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kat1890
@kat1890

Posts: 4
Joined: Jul 26, 2011

actinomycosis

Posted by @kat1890, Jul 26, 2011

Does anyone know anything about this? Also, is there a doctor at Mayo-Jacksonville FL who can treat it? Daughter has been sick for 2 years and doctor after doctor has not been able to tell her what is wrong. One of the doctors in Atlanta mentioned this but did not say that this is what she is suffering from.

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Uvea10
@uvea10

Posts: 7
Joined: Jul 17, 2011
Posted by @uvea10, Aug 8, 2011

It’s a systemic mycoses( involvement of deep tissue and organs) caused by fungus-like bacteria. The clinical picture is a chronic suppurative and granulomatous disease, wooden or lumpy lesions, and multiple draining sinuses (cervicofacial, thoracic, abdominal). I assume a culture was performed which confirmed the docs’ diagnosis. Usually the drug of choice if culture identifies as Actinomyces israelii is Penicillin G or Tetracycline. As a clinical microbiologist please check with your physician for laboratory testing ( anaerobic culture ) if one has not been performed. Good luck!


kat1890
@kat1890

Posts: 4
Joined: Jul 26, 2011
Posted by @kat1890, Aug 8, 2011

thank you for your reply. She has been to numerous doctors, most of whom tell her that it is all in her head. However, she has numerous weeping lesions, drainage from every opening in her body and has facial bone decay. She has seen an infectious disease doctor in Chattanooga whom seems to be the only one interested in her. She has her second appointment with him in 3 more weeks. Dr. Holland from Washington DC called her after he had reviewed some of her medical records and lab reports. He seemed to be concern that the cultures performed were dismissed and no treatment was begun. He stated that he would contact her doctors to determine their plan of treatment and to offer any assistance they needed. We are still waiting. In the meantime, she still has a fever, lots of pain, lots of drainage and no hope.


Uvea10
@uvea10

Posts: 7
Joined: Jul 17, 2011
Posted by @uvea10, Aug 9, 2011

Wow! I’m shocked to hear that the docs are dismissing her symptoms especially if she is experiencing drainage. Since you mentioned facial bone decay it sounds more like Cervicofacial actionomycosis. Does she have any infected teeth? What did her X-rays reveal? I guess I’m just shocked that you have not received better treatment for your daughter since actinomycosis can spread to any part of the body. Please ask to see all lab reports on your daughter to make sure cultures were performed. Although actionomycosi may be confused with bacterial infections the microbiologist shouldl know to look for the characteristic granules that can be seen in the pus or exudate from lesions which can help distinguish Actionomycces israelii along with the morphology of the colonies. Sorry to keep asking questions, I’m just very confused by the lack of concern you are receiving.


kat1890
@kat1890

Posts: 4
Joined: Jul 26, 2011
Posted by @kat1890, Aug 9, 2011

I’m shocked too! I worked at the local hospital and I couldn’t believe that she was being dismissed with all the symptoms and drainage. The local doctors have dismissed it all saying that the lesions are from drug abuse, she is making herself this sick trying to get pain medications. Even though all the drug screens have been and will continue to be negative, the doctors all said the same thing. It’s a psychological illness – you just believe that you are this sick and your body is reacting to it. This is not a illness that all of sudden has come upon her. She has been seeking treatment for 4+ years. The last 9-14 months have been the worse. Her teeth are perfect, no gum disease at all. In fact, the oral surgeon pulled a tooth 10 days ago, he took bone sample(s) and tissue sample(s). He noted the granules on his record. He did not want to take it out, but the bone has wasted away. We have been waiting on the final lab results. She has seen a number of doctors here in Dalton, Atlanta, Villa Rica, Chattanooga, Calhoun, Nashville and also numerous er docs. This includes OB/GYN, internal medicine, general, dentists, ENT,, well, you get the picture. Our best and maybe last hope is this Dr. Holland from Washington and an infectious disease doctor in Chattanooga. If these two don’t or won’t do something, then I’m afraid she will just give up. She has all of her records, labs included from all the places she has been. She has done extensive research on this and is convinced that it has invaded her entire body and all organs. And she believes that it all came about from a cat scratch and the soil. The doctor in Atlanta changed his mind about a diagnosis. He didn’t think that it could be this bad and he wasn’t sure he could give a diagnosis of this since so many others had dismissed it. The infectious disease doctor in chattanooga told her to stop taking all antibiotics until he could see her in 4 weeks. X-rays are revealing massive bone loss. Thank you for questions. It’s nice to know that someone else cares.


kat1890
@kat1890

Posts: 4
Joined: Jul 26, 2011
Posted by @kat1890, Aug 9, 2011

I’m shocked too! I worked at the local hospital and I couldn’t believe that she was being dismissed with all the symptoms and drainage. The local doctors have dismissed it all saying that the lesions are from drug abuse, she is making herself this sick trying to get pain medications. Even though all the drug screens have been and will continue to be negative, the doctors all said the same thing. It’s a psychological illness – you just believe that you are this sick and your body is reacting to it. This is not a illness that all of sudden has come upon her. She has been seeking treatment for 4+ years. The last 9-14 months have been the worse. Her teeth are perfect, no gum disease at all. In fact, the oral surgeon pulled a tooth 10 days ago, he took bone sample(s) and tissue sample(s). He noted the granules on his record. He did not want to take it out, but the bone has wasted away. We have been waiting on the final lab results. She has seen a number of doctors here in Dalton, Atlanta, Villa Rica, Chattanooga, Calhoun, Nashville and also numerous er docs. This includes OB/GYN, internal medicine, general, dentists, ENT,, well, you get the picture. Our best and maybe last hope is this Dr. Holland from Washington and an infectious disease doctor in Chattanooga. If these two don’t or won’t do something, then I’m afraid she will just give up. She has all of her records, labs included from all the places she has been. She has done extensive research on this and is convinced that it has invaded her entire body and all organs. And she believes that it all came about from a cat scratch and the soil. The doctor in Atlanta changed his mind about a diagnosis. He didn’t think that it could be this bad and he wasn’t sure he could give a diagnosis of this since so many others had dismissed it. The infectious disease doctor in chattanooga told her to stop taking all antibiotics until he could see her in 4 weeks. X-rays are revealing massive bone loss. Thank you for questions. It’s nice to know that someone else cares.

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