Fibromyalgia?

Posted by frustrated47 @frustrated47, Dec 5, 2018

Hi. I am a 47 year old female, diagnosed with fibromyalgia in 2004. Now my entire spine hurts from scull to SI joints. I have 3 bulging disks cervical, 4 disks lumbar, 2 thorasic. My lower back feels like it's being crushed all the time. all the nerves in my legs hurt. I have muscle spasms, stiffness, joint pain, nerve pain, degenerative risk disease, and I can hardly walk. Sitting kills me!
Been on lyrica many years. I'm wondering if anyone out there is going through this with fibro. My doctors are saying all these symptoms are caused from fibro but I'm not convinced.

Hello @frustrated47, welcome to Mayo Clinic Connect. I'm glad you found us and want to let you know that you are certainly not alone. I'm tagging our moderator Kanaaz @kanaazpereira to see if we should move your post to the following discussion where you can meet other members with similar symptoms and your post will have more visibility.

Groups > Chronic Pain > fibromyalgia pain
https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/

Is there a specific reason that you are not convinced your symptoms are caused from fibromyalgia? I did find an excellent video from Mayo Clinic by Fibromyalgia specialist, Dr. Barbara Bruce, who discusses challenges faced when diagnosing the disease.

John

Liked by lioness, toomanyoars

I have fibromyalgia , lower back bulging and herniated discs , and some osteoarthritis in the hips , I have much empathy for you . I will be starting a work up at mayo in Jan. I had success with cortisone injections to the lumbar spine about 3 years ago that was very helpful with pain management , I have experienced a relapse this winter and have some autoimmune skin symptoms as well . Pain management clinics that are staffed by anesthesiologist are the most well trained in this procedure . Don’t give up your symptoms sound multifactorial

Lisa Sue

@soteloli Ive had fibromyalgia along time over 30 yrs my back problems came from a fractured back not fibromyalgia I have a bulging disc and burning pain in my thighs in particular .Fibromyalgia is muscle pain ,nerve pain My rheumatologist diagnosed with hitting the pressure points you have 18 of them I had 11 when Dr pushes on them you bout go through the roof Im a retired nurse and the work I did helped now that I'm retired I am still active and do chair and water exercises Lyrica helped but then it stopped so I have used a product called Fibro-Malic for years along with exercises hope this helps

Have you looked into some of the anti inflammatory diets? Many of the foods we eat cause inflammation. It won't be a cure for fibromyalgia, but could lessen the symptoms…

@terri672

Have you looked into some of the anti inflammatory diets? Many of the foods we eat cause inflammation. It won't be a cure for fibromyalgia, but could lessen the symptoms…

Jump to this post

@terri672 Yes I have and taking Ginger @Tumeric really helps as well .Thanks to @john for sending this article from Dr. Terry Wahl I am going to start a gluten free diet next Monday .A friend who is on insulin has been gluten free and now her Dr told her she will be able to get of her insulin soon this is a big encouragement to me. Thanks terri

Hello this Beryl Sounds good that you are going to start the diet lioness Be good if it works for you. John is such a helpful fellow and is there for everybody I am in Sicily for the winter
but will be with you all as often as I can. I hope you all have a wonderful Christmas Beryl

@beryl

Hello this Beryl Sounds good that you are going to start the diet lioness Be good if it works for you. John is such a helpful fellow and is there for everybody I am in Sicily for the winter
but will be with you all as often as I can. I hope you all have a wonderful Christmas Beryl

Jump to this post

@beryl Thank you beryl I,m anxious to start it from what Dr Wahl said it sure helped her with her MS and any autoimmune diseases will keep posting on my feelings .Merry Christmas to you also.

I have severe back pain with similar symptoms, but it is not related to fibromyalgia. I would see a rheumatologist that specializes in fibromyalgia. I was diagnosed in 1984 and it was called fibrositis then. There are still drs out there that don't understand it, and a few that don't believe in it. Too bad, and there is so much info on it now. I would also look on a The fibromyalgia website. All these years they don't know where it fits and it's been lumped in autoimmunes, and just read it is Not an autoimmune, it just seems to be paired with them. Like sjogrens and fibro, lupus and fibro, etc. Ms & fibro, I have all. I take lyrica for severe tingling in my right arm, and lyrica does nothing for any of my pains. I have so many issues including 4 rare diseases, and 5 autoimmunes, and others that are separate. I am in rehab, just broke my right ankle for the 2nd time. He told me break again and never walk again. So it's always something and I feel for people with worse than I have. One thing going for me, I have never been depressed, all this is very interesting.

@terri672

Have you looked into some of the anti inflammatory diets? Many of the foods we eat cause inflammation. It won't be a cure for fibromyalgia, but could lessen the symptoms…

Jump to this post

@terri672 Hi terri yes there is no cure from fibromyalgia but there are alot of these things that can help .One I do is take Fibro-Malic everyday and the ginger-Tumeric tea .

Lioness: Thanks for this post – I guess I'm not sure about "Fibro-Malic" – I think in another post you mentioned alternative remedies. Is this one?

@suecreader

Lioness: Thanks for this post – I guess I'm not sure about "Fibro-Malic" – I think in another post you mentioned alternative remedies. Is this one?

Jump to this post

@suecreader yes this is it has more magnesium for one that my My research in the fibromyalgia group said pluwe n I r more magnesium plus other good stuff our bodies need No drugs I've been on it for yrs and have gotten everyday relief but when a flare comes up I don't then think it's as bad plus I do Ice for inflammation heating pad at times hot showers help this is something we have to find ways that help us Fibro warriors

@lioness

@terri672 Hi terri yes there is no cure from fibromyalgia but there are alot of these things that can help .One I do is take Fibro-Malic everyday and the ginger-Tumeric tea .

Jump to this post

I ignore it, all my life ignore it, because I have so many terrible other thing. Pain 24 hours a day since 1984.

@anniemaggie

I ignore it, all my life ignore it, because I have so many terrible other thing. Pain 24 hours a day since 1984.

Jump to this post

@anniemaggie I'm so sorry your in so much pain. may I ask what are you on now?

@frustrated47 Its tough that's why we are all pain warriors. From what you have posted the back pain doesn't sound like its coming from fibro. Have you seen a orthopedic or neurosurgeon about your back? I have a fracture in my L2 and hence have a bulging disc and pinched nerves into my legs from my back which are burny pain I rely on Epsom Salts , heating pad, ice to help me get through. Fibro as you know affects the muscle ,and tissue along with nerves the CNS .

@mamacita Hope your having a good day today . I just came back from my chiropractor so am feeling pretty good right now. He adjusted my cranial nerve and hope I don't have any vertigo. Merry Christmas Linda

Please login or register to post a reply.