C. difficile -are your guts ever normal again ?

Posted by sue6408 @sue6408, Sun, Jan 27 12:57pm

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@ngorman25 I'm still taking the probiotic but I must admit there are days that I forget and I'm not near as faithful as I was during the winter months. My GI had me on Floratsor because it was the one with S. Boulardii. I probably take it 3 or 4 times a week now. My chiropractor also believes that probiotics are good for the entire body and even helps with UTI's. I was concerned all winter that I might get another sinus infection or UTI. The clindamycin I took for the sinus infection is what started my Cdiff. But I stayed healthy all winter…. praise the Lord. I've gained back all the weight I lost with Cdiff. I wish I hadn't. I lost 10 pounds in two weeks with the last (4th) and final bout last October. My heart goes out to all the people fighting Cdiff. I'm happy to hear that you are doing well since your FMT.

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Thank you all for the input. I can definitely do bananas! I think I will take your advice, nurseheadakes, and visit a health food store! You all rock! Stay well!

Liked by pines

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@ngorman25

So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?

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My son suffers from ulcerative colitis and we have found that as long as he takes the probiotics, his flare ups have gone away. It’s been 10 years now. They are the refrigerated ones – VSL#3

Liked by pines

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@claytamos

I was told by my GI Dr not to take probiotics while on the antibiotics. The antibiotics kill the good with the bad bacteria and you're trying to replenish something that the antibiotic is killing. If you take the probiotics while taking the antibiotic you're stopping the antibiotic from doing it's job. He always told me to take the probiotics after i'm done with the antibiotic to build good bacteria.

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i was told the same by my doctor.

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@annapocono

i was told the same by my doctor.

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I was told to take Florastor or Culturelle but then I’ve heard the refrigerated ones are better. I have Crohns and all this has got my intestines all freaked out. I can’t eat fiber, yet I need it. I’ve been drinking a mix that has 4 servings of fruits and veggies and then drinking a tea called Smooth Move and so far that combo has helped (this week) anyway. 🤷🏼‍♀️

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@nurseheadakes

I have had a 'C-diff' gut since my first encounter years ago. Once you have had the encounter, your gut has a slow recovery. The antibiotics wipe our your natural flora and now you have to put back what you had to gain what you had beforehand. I have learned over the years what I can and can not eat to keep it at bay. You life changes because of what this nasty bug (mine you – it lives in our bowels but is suppressed by our good biotics) can always get you if you don't know or take care of your gut. There are ways you can live a better life and not resort to drugs, procedures and those type of things. Turn to eating well and using fresh and clean foods to turning your gut around. This may be drastic but it's done on a step by step manner. I read and follow a diet that is close to the Mediterranean diet – fish, vegetables, and fruit. Celery juice is the first thing you drink in the morning before anything else. This works on your gut almost from the get-go. You can find all of this information in the books by ANTHONY WILLIAM – First book is called Medical Medium, Secrets Behind Chronic and Mystery Illness and How to Finally Heal. I drink lemon water all day long and this helps me digest my food without having to resort to using my GERD medications on a regular basis. I have them prescribed for me and use them since my entire GI system was wiped out after the CDiff nearly killed me after my hysterectomy in 1988. This will be life-long but I have nothing to lose but everything to gain. I have followed many of his suggestions and have fewer migraines, stabilized my diabetes, decreased the nodes my thyroid, and my liver panel is normal which hasn't ever been normal according to my Primary Doctor. She was blown away when I told her what I was doing. Mr. Williams can be googled to find his books – they are in books stores and he is well known world wide for what he describes for us to do. Take it for what its worth. The celery juice is a sure thing… Anyone with GI problems should definitely drink 1/2 to one cup a day. And lemon water – no soda ever….(do you know what they put in that stuff? – it will take off rust and other corrosives – so what do you think it does inside you?) Use clean filtered water and real lemons in your water. Get the real deal.
One last thing…everything today has pesticides and stuff sprayed on it…so the best way to 'clean' off your produce is to soak them in soda bicarbonate.
Place everything in a bowl of warm water and couple of tablespoons of the baking soda. Let soak for 10 minutes, rinse and dry. Then bag them, place in bowls or dispense the produce as you like for eating. The baking soda takes off the crummy stuff and leaves your fruits/veggies clean – so you aren't eating all of those poisonous chemicals. Your gut will thank you.

That's it for now… any questions…let me know Eloise

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Thank you for sharing! Had my first (and I pray the LAST) round of C-diff last week. I was prescribed Augmentin for a bad sinus infection and deep cough. Day five on the meds – thought I would die and thought it might be preferable. Had no idea what was wrong with me. After two days, I was able to get myself back to my primary. He prescribed Vancomycin and I provided a sample which came back negative. At first, he told me to discontinue the Vancomycin then changed his mind and said continue. No other instructions. I started eating Activia yogurt because I wanted to avoid a yeast infection.
I live in a small town – no specialists here – but am wondering if I need to quickly locate a gastroenterologist. I’m trying to research what to eat, what to avoid, whether to take a probiotic, for how long, the difference between a probiotic and prebiotic, etc. I am overwhelmed!

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@annapocono

Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

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I just had my first bout with this last week as a result of Augmentin – and I pray it’s my last. My test came back negative but everything I’ve read says otherwise. Dr has had me on Vancomycin for about a week.
Did you take Vancomycin? Probiotic along with meds or just probiotic foods? Other dietary regime?
I’ve been so depressed these two weeks and, living in a small town, there are no specialists or even a health food store to seek information. Your post is encouraging and makes me hopeful that this might be a single incident.

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@pat70

I just had my first bout with this last week as a result of Augmentin – and I pray it’s my last. My test came back negative but everything I’ve read says otherwise. Dr has had me on Vancomycin for about a week.
Did you take Vancomycin? Probiotic along with meds or just probiotic foods? Other dietary regime?
I’ve been so depressed these two weeks and, living in a small town, there are no specialists or even a health food store to seek information. Your post is encouraging and makes me hopeful that this might be a single incident.

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@pat70 My gastroenterologist had me take Florastor. You need to be taking a probiotic with S. Boulardii in it. I too got Cdiff last year after taking Clindamycin for a sinus infection. I had such a hard time getting rid of it. The Vancomycin did not work for me. My insurance approved me taking Dificid (fidaxamycin)) after I had taken two rounds of Vanco. I even did the pulse and taper for 6 weeks. My heart goes out to you. I was encouraged by others on this site and their sharing. I had not even heard of Cdiff before getting it.

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@pat70

I just had my first bout with this last week as a result of Augmentin – and I pray it’s my last. My test came back negative but everything I’ve read says otherwise. Dr has had me on Vancomycin for about a week.
Did you take Vancomycin? Probiotic along with meds or just probiotic foods? Other dietary regime?
I’ve been so depressed these two weeks and, living in a small town, there are no specialists or even a health food store to seek information. Your post is encouraging and makes me hopeful that this might be a single incident.

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@pat70 I, also, was diagnosed with cdiff last September. After 8 days in the hospital and a loss of 14 lbs, I relapsed several times within 3 weeks after stopping vancomycin. In March of this year, I received an fmt and so far I am doing ok. Can't gain back any weight however. I had taken clindamycin for a tooth abscess and that is what caused the cdiff. I had never heard of it before either. It is a very serious colon infection. My advice is if you get any symptoms, get yourself to a gastro doctor pronto! Hopefully, you are one of the lucky ones who only gets sick once.

Liked by pines

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@pines

@pat70 My gastroenterologist had me take Florastor. You need to be taking a probiotic with S. Boulardii in it. I too got Cdiff last year after taking Clindamycin for a sinus infection. I had such a hard time getting rid of it. The Vancomycin did not work for me. My insurance approved me taking Dificid (fidaxamycin)) after I had taken two rounds of Vanco. I even did the pulse and taper for 6 weeks. My heart goes out to you. I was encouraged by others on this site and their sharing. I had not even heard of Cdiff before getting it.

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@pines I finally found Florastor but it has milk products in it like Align does. I’ve been on Culturelle. Perhaps a refrigerated one is best? I’m blessed in that I haven’t had the dramatic weight loss that you all have but this all aggravated my Crohns Disease and IBS! Has anyone heard of Triaminocine IM shots causing a recurrence or Prednisone? I may need to use one for another condition but I’m scared.

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I have been reading for days all of your bouts of infections and treatment plans and have to give you all some information to help you along. The c.diff bug is a sinister bug that always lives in your gut. It is an opportunistic little bug that takes advantage of times when your good bacteria in your gut are not at their best. Meaning, there are not enough of them to fight the c diff bugs to keep them at bay. When you take ANTIBIOTICS…they wipe out ALL OF YOUR good biotics (your microbe) that keeps you healthy and well. The area of 32 feet of gut is a lot of space to cover and your c diff loves to live in it and rule it. The rule of the game then must be finding how to change the game so the the c diff doesn't like to live in this environment. Putting good things in your mouth and stomach begins in learning about what is clean and wholesome for you. First step – learn about your diseases so that you know what is the cause and how you can minimize the effects of them in whatever way that you can. Minimize the use of process foods, dirty foods, fatty foods and soda. Water is essential for your body since it is 80% of what you are made of. Prebiotics and Probiotics can be found in clean foods. Look that up on google or read about it in Anthony William's Book – Medical Medium Life-Changing Foods. I have a c.diff gut and will always have one but I don't let it rule my life. I rarely take my refrigerated probiotics but have them when I need them. I have yogurt on standby. I use lactaid milk because I can't tolerate milk products. Two meals a day for only fruits and vegetables. I start out my day with the celery juice that may seem like a waste and I can't see what it does for me on the outside but boy does it show in the lab values for my diabetes, weight management, and immune systems. I have included cucumbers and parley in my morning drink to jazz it up! My warm water has lemon slices in it that I sip throughout the day. In the morning I have an 1/8 tsp of Metamucil in my tea cup since the bowel are sluggish but the stools are working dandy after years of constipation and GERD. There is a starting point and an end point for everyone but it begins with the first step. Research your journey and find what works and doesn't work – keep track with your GI doc/NP so that you can find the path that will help you look at food as being helpful and not a hindrance to you health.

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@nettecook

@pines I finally found Florastor but it has milk products in it like Align does. I’ve been on Culturelle. Perhaps a refrigerated one is best? I’m blessed in that I haven’t had the dramatic weight loss that you all have but this all aggravated my Crohns Disease and IBS! Has anyone heard of Triaminocine IM shots causing a recurrence or Prednisone? I may need to use one for another condition but I’m scared.

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@nettecook We really do need to read the ingredient labels. I gained back the 10 pounds I had lost from my last Cdiff episode during the Thanksgiving and Christmas holidays. Sorry to hear you also have to deal with IBS issues.

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hi gang I recently learned of ongoing research at the Melbourne university melb Australia .they announced the results of recent research on CDifficule . they found that the reason it is such a stubborn bacteria to get rid of is due to the fact that antibiotics can knock it down the problem is that CDifficule loves the high sugar diet of westerners and it powers and they multiply and rage on and party on .The result to successfully to get on top you have to reduce sugar and or glucose in your diet look to plain foods until you have successfully gotten rid of it throughout your guts intestines and bowel walls and caecum. I am a bio medical scientist in Australia but my field is in children's cancer and I was reading this research recently .I did contact Lisa Lucier and she was on holidays and just got back and advised me to write this info in this group regards sirgallahad

Liked by sirgalahad

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VERY TRUE. Sugar is the enemy for many of our diseases including all of our cancers. All cancers feed off of the various sugars that can be found in our processed foods, sodas, juices, drinks that have artificial sugars in them… Our gut including the liver, gall bladder, pancreas, spleen and inner workings of the small intestines work hard to neutralize the sugar so that the bacteria/viruses and foods/liquids that we digest can turn out to be the best for us but often the choices are not the best and we feel the effects of that. Reading labels on your food items will show just how much glucose/sugar has been added to our food for the last 30 + years. Instead of salt, they have substituted sugar…or all the different types of sugars – claiming that they are natural and won't harm you but yea.. they are and will and have been for a long time. Especially when you count up every little bit of food item you eat – milk, bread, pasta, meat, – look at anything packaged…it will have sugar in the ingredients. If you eat raw fruits or vegetables – you will be eating natural which is not added sugar and your gut will favor this over any added or un natural sugar. Cancer or any disease doesn't like natural or clean sugar. This is why you look to eating clean foods instead of processed. Even your bottled waters have sugar in them…. Nothing is left off of the list and hasn't…its a shame.

Liked by sirgalahad

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Wanted to lay my woes at the feet of people who understood. I was felled with a severe case of colitis. I was sent to ER ON 7/16. I tested negative for C. Diff. at that time. However m they said I had sepsis along with the colitis, so was put IV antibiotics for almost 3 days and sent home with 2 weeks of cipro and flagyl.

This whole colitis attack came out of the blue. I had felt fine up until that point. I was having some bowel issues but nothing serious, so I guess that was the start of colitis.

Now I have c. Diff. from the massive amounts of antibiotics I’ve been on. My gastro doc sent me in for quite a few fecal exams and the only thing that showed up was the c. diff. She immediately put me on 2 weeks of vancomycin.

My doc is telling me how contagious this is. I’ve been sleeping n our guest bedroom, using the guest bathroom, I have my own dinnerware and utensils, I’ve e been wearing gloves and walking around with Clorox wipes. I have one more week of the vancomycin. My hands are pretty raw from the constant washing and using the Clorox wipes.

I am missing a trip to IN for my oldest grandsons birthday. Doctor gave me a “absolutely not” on that one.

I haven’t lost weight and thankfully I feel okay and no pains. Thankfully, I’m retired so it’s no hardship staying at home.

I follow up with my doc on 9/3.

From what I’ve read, I’m really afraid of relapse because this quarantine is driving me crazy and I’m depressed. I don’t want to think this is going to keep interfering with my life!

Thanks for listening to my “oh, woe is me” tale.

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