I am being referred to rochester mayo clinic for second opinions

Posted by chassy @chassy, Apr 24, 2016

I am being referred to rochester mayo clinic for second opinions, for back pain i have had 3 micro disechtomies and 2 fusions L2 don to L5 S1. I have more pain now. I have been looking at the pain center where they have the 2 day or 3 weekbprogram. I do not know yet if that is what my referring doctor wants me to participate in or if its just to have a whole team “fresh eyes” to look at me. I am worried about the pain i am in. I understand it is not ideal to take pain meds for a long peruod of time but the option we are looking at next is a spinal cord stimulator. I guess what i am wondering is, at the Mayo will i be required to go off all pain meds and then see if a SCS will help? If anyine has any thoughts or has a SCS, i would like to know how or if it helps with the pain?? Thank you

Liked by Deena

Your spine will improve with the hip lift .Pain sucks I know good luck and

god bless Deena

REPLY

Hi @chassy. Welcome to Connect! There are two ongoing discussions which may interest you in which members are discussing chronic pain and specifically SCS- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/ and https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. I’d suggest you read through those discussions and chat with people like @ladyjane85, @zjandre, @seanbeck and @dbentley who may have some insights and be able to provide some support.

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@kelseydm

Hi @chassy. Welcome to Connect! There are two ongoing discussions which may interest you in which members are discussing chronic pain and specifically SCS- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/ and https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. I’d suggest you read through those discussions and chat with people like @ladyjane85, @zjandre, @seanbeck and @dbentley who may have some insights and be able to provide some support.

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I am on my 2nd Spinal Cord Stimulator and I also have a Pain Pump that

pumps Hydromorphone, (Hydrocodone & Morphine) and Fentanyl into my body 24

hours per day. I also can take 4 Hydrocodone a day if necessary, I

usually take at least 2 each day. My average Pain level is 5 on a Good

Day and higher on Bad Days. Most people would have had gotten relief by

now but not me.

My 1st Stimulator was the type where you felt the vibrations in your

body, it really never gave me any relief. When my battery needed

replacing after 7 years, they implanted the newer brand, Nervo which has

higher frequency of stimulations that you can not feel, you don’t even know

it is on.

The remote control is set for 3 programs with 8 stages on each program.

You have 24 potential different settings, so there should be one that should

give you relief. When you have gone through these 24 settings, it can be

reprogramed with 3 more programs and 24 more settings. There are hundreds

of potential settings. I was told that the majority of patients will

find a program that gives them relief by the time that have gone thru 4 or 5

programs. Lucky me, I have gone through about 10 programs and 80

settings and still have not found the right one for me.

From what I understand, the Nervo stimulator has had rave reviews by a

number of doctors. It very may work for you. I would definitely try

it before they put a Pain Pump, which will definitely make you a Drug

Addict.

Good Luck and God Bless You!

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@kelseydm

Hi @chassy. Welcome to Connect! There are two ongoing discussions which may interest you in which members are discussing chronic pain and specifically SCS- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/ and https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. I’d suggest you read through those discussions and chat with people like @ladyjane85, @zjandre, @seanbeck and @dbentley who may have some insights and be able to provide some support.

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from @ladyjane85 to @chassy I had the SCS for over a year

due to my chronic back pain with fusions, rod a screws twice. I had it

removed due to no relief of pain. It is supposed to block your brain

from feeling the pain, but feeling this :vibration” instead. It does

not work any better than a TENS unit but stronger. My 7 to 9 pain was

not fooled. So now I have had 5 surgeries on my back which keeps

deterioratng above the fusions. I am unable to take meds due to great

sensitivity to over 40 pain killers giving me various side effects

which have even put me in the hospital. The wiring and battery pack of

the stimulator requires quite a long incision. Of course, they will

give you a few days of trial that only demands a little incision. I

psyched myself up that it would work, so went through with it. They

now say there is nothing they can do to relieve my pain – currently

having massage and some stimulation with heat by a physical therapist

as long as medicare allows. This feels good while it is being done,

then I slowly limp out. No relief.

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