Entire spine hurts - Due to Fibromyalgia?

Posted by frustrated47 @frustrated47, Dec 5, 2018

Hi. I am a 47 year old female, diagnosed with fibromyalgia in 2004. Now my entire spine hurts from scull to SI joints. I have 3 bulging disks cervical, 4 disks lumbar, 2 thorasic. My lower back feels like it’s being crushed all the time. all the nerves in my legs hurt. I have muscle spasms, stiffness, joint pain, nerve pain, degenerative risk disease, and I can hardly walk. Sitting kills me!
Been on lyrica many years. I’m wondering if anyone out there is going through this with fibro. My doctors are saying all these symptoms are caused from fibro but I’m not convinced.

@anniemaggie

I ignore it, all my life ignore it, because I have so many terrible other thing. Pain 24 hours a day since 1984.

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@anniemaggie I'm so sorry your in so much pain. may I ask what are you on now?

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@frustrated47 Its tough that's why we are all pain warriors. From what you have posted the back pain doesn't sound like its coming from fibro. Have you seen a orthopedic or neurosurgeon about your back? I have a fracture in my L2 and hence have a bulging disc and pinched nerves into my legs from my back which are burny pain I rely on Epsom Salts , heating pad, ice to help me get through. Fibro as you know affects the muscle ,and tissue along with nerves the CNS .

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@mamacita Hope your having a good day today . I just came back from my chiropractor so am feeling pretty good right now. He adjusted my cranial nerve and hope I don't have any vertigo. Merry Christmas Linda

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@lioness

@mamacita Hope your having a good day today . I just came back from my chiropractor so am feeling pretty good right now. He adjusted my cranial nerve and hope I don't have any vertigo. Merry Christmas Linda

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Dear Lionness: Yes, my last mri showed 2 bulging disks and pinched nerves and you are correct as I have been lucky to have a great chiropractor who helps much. But, there is still pain and just to lie suffering hopefully waiting for the pain to subside is about all I can do as I do not want to get hooked on pain meds. Dear Lionness, there are many of us who suffer as you do and we cry for you. You are not alone, as we are here with you. With great caring for you, peach.

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@peach414144

Dear Lionness: Yes, my last mri showed 2 bulging disks and pinched nerves and you are correct as I have been lucky to have a great chiropractor who helps much. But, there is still pain and just to lie suffering hopefully waiting for the pain to subside is about all I can do as I do not want to get hooked on pain meds. Dear Lionness, there are many of us who suffer as you do and we cry for you. You are not alone, as we are here with you. With great caring for you, peach.

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@peach414144 Thank you for your kind words I was just at my chiropractor today again he treated me for my vertigo I,ve been having ,working on my cranial nerve I'm grateful for him ,my neck feels much better not as sore I'm keeping my fingers crossed .He did tell me to put heat on as this brings healing so it felt good..

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@peach414144

Dear Lionness: Yes, my last mri showed 2 bulging disks and pinched nerves and you are correct as I have been lucky to have a great chiropractor who helps much. But, there is still pain and just to lie suffering hopefully waiting for the pain to subside is about all I can do as I do not want to get hooked on pain meds. Dear Lionness, there are many of us who suffer as you do and we cry for you. You are not alone, as we are here with you. With great caring for you, peach.

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I have severe back pain, all narrowing of vertebrae, mild bulging discs, scoliosis, 8 shots at once made it worse. I lay on back with a couple pillows, at top of spine only way to control pain. Lucky I don't have a job because sitting in a chair kills my back even with a lot of pillows.

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@anniemaggie

I have severe back pain, all narrowing of vertebrae, mild bulging discs, scoliosis, 8 shots at once made it worse. I lay on back with a couple pillows, at top of spine only way to control pain. Lucky I don't have a job because sitting in a chair kills my back even with a lot of pillows.

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@anniemaggie I know ,i dont like to take them either and lately I,ve been taking more but I also rely on ice as its anti-inflammatory and then put a heating pad on this brings blood to service and it just feels good.When Im hurting all over from fibromyalgia I take a hot 🚿 feels good I usually stay in longer then 10 minutes dont tell the water patrol lol Feel better

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@lioness

@anniemaggie I'm so sorry your in so much pain. may I ask what are you on now?

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I only take ibuprofen for all pain, refuse opieds. And others, these work great for all pain. Just broke right ankle can't stand for 2 months in rehab, stopped ibuprofen handling pain, but for all pain take 2-3 at a time, rheumatologist said I can take 14 in a day, most taken is 5. I take lyrica for severe tingling in right arm, cutting back to one pill a day. I gained 25 lbs when started I 2005. Lyrica does not touch anything else not even the fibro, diagnosed in 84. I ignore it have to, have 4 scary rare diseases, 5 autoimmunes and epilepsy voice tremors only take one depakote., Severe fingers tremors can't test diabetes, osteoporosis started fosamax again, it can hurt your kidneys, but fractures scare me now, Dr said break ankle again(broke twice) will never walk again. have the lottery of life. Just read on autoimmune web site that fibro is Not an autoimmune it seems to pair up with other autoimmunes. My kidney Dr said hopefully in 10 yrs they will figure out all this mess I have. Been going to a DO Dr they specialize in manipulations, she does gentle ones, no pain but in 15 mins she fixes back pain for a couple of months, til it slides back. It's amazing what she does and how it works. I had a cortisone shot didn't help, then 8 shots at once in lower back awful pain, pain Dr said hold still, didnt help, then another cortisone that helped.

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@anniemaggie

I only take ibuprofen for all pain, refuse opieds. And others, these work great for all pain. Just broke right ankle can't stand for 2 months in rehab, stopped ibuprofen handling pain, but for all pain take 2-3 at a time, rheumatologist said I can take 14 in a day, most taken is 5. I take lyrica for severe tingling in right arm, cutting back to one pill a day. I gained 25 lbs when started I 2005. Lyrica does not touch anything else not even the fibro, diagnosed in 84. I ignore it have to, have 4 scary rare diseases, 5 autoimmunes and epilepsy voice tremors only take one depakote., Severe fingers tremors can't test diabetes, osteoporosis started fosamax again, it can hurt your kidneys, but fractures scare me now, Dr said break ankle again(broke twice) will never walk again. have the lottery of life. Just read on autoimmune web site that fibro is Not an autoimmune it seems to pair up with other autoimmunes. My kidney Dr said hopefully in 10 yrs they will figure out all this mess I have. Been going to a DO Dr they specialize in manipulations, she does gentle ones, no pain but in 15 mins she fixes back pain for a couple of months, til it slides back. It's amazing what she does and how it works. I had a cortisone shot didn't help, then 8 shots at once in lower back awful pain, pain Dr said hold still, didnt help, then another cortisone that helped.

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@anniemaggie How,d you get so lucky lol. poor thing you are certainly a warrior to survive all you have Be careful of the Ibuprofen and other otc meds I know when I had my heart by pass the Dr put me on 3Ibuprofen but only for a short period but I didn't have what you do. I'm glad you are going to a DO Dr I do too .How did you stand 8shots that Dr should be tarred and feathered .With my back problems a hot shower really helps and I use pain rubs all over my back I found a long handeled backbrush with padding on end I use of course I am a widow like I mentioned before ice bag and heating pad are my friends. Hope my suggestions help .Bless you warrior .

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@lioness

@suecreader yes this is it has more magnesium for one that my My research in the fibromyalgia group said pluwe n I r more magnesium plus other good stuff our bodies need No drugs I've been on it for yrs and have gotten everyday relief but when a flare comes up I don't then think it's as bad plus I do Ice for inflammation heating pad at times hot showers help this is something we have to find ways that help us Fibro warriors

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I'm taking a high dose magnesium supplement too actually – only this is termed "leg cramp" supplement. According to the pharmacist it can assist in sleeping …while I have restless legs as the primary issue, I also have been diagnosed at Mayo with fibro (which I may have mentioned before) and chronic fatigue. However, if I can sleep my fibro can go up to two-three months without a flare if I take care. Without sleep it feels like everything goes downhill fast. I too like to use ice and hot showers or baths; however, I haven't thought of the closely timed heat and ice regime. Thanks for that tip!

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@suecreader

I'm taking a high dose magnesium supplement too actually – only this is termed "leg cramp" supplement. According to the pharmacist it can assist in sleeping …while I have restless legs as the primary issue, I also have been diagnosed at Mayo with fibro (which I may have mentioned before) and chronic fatigue. However, if I can sleep my fibro can go up to two-three months without a flare if I take care. Without sleep it feels like everything goes downhill fast. I too like to use ice and hot showers or baths; however, I haven't thought of the closely timed heat and ice regime. Thanks for that tip!

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@suercreader My chiropractor said 15-20 minutes ice followed by heat rest a little in between. I was there today and he first puts the tens on to relax my muscles with ice on top being ice is a anti inflammatory this helps to take the swelling down first from the tissues and whatever else is swollen. I use it all the time at home and love it for its comfort

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Thank you again lioness – you are so prompt and thorough with your answers. I appreciate that. I have heard that a tens unit might help with restless legs . . . they also give you relief with other muscles? Where exactly does your chiropractor put the tens?

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