C. difficile -are your guts ever normal again ?

Posted by sue6408 @sue6408, Sun, Jan 27 12:57pm

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@patts

Wanted to lay my woes at the feet of people who understood. I was felled with a severe case of colitis. I was sent to ER ON 7/16. I tested negative for C. Diff. at that time. However m they said I had sepsis along with the colitis, so was put IV antibiotics for almost 3 days and sent home with 2 weeks of cipro and flagyl.

This whole colitis attack came out of the blue. I had felt fine up until that point. I was having some bowel issues but nothing serious, so I guess that was the start of colitis.

Now I have c. Diff. from the massive amounts of antibiotics I’ve been on. My gastro doc sent me in for quite a few fecal exams and the only thing that showed up was the c. diff. She immediately put me on 2 weeks of vancomycin.

My doc is telling me how contagious this is. I’ve been sleeping n our guest bedroom, using the guest bathroom, I have my own dinnerware and utensils, I’ve e been wearing gloves and walking around with Clorox wipes. I have one more week of the vancomycin. My hands are pretty raw from the constant washing and using the Clorox wipes.

I am missing a trip to IN for my oldest grandsons birthday. Doctor gave me a “absolutely not” on that one.

I haven’t lost weight and thankfully I feel okay and no pains. Thankfully, I’m retired so it’s no hardship staying at home.

I follow up with my doc on 9/3.

From what I’ve read, I’m really afraid of relapse because this quarantine is driving me crazy and I’m depressed. I don’t want to think this is going to keep interfering with my life!

Thanks for listening to my “oh, woe is me” tale.

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look to getting probiotics and or yoghurt and also recommended people with C diff go on a low sugar /glucose diet or plain food regime or a vegie diet . recent research as I informed people c diff is powered by sugars and you need to reduce the sugar in your diet also can look at a Mediterranean diet . See a dietitian . discuss with your doc

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@patts

Wanted to lay my woes at the feet of people who understood. I was felled with a severe case of colitis. I was sent to ER ON 7/16. I tested negative for C. Diff. at that time. However m they said I had sepsis along with the colitis, so was put IV antibiotics for almost 3 days and sent home with 2 weeks of cipro and flagyl.

This whole colitis attack came out of the blue. I had felt fine up until that point. I was having some bowel issues but nothing serious, so I guess that was the start of colitis.

Now I have c. Diff. from the massive amounts of antibiotics I’ve been on. My gastro doc sent me in for quite a few fecal exams and the only thing that showed up was the c. diff. She immediately put me on 2 weeks of vancomycin.

My doc is telling me how contagious this is. I’ve been sleeping n our guest bedroom, using the guest bathroom, I have my own dinnerware and utensils, I’ve e been wearing gloves and walking around with Clorox wipes. I have one more week of the vancomycin. My hands are pretty raw from the constant washing and using the Clorox wipes.

I am missing a trip to IN for my oldest grandsons birthday. Doctor gave me a “absolutely not” on that one.

I haven’t lost weight and thankfully I feel okay and no pains. Thankfully, I’m retired so it’s no hardship staying at home.

I follow up with my doc on 9/3.

From what I’ve read, I’m really afraid of relapse because this quarantine is driving me crazy and I’m depressed. I don’t want to think this is going to keep interfering with my life!

Thanks for listening to my “oh, woe is me” tale.

Jump to this post

look to probiotics or yoghurt and a low glucose or low sugar diet or take sugar out of your diet as recommended by Melbourne university .I can tell you that c diff loves sugars and it powers them and you need to take that source away from them . also discuss with a dietitian or a dietitian attached to Mayo re reducing sugars in your diet .your organs and cells still need sugars as well

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@patts i feel your pain i was in the hosp the whole time i had cdiff but it finally cleared up after 4 weeks. So life got back to normal when i got home. But ill tell you im not taking any chances. Now when i use public restroom i have my butt pack with clorox wipes and clean prior to use. Hand washing a must. Plus there having me do prevention by taking vancomycin 3 day a week as a maintenance dose. Good luck hopefully it will be over soon.

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@patts

Wanted to lay my woes at the feet of people who understood. I was felled with a severe case of colitis. I was sent to ER ON 7/16. I tested negative for C. Diff. at that time. However m they said I had sepsis along with the colitis, so was put IV antibiotics for almost 3 days and sent home with 2 weeks of cipro and flagyl.

This whole colitis attack came out of the blue. I had felt fine up until that point. I was having some bowel issues but nothing serious, so I guess that was the start of colitis.

Now I have c. Diff. from the massive amounts of antibiotics I’ve been on. My gastro doc sent me in for quite a few fecal exams and the only thing that showed up was the c. diff. She immediately put me on 2 weeks of vancomycin.

My doc is telling me how contagious this is. I’ve been sleeping n our guest bedroom, using the guest bathroom, I have my own dinnerware and utensils, I’ve e been wearing gloves and walking around with Clorox wipes. I have one more week of the vancomycin. My hands are pretty raw from the constant washing and using the Clorox wipes.

I am missing a trip to IN for my oldest grandsons birthday. Doctor gave me a “absolutely not” on that one.

I haven’t lost weight and thankfully I feel okay and no pains. Thankfully, I’m retired so it’s no hardship staying at home.

I follow up with my doc on 9/3.

From what I’ve read, I’m really afraid of relapse because this quarantine is driving me crazy and I’m depressed. I don’t want to think this is going to keep interfering with my life!

Thanks for listening to my “oh, woe is me” tale.

Jump to this post

@patts I know EXACTLY how you feel. Last year, I was going through the same thing you are. I got Cdiff from taking Clindamycin for a sinus infection. Unfortunately I went for almost two weeks thinking I had Ecoli and didn't go to the doctor. The Ecoli scare from eating romaine lettuce was going around at the same time as my first bout. My first bout was in May and my last one was in October. I went through doses of Flagyl, Vancomycin (twice) and even did the pulse and taper of Vanco for 6 weeks and finally took Dificid last October. The Dificid was terribly expensive and I understand why they don't prescribe it first. I had decided a fecal transplant would be my next option. If the Vancomycin doesn't work for you, I would suggest that you try Dificid. I know exactly how you feel as I spent most of the summer in our home or backyard. I cleaned everything in our home from light switches to wiping down handles of everything I touched. I sleep with a pillow between my knees and after my 3rd bout, I tossed out that pillow thinking maybe it was contaminated. I truly became paranoid because of that dreaded Cdiff. Something I had never even heard of prior to May. My gastroenterologist suggested I take Florastor has it has S. Boulardii. Hand washing is key. I was around family members during all four bouts of Cdiff and my husband, daughters and grandchildren did NOT get it. It would be interesting to know if anyone on this site has ever infected other family members. I know it runs rampant in nursing homes because of contact but I've not heard of any cases in individual homes. I was happy I found this site where I could discuss my "woes" with others who truly understand.

REPLY
@sirgalahad

look to getting probiotics and or yoghurt and also recommended people with C diff go on a low sugar /glucose diet or plain food regime or a vegie diet . recent research as I informed people c diff is powered by sugars and you need to reduce the sugar in your diet also can look at a Mediterranean diet . See a dietitian . discuss with your doc

Jump to this post

You make me smile. I’m on probiotics + natural Greek yogurt. I’m also prob in the top 10% Eating Well Club. 😉 my gastro has always pushed nutrition and I told my husband I always laugh when she gets out the big book on nutrition and I’m basically doing all that anyway. Just conclude sometimes it just happens.

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@danab

@patts i feel your pain i was in the hosp the whole time i had cdiff but it finally cleared up after 4 weeks. So life got back to normal when i got home. But ill tell you im not taking any chances. Now when i use public restroom i have my butt pack with clorox wipes and clean prior to use. Hand washing a must. Plus there having me do prevention by taking vancomycin 3 day a week as a maintenance dose. Good luck hopefully it will be over soon.

Jump to this post

Interesting about the vancomycin prescription. I’ll def be carrying Clorox wipes with me henceforth l. I’ve been diligent wiping everything down I touch at home so my husband and daughter won’t get this (plus nitrile gloves at times).

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@pines

@patts I know EXACTLY how you feel. Last year, I was going through the same thing you are. I got Cdiff from taking Clindamycin for a sinus infection. Unfortunately I went for almost two weeks thinking I had Ecoli and didn't go to the doctor. The Ecoli scare from eating romaine lettuce was going around at the same time as my first bout. My first bout was in May and my last one was in October. I went through doses of Flagyl, Vancomycin (twice) and even did the pulse and taper of Vanco for 6 weeks and finally took Dificid last October. The Dificid was terribly expensive and I understand why they don't prescribe it first. I had decided a fecal transplant would be my next option. If the Vancomycin doesn't work for you, I would suggest that you try Dificid. I know exactly how you feel as I spent most of the summer in our home or backyard. I cleaned everything in our home from light switches to wiping down handles of everything I touched. I sleep with a pillow between my knees and after my 3rd bout, I tossed out that pillow thinking maybe it was contaminated. I truly became paranoid because of that dreaded Cdiff. Something I had never even heard of prior to May. My gastroenterologist suggested I take Florastor has it has S. Boulardii. Hand washing is key. I was around family members during all four bouts of Cdiff and my husband, daughters and grandchildren did NOT get it. It would be interesting to know if anyone on this site has ever infected other family members. I know it runs rampant in nursing homes because of contact but I've not heard of any cases in individual homes. I was happy I found this site where I could discuss my "woes" with others who truly understand.

Jump to this post

Laughing at your knee pillow, but I understand. I’m throwing away my underwear after each use. Don’t want to chance not disinfecting in wash and leaving bacteria in the washer!

I’ve never known anyone who has had this, so glad to hear others’ experiences.

Liked by pines, mermaid7272

REPLY

patta– I've had c.diff 3 or 4 times and all were because of large doses of antibiotics. Amoxicillin antibiotic seemed to be the culprit for the first time. The second time, I was in the hospital for surgery & gave the staff warning that this is a problem, but it was disregarded & I came down with a terrible bout of this horrible condition, but lived. Another time, I contacted it again in a hospital, & was prescribed vancomycin, which eventually worked.
Washing your hands with soap & using clorox as a disinfectant is also what I was told, & it did not spread to my husband.

The alcoholic hand sanitizers are not effective for c.diff, and it sounds like you are really doing a bang up job keeping clean & sanitized!
So be careful on any visits to a hospital or doctor's office in the future & wash those hands!!!! Good luck.

Liked by pines, patts

REPLY
@pines

@patts I know EXACTLY how you feel. Last year, I was going through the same thing you are. I got Cdiff from taking Clindamycin for a sinus infection. Unfortunately I went for almost two weeks thinking I had Ecoli and didn't go to the doctor. The Ecoli scare from eating romaine lettuce was going around at the same time as my first bout. My first bout was in May and my last one was in October. I went through doses of Flagyl, Vancomycin (twice) and even did the pulse and taper of Vanco for 6 weeks and finally took Dificid last October. The Dificid was terribly expensive and I understand why they don't prescribe it first. I had decided a fecal transplant would be my next option. If the Vancomycin doesn't work for you, I would suggest that you try Dificid. I know exactly how you feel as I spent most of the summer in our home or backyard. I cleaned everything in our home from light switches to wiping down handles of everything I touched. I sleep with a pillow between my knees and after my 3rd bout, I tossed out that pillow thinking maybe it was contaminated. I truly became paranoid because of that dreaded Cdiff. Something I had never even heard of prior to May. My gastroenterologist suggested I take Florastor has it has S. Boulardii. Hand washing is key. I was around family members during all four bouts of Cdiff and my husband, daughters and grandchildren did NOT get it. It would be interesting to know if anyone on this site has ever infected other family members. I know it runs rampant in nursing homes because of contact but I've not heard of any cases in individual homes. I was happy I found this site where I could discuss my "woes" with others who truly understand.

Jump to this post

My wife stayed with me the month i had it in the hospital. But never caught it. I wouldn't wish that virus on my worst eneamy

Liked by patts

REPLY

I had c diff In January. I isolated myself from my kids and grandkids for fear of infecting them. Finally I saw an infectious disease specialist
At NYPresbyterian Hospital. She said you are only contagious when you have
Active
Diarrhea. She also said that c diff spores are in many places though of course most
In hospitals and in people with active c diff diarrhea. She said many babies before the age of one year carry it but do not
Get it. Bottom line message was that most people can cope with regular density of c diff spores unless they have the 3 risk factors for c diff. This was very comforting to me.
But everyone needs to be protected
From high density of spores
As
In hospitals and person with active c diff diarrhea.

Liked by pines

REPLY
@annapocono

I had c diff In January. I isolated myself from my kids and grandkids for fear of infecting them. Finally I saw an infectious disease specialist
At NYPresbyterian Hospital. She said you are only contagious when you have
Active
Diarrhea. She also said that c diff spores are in many places though of course most
In hospitals and in people with active c diff diarrhea. She said many babies before the age of one year carry it but do not
Get it. Bottom line message was that most people can cope with regular density of c diff spores unless they have the 3 risk factors for c diff. This was very comforting to me.
But everyone needs to be protected
From high density of spores
As
In hospitals and person with active c diff diarrhea.

Jump to this post

@annapocono If you don't mind me asking, what are the 3 risk factors of cdiff?

REPLY
@annapocono

I had c diff In January. I isolated myself from my kids and grandkids for fear of infecting them. Finally I saw an infectious disease specialist
At NYPresbyterian Hospital. She said you are only contagious when you have
Active
Diarrhea. She also said that c diff spores are in many places though of course most
In hospitals and in people with active c diff diarrhea. She said many babies before the age of one year carry it but do not
Get it. Bottom line message was that most people can cope with regular density of c diff spores unless they have the 3 risk factors for c diff. This was very comforting to me.
But everyone needs to be protected
From high density of spores
As
In hospitals and person with active c diff diarrhea.

Jump to this post

If you have c.dif and you and those around you wash your hands after using the toilet and wash your hands regularly you're not going to spread c.dif..

REPLY
@ngorman25

@annapocono If you don't mind me asking, what are the 3 risk factors of cdiff?

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1. Being old like I think over 65 or so
2. Having been in hospital which is headquarters for the c. Diff spores.
3. Having recently taken an antibiotic particularly one of the high risk ones but all of them increase risk.
Best wishes to you

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I too had cdiff in 2015 after taking clindamyacin. Tried different probiotics and the only one that worked for me was one by Advocare. Not in stores so I had to find a rep on the internet who I could buy it from. Cdiff is not fun. I have been back to normal after taking it. Cannot remember how long I took it. 1-2 months?

Liked by sirgalahad

REPLY
@mmja

I too had cdiff in 2015 after taking clindamyacin. Tried different probiotics and the only one that worked for me was one by Advocare. Not in stores so I had to find a rep on the internet who I could buy it from. Cdiff is not fun. I have been back to normal after taking it. Cannot remember how long I took it. 1-2 months?

Jump to this post

can I recommend and strongly suggest to aid your recovery from CDifficule you have a low sugar diet , because the bacteria thrives and loves the high sugar western diet and it will return

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