Hi @kittykiernan, I thought I would tag fellow members @mrmie @christinemorse @michellebelle and @darkmatter53 as they all have experience with EBV and may be able to offer support and share their experience.

Have you had any luck finding a doctor who will speak to you through Skype?

Im not familiar with your condition but some insurance companies offer talking to a live doctor via video chat like mine which in Blue Cross Blue Shield. I think they charge for the service tho.