Entire spine hurts - Due to Fibromyalgia?

Posted by frustrated47 @frustrated47, Dec 5, 2018

Hi. I am a 47 year old female, diagnosed with fibromyalgia in 2004. Now my entire spine hurts from scull to SI joints. I have 3 bulging disks cervical, 4 disks lumbar, 2 thorasic. My lower back feels like it’s being crushed all the time. all the nerves in my legs hurt. I have muscle spasms, stiffness, joint pain, nerve pain, degenerative risk disease, and I can hardly walk. Sitting kills me!
Been on lyrica many years. I’m wondering if anyone out there is going through this with fibro. My doctors are saying all these symptoms are caused from fibro but I’m not convinced.

@leilanis

I get lidocaine injections primarily in along my spine from neck all the way to low back, sometimes in piriformis (muscle in buttocks), upper trapezius. Lidocaine patches are also helpful for me when i have more localized pain.
Baclofen is an anti-seizure medicine and muscle relaxant.
I've been on low dose naloxone for almost a year. I think it does help; I am very active despite the FM. But I feel like i am able to do more without increasing my pain meds. You can get more information about naltrexone at: http://www.ldnscience.org. There has been more research showing that low does naltrexone is beneficial in the treatment of FM. It's not always covered by insurance but i am lucky that my ins covers it. Check with different compounding pharmacies; i found the one in my small town did not but then at another compounding pharmacy it was covered by my insurance.

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I have a supplement plan added to medicare. I have plan F, expensive but since I have so much wrong. I also have the top plan for part D. To help with drugs. My hydroxyzine and lyrica copay each $37 a month. Lyrica for tingling in arm, rest free covered by insurance. I also use aspercream 4% lidocreme, really helps with nerve pain. Had cortisone shots in back. Had 8 shots in lower back at once, did nothing. Very nice pain dr. I manage well, it's getting up in morning, can barely move my body excruciating pain, take 600 mg of ibuprofen, feed dog & me, back to bed. Rest definitely helps me. Whatever works for everyone is great. I have had a few seizures last few yrs, take keppra. When I go home and cuddle with dog life will be great. Broke ankle, fell Dr said fall again, 3 times never walk again. Have ms, in rehab can't stand 2-3 mos.

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@anniemaggie

I have a supplement plan added to medicare. I have plan F, expensive but since I have so much wrong. I also have the top plan for part D. To help with drugs. My hydroxyzine and lyrica copay each $37 a month. Lyrica for tingling in arm, rest free covered by insurance. I also use aspercream 4% lidocreme, really helps with nerve pain. Had cortisone shots in back. Had 8 shots in lower back at once, did nothing. Very nice pain dr. I manage well, it's getting up in morning, can barely move my body excruciating pain, take 600 mg of ibuprofen, feed dog & me, back to bed. Rest definitely helps me. Whatever works for everyone is great. I have had a few seizures last few yrs, take keppra. When I go home and cuddle with dog life will be great. Broke ankle, fell Dr said fall again, 3 times never walk again. Have ms, in rehab can't stand 2-3 mos.

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In response to 47 frustrated. I totally disagree with drs blaming everything on fibro. Get new drs. Lazy attitudes when they don't know what's wrong. Please soon your symptoms sound like a lot of other things but not fibro. Back issues like bulging discs not fibro. Find a pain dr for back and see a DO Dr instead of an MD they deal with muscle, & nerve issues. Also have gentle manipulations, she gently moves arms and legs, DO's trained in this. Like a massage but insurance pays. Done in 15 mins.helps immensely for back issues, usually first 3 weeks, then back moves back. But you can move amazing how well it works.

Liked by Lisa Turner

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@anniemaggie you are so right Dr,s blame everything on fibromyalgia all my back pain ,wrong I had fracture,bulging disc and vertebrae ,s they fused themselves .neck pain haven't found out about this yet going to an ENT soon for dizziness,vision problems ,opthamalogist also . Have a good day.

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@frustrated47 Ive had fibromyalgia for over 30 years they then didn't know what caused it and still don't .A bulging disc is not from fibromyalgia My rheumatologist is great I was diagnosed by him all my back problems came from a fracture and arthritis Most of your symptoms Ive had ,but I found what helps me Ice,Heat,Tens unit Menthol creams on pain areas ,the Tens unit relaxes the muscles by omitting a small amount of electricity. I would find another Dr sounds like this guy has his head in the sand.Good luck

Liked by beryl

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I am so sorry that you are suffering so much. I am 55 now and was diagnosed with Fibromyalgia in 1994 at Mayo Clinic after getting so frustrated with going from doctor to doctor and no one knowing what was going on or just thought I was just pretending to be hurting and being so extremely fatigued.
I was doing pretty good by seeing a psychologist who helped me in different ways deal with the pain and depression. In 2006 I had a ACDF and I have not been the same since.Something went very wrong when I had surgery,my neck has hurt so bad since,unfortunately I am on very strong pain medications since and my other pain has been out of control since.
I wish that there was something positive I knew that was helpful to ease your pain. Please take care and I will be back in touch.
My Pain Management Doctor was telling me that when the Doctors have their
meeting that they were talking about Fibromyalgia and thought that it would not be a long time until they
(Scientists ) would hopefully figure out the common n denominator with everyone in our oithat has fibromyalgia or it might be 2 or 3 things. Hopefully it will be in our lifetime. I really hope you feel better.

Liked by lioness, beryl

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@iamlisa sounds like you’ve had and are still having lots of pain. I’m not sure what am ACDF is , but I’m wondering if it is a cervical fusion? How disheartening to have a procedure only to come away from that with such intense, life-altering pain. I do know & have been told that ongoing pain can cause depression…I know that when I’m about to start a Fibro flare, I first notice a change in mood. Sounds like you are doing all you can to get relief. I wish you better days ahead.

Wouldn’t it be great if we found out the cause of Fibro? I know there are still people, & some are in the medical field too, who don’t believe it’s a real medical condition

Liked by lioness, beryl

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The weather in my area of Florida is beautiful today. I'm thankful for that since it helps the fibro when the temp rises. I've taken my vitamins and supplements, including Fibro Malic. I know Fibro is a complex disorder which effects the entire body. Lately I have had occasional blurry vision. Yesterday it was so bad I could not read anything on the computer but there were things I needed to complete–you know, those pesky bills waiting to be paid, LOL Lucky for me I had a pair of glasses that were like new that I just couldn't get made correctly.(long backstory here) So I put them on and was able to complete my tasks and watch the evening news as well.
How about you? Do you get suddenly get a new symptom that stops you in your tracks?

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@sandytoes14

The weather in my area of Florida is beautiful today. I'm thankful for that since it helps the fibro when the temp rises. I've taken my vitamins and supplements, including Fibro Malic. I know Fibro is a complex disorder which effects the entire body. Lately I have had occasional blurry vision. Yesterday it was so bad I could not read anything on the computer but there were things I needed to complete–you know, those pesky bills waiting to be paid, LOL Lucky for me I had a pair of glasses that were like new that I just couldn't get made correctly.(long backstory here) So I put them on and was able to complete my tasks and watch the evening news as well.
How about you? Do you get suddenly get a new symptom that stops you in your tracks?

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@sandytoes14 I live in California and when weather changes her ,yes we do have changed I hurt more ,one thing Jen you might want to look into for fibro is Epsom Salt Rub I use it for fast relief as it is magnesium Its by ProCure and has Aloe Vera in it .I have blurry vision some days but I also have M.D. And glaucoma right now all is stabilized my Dr is happy ,me too have a good day just keep fighting

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