable, it's an odd sensation I would never get used to I still needed to urinate frequently. He did not put in the mesh or add a urethra sling. I did my homework and traveled to a highly regarded specialist. Seems like Gail did her homework initially; wish I hadn't assumed any ob/gyn doctor could do it.

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Hello Gardeningjunkie (Love your name)…I have a question you speak of your dropped bladder which hung slightly below the vulva after your hysterectomy when the dr. examined you did they feel or see your dropped bladder? I'm asking because I've had the bladder prolapse corrected with stitching no mesh and have had a sensation of a ball in side of me it moves around I went to a pelvic pain spezlt. and they are saying it is 3 different pelvic nerves and that the surgery was a success also had multi.CAT scans and everything appears fine I had to have 2 of the stiches removed du2 them eroding thru the vaginal wall and the Uro/Gyn said everything was tight and that some women can take years for the nerves to settle down I've tried so many different meds. and they all made me ill I've had much luck with an herbalist I'm just curious as to how you were diagnosed with the bladder dropping again ..thanking you in advance

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After the first tie up along with hysterectomy I felt that ball feeling you are talking about. But unlike you I could see some tissue, smooth and slimy right at the opening of the vagina. I am pretty sure before prolapse all that was there was an opening at the vagina. What I felt was not pain; it felt like an object was there that shouldn't have been. The object itself didn't feel like it was part of my body,more like a foreign object, no nerve feeling in this tissue, but my vulva felt it. Also like you either stitches didn't dissolve or a staple was left after my initial surgery. After I recovered from hysterectomy my husband felt scraped during intercourse and one time was scratched and cut, even bled a bit. I went back to the initial surgeon who once again looked inside my vagina and cut a few things out. He cauterized the cuts, not any fun just giving me a local injection to numb the area high in vagina to cut these areas out. Yes once again I was sore for weeks. He told me the sensation I had of the tissue between my legs was normal and no issue. I couldn't imagine feeling this the rest of my life and of course it was most noticeable when I walked. I had it.
I saw another medical group who had a women's clinic and this ob/gyn recommended a women's pelvic repair surgeon who she said was a miracle worker for many of her patients and all he did was bladder repair. She wouldn't recommend any doctor in my town as the basic ob/gyn doctor wasn't specialized enough for this surgery.She told me what I was seeing and feeling was my bladder. The repair surgeon I saw said and that the tie up I had could not work because of thinning support tissue and yes I was seeing and feeling my bladder. He had great technology to show me what had happened and what he was going to do.
I was never told it was nerves feeling this way as clearly something was level with my vaginal opening. Evidently you have nothing view-able from the outside and you have had numerous doctors review your case. I assume you have seen a bladder specialist who is licensed to do the mesh surgery.

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Does prolapse has any effects on pregnancy?

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@gardeningjunkie

After the first tie up along with hysterectomy I felt that ball feeling you are talking about. But unlike you I could see some tissue, smooth and slimy right at the opening of the vagina. I am pretty sure before prolapse all that was there was an opening at the vagina. What I felt was not pain; it felt like an object was there that shouldn't have been. The object itself didn't feel like it was part of my body,more like a foreign object, no nerve feeling in this tissue, but my vulva felt it. Also like you either stitches didn't dissolve or a staple was left after my initial surgery. After I recovered from hysterectomy my husband felt scraped during intercourse and one time was scratched and cut, even bled a bit. I went back to the initial surgeon who once again looked inside my vagina and cut a few things out. He cauterized the cuts, not any fun just giving me a local injection to numb the area high in vagina to cut these areas out. Yes once again I was sore for weeks. He told me the sensation I had of the tissue between my legs was normal and no issue. I couldn't imagine feeling this the rest of my life and of course it was most noticeable when I walked. I had it.
I saw another medical group who had a women's clinic and this ob/gyn recommended a women's pelvic repair surgeon who she said was a miracle worker for many of her patients and all he did was bladder repair. She wouldn't recommend any doctor in my town as the basic ob/gyn doctor wasn't specialized enough for this surgery.She told me what I was seeing and feeling was my bladder. The repair surgeon I saw said and that the tie up I had could not work because of thinning support tissue and yes I was seeing and feeling my bladder. He had great technology to show me what had happened and what he was going to do.
I was never told it was nerves feeling this way as clearly something was level with my vaginal opening. Evidently you have nothing view-able from the outside and you have had numerous doctors review your case. I assume you have seen a bladder specialist who is licensed to do the mesh surgery.

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Thank you for your reply and yes I have had surgery for both dr.'s being URO/GYN"S and the last dr. I saw 1 yr ago that removed the eroded stiches said I need no other surgerys and to go see the pelvic pain dr. and when I did last year he gave me a nerve block to the ingual nerve and it was horriable and now this year my inns. doesn't cover him I really don't want to go back to the medial dr.'s every time I saw them I felt worse (the last dr. that removed the stiches did make me feel better) but there is no mesh to be done…I just pray I can get rid of this feeling I am currently doing hops and valerian root but some times this doesn't work as well so I just keep at my cardio and my yoga that seems to be the best thing for me it isn't getting any worse but sometimes I don't think it is any better my gyn doesn't think I will get any better ????

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I hope time will get you healed. My cardiologist recommended Valerian Root to help lower my blood pressure. I am on strong BP meds now, but still spike if I get excited. Watching Game of Thrones would significantly raise my blood pressure! At night I tried the 500 mg, but I felt too tired in the afternoon. It's hard to find the 250 mg, but did and take that now. This lower dose is still calming and the afternoon fatigue is only mild if any. For those that are unfamiliar with it, Valerian Root is the base for Valium, the tranquiler but it is otc. Now my blood pressure is stable on my BP meds and I do believe I feel calmer. I really don't want to take a px tranquilizer to drop my blood pressure. Valerian Root is the stinkiest med I have ever taken, get the water glass filled and I don't touch capsule with my fingers, but shake one in the cap and quickly swallow. I keep the bottle inside a recycled thick plastic protein power container as even the closed bottle stinks. It smells like the worst foot odor ever, yet that is a sign that it is real Valerian.

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@gardeningjunkie

I hope time will get you healed. My cardiologist recommended Valerian Root to help lower my blood pressure. I am on strong BP meds now, but still spike if I get excited. Watching Game of Thrones would significantly raise my blood pressure! At night I tried the 500 mg, but I felt too tired in the afternoon. It's hard to find the 250 mg, but did and take that now. This lower dose is still calming and the afternoon fatigue is only mild if any. For those that are unfamiliar with it, Valerian Root is the base for Valium, the tranquiler but it is otc. Now my blood pressure is stable on my BP meds and I do believe I feel calmer. I really don't want to take a px tranquilizer to drop my blood pressure. Valerian Root is the stinkiest med I have ever taken, get the water glass filled and I don't touch capsule with my fingers, but shake one in the cap and quickly swallow. I keep the bottle inside a recycled thick plastic protein power container as even the closed bottle stinks. It smells like the worst foot odor ever, yet that is a sign that it is real Valerian.

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Yes I take Valerian Root with hops both in capsule form up to 3 times a day always at night it is a nerve tonic so it really dose help with my pelvic nerve pain I work with an herbalist I had to do a lot of cleansing ect. but it has made me feel so much better when I was seeing dr. after dr. after dr….the meds made me very ill so the only meds I do take is for my thyroid and it is a more natural form of the drug then synthic I also sue marshmallow root tea and slippery elm capsules sometimes the nerve pain makes my bladder hurt and this keeps me pain free time has gotten me better thank you I'm glad that your all fixed so to speak

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Traditional medicine has failed you and me for certain conditions and I understand studying and seeking alternative ways to find relief and improvement. . Hope is what kept me going during times when a chronic condition I have tortured me and like you because of my obsessive searching and blogging have improve my issues dramatically based on non-traditional medicine. (I am not saying traditional medicine is worthless, it is most helpful in most situations, just not all.) Going beyond traditional medicine is the reason I lead a normal, happy and productive life once again. True, it is disciplined. I have mentioned this before, but when friends talk about their bucket list and ask me what's on mine the answer is simple. I want to live pain free the rest of my life.

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@gardeningjunkie

My surgeon bladder prolapse surgery was Christian Quintero, MD FACOG with the Nevada School of Medicine in Las Vegas Nevada. A wonderful gentile and kind man. All he does is female pelvic and reconstructive surgery. It's been 4 years and no issues. I was especially concerned because I have severe Allergic Contact Dermatitis, a form of allergic eczema in which I must avoid specific contacts for life and feared rejection. I was assured the components were not on my Patch Tested list of allergens. I have had no allergic issues with the mesh or sling.
I used to have to go to the restroom at every store on a shopping trip and get up at least 3 times a night to urinate. Now on shopping trips I never to use a public bathroom. I still need to get up once a night to urinate but I do love my evening cup of decaf. My big mistake when I had my hysterectomy (due to prolapse) 5 years ago is that I went to a basic ob/gyn doctor in my local town. He removed the uterus ok and said he tied up the bladder. He was not a bladder specialist and it not only didn't work but I could still feel and see the dropped bladder which hung slightly below the vulva. It didn't feel comfortable, it's an odd sensation I would never get used to I still needed to urinate frequently. He did not put in the mesh or add a urethra sling. I did my homework and traveled to a highly regarded specialist. Seems like Gail did her homework initially; wish I hadn't assumed any ob/gyn doctor could do it.

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Dear Gardeningjunkie,
Thanks for sharing your story. It’s very similar to mine. The only thing that is different is I am still looking for a top urogynecologiest in US to do my surgery.
Please tell me is your doctor full name Christian L Quintero Arias? And he works in Florida? I will very much appreciated if you answer. I am intrigued buy the success of your surgery, perhaps I can use the same doctor as you.
When I google the name that you pointed only this doctor comes out – Christian L Quintero Arias/ Florida.

Thank you.

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Christian Quintero, MD, FACOG (stands for the additonal criteria to qualify as a fellow of The American Congress of OB & GYN's)
University of Nevada School of Medicine
Department of Obstetrics and Gynecology
Women's Healthcare Center of Las Vegas
2231 W Charleston Blvd
Las Vegas, Nevada 89102
702-944-2805

My main residence is in the Mid-West, but our winter home is about 2 1/2 hours from Vegas. My husband got a room right next to the hospital as the mesh surgery requires an overnight stay. It would be challenging not to be within driving distance as you need several pre-op checks. Medicare paid for this procedure. My mistake the first time was going to a basic OB/GYN to repair bladder along with my hysterectomy just an hour from my home in Springfield, MO. I needed a specialist trained in the newest techniques and this was done vaginally, no exterior cutting.
This may be too far for you to travel, perhaps you can call his office and ask for a doctor trained in bladder prolapse as he is closer to you. Or if they can't perhaps they can recommend how to research for a specialist with training like Dr. Quinteros. If you live in Florida I am sure there would be good doctors available. Also might try American Congress of OB/GYN's for doctors in your area that specialize in the latest procedures, then start working the internet for reviews of this doctor.

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@gardeningjunkie

Christian Quintero, MD, FACOG (stands for the additonal criteria to qualify as a fellow of The American Congress of OB & GYN's)
University of Nevada School of Medicine
Department of Obstetrics and Gynecology
Women's Healthcare Center of Las Vegas
2231 W Charleston Blvd
Las Vegas, Nevada 89102
702-944-2805

My main residence is in the Mid-West, but our winter home is about 2 1/2 hours from Vegas. My husband got a room right next to the hospital as the mesh surgery requires an overnight stay. It would be challenging not to be within driving distance as you need several pre-op checks. Medicare paid for this procedure. My mistake the first time was going to a basic OB/GYN to repair bladder along with my hysterectomy just an hour from my home in Springfield, MO. I needed a specialist trained in the newest techniques and this was done vaginally, no exterior cutting.
This may be too far for you to travel, perhaps you can call his office and ask for a doctor trained in bladder prolapse as he is closer to you. Or if they can't perhaps they can recommend how to research for a specialist with training like Dr. Quinteros. If you live in Florida I am sure there would be good doctors available. Also might try American Congress of OB/GYN's for doctors in your area that specialize in the latest procedures, then start working the internet for reviews of this doctor.

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Thanks for the information. I will call his office.
I am not from US, so for me the location of the doctor it’s not that important.
I just need him to be very skilled.
Me too I had hysterectomy done and I experience prolapsed bladder.
I did a lots of Kegel exercises which helped alot. But I still feel that I need surgery because when I’m tired I also feel heaviness in the pelvic floor. I can’t exercise like before and do yoga. I only do stretching and some easy positions in yoga.
I want to ask you if you are not afraid of the mesh since it’s been proven that it gives a lot of complications.
I have found a few good doctors in US that can do the surgery for prolapse bladder without the use of mesh. The doctor that I like the most is in Mayo clinic in Rochester but since I am self paid it is very expensive for the surgery, close to $40,000.
Therefore I am trying to find international insurance that can cover this expense. If anyone on this platform knows about international insurance please contact me.
Than you

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I wish you the best of luck….I too had the bladder lift repair mine was done with stiches no mesh I just wanted to share if you are looking on the East Coast DO NOT USE Dr. Howard Goldstein in the state of DE …. he is a URO/GYN and my surgery was successful I had a pelvic nerve condition and the surgery made it worse he did not know what was wrong with me and wanted to keep doing surgery to try to figure it out I was misdiagnosed for over 1 and 1/2 years seeing over 22 dr.s trying to figure out what was wrong with me he never referred me to other dr.'s within the practice (with this practice thru Christiana care the only one in the state of DE) you can not see any other dr. within that practice so he was refring me to dr.'s for my back, a hernia, then told me I had interstitial cycist never did he refer me to a nerve dr he wanted to do a hysterectomy also refred me to p/t for pelvic floor muscle spasams . I had to go out of state to find a good dr. so this I tell you and any other women on this site so they do not have to go thru the hell I did the out of state dr. (also an URO/GYN) told me after just one visit that it was a nerve issue and sent me to a pelvic pain specializes again just do your homework and make sure it is done by a UR)/GYN….the funny thing is I did all my homework and talked with other dr.s in regards to referring him again he was a good surgent just not if you experience any problems afterwards……I am glad I had the surgery I no longer feel as if my insides are falling out with each step I take…Take care

Liked by gardeningjunkie

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