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Dr can’t help my IBS. Now what?
Hi all, I hope you’re well?
I have IBS for over 20 years and managed it well until 2020 when I contracted c diff in the UK (I now live in the US). Since then I have struggled with constant pain in my lower abdomen and now the area where my gallbladder is located.
I have had all the tests that the GI will do and nothing shows, apart from a small polyp in my gallbladder. My GI dr has said that there is nothing they can do for the pain as I have tried all the meds they could “offer” and essentially be on my merry way. The only information they told me was that I must be depressed or anxious which is what is apparently causing it. To clarify, I’m pretty happy with my life and I’m most definitely not either of those.
I can’t have fibre as it makes the pain worse, I’ve tried homeopathic meds and the ones the dr can prescribe. I’ve done a FODMAP diet previously and know which foods make it “worse.” I just don’t know what to do anymore as the specialist has said they don’t need to see me anymore. I feel lost and know that this pain isn’t normal.
My IBS before was nothing like it is now. I’ve been told it can change after c diff but I would happily have another round of c diff over this pain.
Has anyone else experienced this from the dr or have any advice as to what to try or do now?
Thank you so much
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Second opinion??? Are you close to one of the big teaching hospitals like Mayo. John's Hopkins, Stanford. etc?
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1 ReactionI am sympathetic to your situation. I was diagnosed with IBS in my 40's after a hysterectomy. I had repeated colonoscopies and my doctor always said he saw nothing but yet the colonoscopies continued. I realize now I should definitely have taken my records to additional drs. But I finally decided to try acupuncture and for me it worked. My health insurance did not cover the cost (now it does) so it was expensive. But my pain eased and I felt like a new person. I went for several months but ultimately had to stop because of the pain. My GI didn't say much when I told him of my success.
I meant to say "I went for several months but ultimately had to stop because of the money."
I know the feeling, the Gasto docs dont seem to be helping. I tried the Organic/unpasteurized/unfiltered Apple Cider Vinegar from ALDI for $4.59 and it seems to help ME. Maybe its helping digest my food before it gets to the intestine. You, who knows, but it cant hurt. My ulcer surgeon cut a Vegas nerve in my stomach and also removed my Deodenum for the bleeding Ulcer- which we know know was a mistake, but at least they didnt cut me and bleed me like last century! I put some fake butter in my mouth and swallow before chugging the Vinegar- it burns some even cut w/Water. but the diarrhea is better, not totally fixed! Cheers!