Recently diagnosed with lyme disease and several confections 7 years a
In 2019 I found a tick that had unfortunately been there for more than i would have liked. After removing the tick that eas located on my belt line I went about my business. A day or 2 later it appeared to be infected and looked like a bullseye rash that kept getting bigger. No pain or symptoms other than the rash. Initially I thought it was just from my duty belt rubbing on waistline.
I advised my dr about it and mentioned lyme disease and he said it couldn't be lyme. I went along not knowing or realizing the severity of it.
Sometime in 2020 my eyesight went from perfect to bad overnight. I started having shoulder and elbow pains.
Went to the Dr again and was advised it could be arthritis. I mentioned lyme again just out of curiosity and was told that since the tick bite I had was from a year ago that lyme wouldn't stay in the body that long. Again the dr knows best(not).
I started having severe tingling and numbness on my arms and left side of my face that eventually went to my scalp and left arm. Shooting leg pains like my bones were trying to jump out of my body like being shocked.. the dr said I was just getting older and was just caused by anxiety and age. Put on blood pressure and anxiety meds. Neither did any good.
Dizziness and vertigo started and made several trips to the emergency room thinking heart attack and or stroke. Nothing was ever found and if anything the scans and stress test showed me being in excellent condition. Seen several doctors on my last non stroke incident and one of the doctors I spoke with asked why I was on the blood pressure and anxiety meds. I advised him off incidents and he said that it seemed odd that me being in law enforcement for over 25 years and to just one day start having anxiety out of the blue. He said all my tests came back clean but if it was him he would dig deeper as the only person that truly knows your body and if something is off would be yourself.
I ended up in fight or flight mode and was off work for over 2 months during covid. The fight or flight lasted for almost a year along with a doom feeling.
I stopped the medications and started searching. After typing iny symptoms on the computer the first thing that it asked was if I had been bitten by a tick. Instantly I knew I had lyme but convincing someone other than myself was impossible. I had already taken 2 lyme tests from my previous dr and came back negative. After several YouTube videos I knew for a fact as tjey described the same problems and symptoms. Me and my wife decided to search for a functional medicine doctor and he ordered a lyme test that came back negative. However he did work on getting my system back in order and helped tremendously but advised that if I did have lyme there was nothing I could do as it had been a few years now. Things got better with all the supplements I was taking but I would still have episodes here and there.
This year the week before my daughter's wedding out if the blue i had another episode that was quite severe anxiety and doom wise. It only lasted about an hour but the after effects lingerd for a few days. While heading out of state for the wedding we were listening to some of the YouTube videos on lyme stories and my wife told me that she knew I had lyme and we needed to find a lyme doctor. We contacted a llmd and he ordered a new test through vibrant and it came back positive along with borrelia, babesia, Anastasia, Ehrlichia, coxsackie virus and mycoplasma. I have been on an herbal protocol since then and so far everything is going well. As for where I'm at now I'm about 70 percent my old self but much better than the beginning.
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Confused about why the previous testing did not show the infection. It is worrying that you suffered so long without relief. My cousin’s daughter had the same problem. She is in her thirties and was infected when a teen before Lyme testing was routinely done. She, like you, had multiple infections that were eventually addressed by a Lyme specialist. It took years to get help. She was even banned from a hospital because they thought she was faking her debilitating symptoms.
Hopefully doctors will begin to listen more closely and be more proactive and investigate more thoroughly. Sometimes it takes them being a patient in the same circumstances to awaken their understanding of patients frustration. Let’s hope for better medical care in the near future.
@parrot53, i totally agree, i had one instance where the doctor claimed i was wanting pain meds. i wasnt wanting medication, only trying to figure out why it felt like i was having a heart attack and stroke symptoms