Share this:
chassy
@chassy

Posts: 1
Joined: Apr 25, 2016

I am being referred to rochester mayo clinic for second opinions

Posted by @chassy, Apr 24, 2016

I am being referred to rochester mayo clinic for second opinions, for back pain i have had 3 micro disechtomies and 2 fusions L2 don to L5 S1. I have more pain now. I have been looking at the pain center where they have the 2 day or 3 weekbprogram. I do not know yet if that is what my referring doctor wants me to participate in or if its just to have a whole team “fresh eyes” to look at me. I am worried about the pain i am in. I understand it is not ideal to take pain meds for a long peruod of time but the option we are looking at next is a spinal cord stimulator. I guess what i am wondering is, at the Mayo will i be required to go off all pain meds and then see if a SCS will help? If anyine has any thoughts or has a SCS, i would like to know how or if it helps with the pain?? Thank you

Liked by Deena

REPLY

Your spine will improve with the hip lift .Pain sucks I know good luck and
god bless Deena

Hi @chassy. Welcome to Connect! There are two ongoing discussions which may interest you in which members are discussing chronic pain and specifically SCS- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/ and https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. I’d suggest you read through those discussions and chat with people like @ladyjane85, @zjandre, @seanbeck and @dbentley who may have some insights and be able to provide some support.

@kelseydm

Hi @chassy. Welcome to Connect! There are two ongoing discussions which may interest you in which members are discussing chronic pain and specifically SCS- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/ and https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. I’d suggest you read through those discussions and chat with people like @ladyjane85, @zjandre, @seanbeck and @dbentley who may have some insights and be able to provide some support.

Jump to this post

I am on my 2nd Spinal Cord Stimulator and I also have a Pain Pump that
pumps Hydromorphone, (Hydrocodone & Morphine) and Fentanyl into my body 24
hours per day. I also can take 4 Hydrocodone a day if necessary, I
usually take at least 2 each day. My average Pain level is 5 on a Good
Day and higher on Bad Days. Most people would have had gotten relief by
now but not me.

My 1st Stimulator was the type where you felt the vibrations in your
body, it really never gave me any relief. When my battery needed
replacing after 7 years, they implanted the newer brand, Nervo which has
higher frequency of stimulations that you can not feel, you don’t even know
it is on.

The remote control is set for 3 programs with 8 stages on each program.
You have 24 potential different settings, so there should be one that should
give you relief. When you have gone through these 24 settings, it can be
reprogramed with 3 more programs and 24 more settings. There are hundreds
of potential settings. I was told that the majority of patients will
find a program that gives them relief by the time that have gone thru 4 or 5
programs. Lucky me, I have gone through about 10 programs and 80
settings and still have not found the right one for me.

From what I understand, the Nervo stimulator has had rave reviews by a
number of doctors. It very may work for you. I would definitely try
it before they put a Pain Pump, which will definitely make you a Drug
Addict.

Good Luck and God Bless You!

@kelseydm

Hi @chassy. Welcome to Connect! There are two ongoing discussions which may interest you in which members are discussing chronic pain and specifically SCS- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/ and https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. I’d suggest you read through those discussions and chat with people like @ladyjane85, @zjandre, @seanbeck and @dbentley who may have some insights and be able to provide some support.

Jump to this post

from @ladyjane85 to @chassy I had the SCS for over a year
due to my chronic back pain with fusions, rod a screws twice. I had it
removed due to no relief of pain. It is supposed to block your brain
from feeling the pain, but feeling this :vibration” instead. It does
not work any better than a TENS unit but stronger. My 7 to 9 pain was
not fooled. So now I have had 5 surgeries on my back which keeps
deterioratng above the fusions. I am unable to take meds due to great
sensitivity to over 40 pain killers giving me various side effects
which have even put me in the hospital. The wiring and battery pack of
the stimulator requires quite a long incision. Of course, they will
give you a few days of trial that only demands a little incision. I
psyched myself up that it would work, so went through with it. They
now say there is nothing they can do to relieve my pain – currently
having massage and some stimulation with heat by a physical therapist
as long as medicare allows. This feels good while it is being done,
then I slowly limp out. No relief.

Please login or register to post a reply.