C. difficile -are your guts ever normal again ?

Posted by sue6408 @sue6408, Sun, Jan 27 12:57pm

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

This really depends on you personally, some people complain of issues years after C. Diff and some people are fine I think it really depends on how you take care of your system after the bacteria is gone. Try drinking kombucha that is supposed to be great for but health and has been said to help with bloating and stomach issues. Also a probiotics might help to heal your gut. I hope some of this helps!

@hgarm

This really depends on you personally, some people complain of issues years after C. Diff and some people are fine I think it really depends on how you take care of your system after the bacteria is gone. Try drinking kombucha that is supposed to be great for but health and has been said to help with bloating and stomach issues. Also a probiotics might help to heal your gut. I hope some of this helps!

Jump to this post

Thank you for responding , I do take kombucha (how much to take daily ? ) I take probiotics , floraster 2xdaily. I just don’t know what else to do. My G.I. Dr. Has no further ideas. My chart was sent to the Mayo Clinic and they refused my case for what ever reason. I am at the end of my rope.

@sue6408 It's not been a year out for me yet since my first Cdiff episode from taking Clindamycin. I've had 4 bouts of Cdiff, the last one being in October. It took three different types of antibiotics and over six months to find one that worked. It's been a little over three months since I finished Deficid. I still have days that my BM is loose but not watery. I don't have the bloating like you do but I do suffer from gas and especially in the mornings or if I lay back in a recliner. I don't know how many bouts of Cdiff you experienced but it has really taken a toll on my intestinal tract. I'm sure it will take a year or maybe two to ever feel like my "old self"…. I was always more constipated and that was more my norm. Especially if I eat things like licorice or jelly beans. Have you tried cutting back on the amount of probiotics you're taking. I'm no medical professional but I'm wondering if "too much of a good thing" can also cause some of your symptoms. You might try taking one Florastor daily. I'm cutting back to one a day and see if that helps with the gas I'm experiencing. It sounds like you've been tested for so many things, I'm sure you're emotionally and physically exhausted. Wishing you well in 2019.

Thank you for responding. I could try that . I have even tried beeno but that didn’t help either. I had the same infection for 10 months. I tried difficed , but tested positive 2weeks later. Next was vanc and that killed it . Every time I get the runs for 3 or more days, I get a stool culture. So far everything is negative. I just want to feel normal and enjoy life again.

@sue6408

Thank you for responding. I could try that . I have even tried beeno but that didn’t help either. I had the same infection for 10 months. I tried difficed , but tested positive 2weeks later. Next was vanc and that killed it . Every time I get the runs for 3 or more days, I get a stool culture. So far everything is negative. I just want to feel normal and enjoy life again.

Jump to this post

@sue6408 I just bought Gas-X yesterday and I'm going to try that and see if it helps with the terrible gas I wake up with almost every morning. It says it also helps with bloating so you might want to try that too.

@pines

@sue6408 I just bought Gas-X yesterday and I'm going to try that and see if it helps with the terrible gas I wake up with almost every morning. It says it also helps with bloating so you might want to try that too.

Jump to this post

Thank you for responding. Have tried this without good results. I hope it works for you.It seems people don't get better after c. diff.

thanks

I feel the same finished vancomycin and now I already have been in bathroom 10-15 times a day just moved to Florida got here last night that was interesting took forever I am
Just not eating so sick of the pain and bathroom my 5th gi dr another idiot sorry didn’t even schedule me for a follow up

I feel your pain. It just seems the Drs. Don’t know how to heal our guts after C. Difficile. I have been on the lo fodmap diet and I know any bean,pea or cabbage is off the menu. Trying the low fodmap might help identify culprits that cause runs and your worst bloating. I never thought I would have a box of diapers hidden in the back of my closet at my age.

So I am wondering if anyone here has had the fmt? I am headed in that direction after having had my 4th round of antibiotics. According to my gastro doctor, that is the next step. He says it has a 90% cure rate. Anyone with thoughts?

@ngorman25

So I am wondering if anyone here has had the fmt? I am headed in that direction after having had my 4th round of antibiotics. According to my gastro doctor, that is the next step. He says it has a 90% cure rate. Anyone with thoughts?

Jump to this post

@ngorman25 Our year 2018 sounds much the same. Except my Cdiff started in the spring after taking Clindamycin. You are just one year older than I am. I also took Flagyl first, then 10 days on Vanco and after the 3rd bout, I did the Vanco taper for 6 weeks. Finally after my 4th bout, I took Dificid (fidaxamicin). I wish I would have taken it after Flagyl didn't kill all the Cdiff spores. Prior to approving Dificid, my insurance asked if I had taken Vancomycin. They approved it, but the co-pay was still almost $1,000. It ONLY kills the Cdiff spores and does not kill your good bacteria. If I were you, I would ask your doctor about taking it before I would do the FMT. I have NOT had a reoccurance since taking it last October. I knock on wood every time I say that or write it. I also take Florastor or another S. Boulardii probiotic every single day. If you are considering FMT, you might google Open Biome and read up of the capsule form of FMT. The cost is $635 and I'm not sure if my insurance would pay for it. But if I have a 5th bout, I'm going to ask my GI to order it.

@ngorman25

So I am wondering if anyone here has had the fmt? I am headed in that direction after having had my 4th round of antibiotics. According to my gastro doctor, that is the next step. He says it has a 90% cure rate. Anyone with thoughts?

Jump to this post

I have not had a reoccurring infection ,just the same one for 10 months. (I am testing negative but still feel awful ) I have researched FMT and that would have been my next step. You can take a capsule or have it done thru colonoscopy.

Thanks Sue! I think I probably will have the fmt instead of trying dificid. I really don't want to take any more antibiotics than I have already. I had several antibiotics all last year for different reasons. I was "ripe" when I got an abcessed tooth in August and the dentist prescribed clindamycin, which finished me off! Then I got the "bastard bug" ,(cdiff). My gastro doctor called it that. I have had 4 flare-ups since September. I just dropped off a specimen, again, and am pretty sure it will be positive as I have had some diarrhea since Saturday. That's why I asked if anyone had any knowledge of fmt.

@ngorman25

Thanks Sue! I think I probably will have the fmt instead of trying dificid. I really don't want to take any more antibiotics than I have already. I had several antibiotics all last year for different reasons. I was "ripe" when I got an abcessed tooth in August and the dentist prescribed clindamycin, which finished me off! Then I got the "bastard bug" ,(cdiff). My gastro doctor called it that. I have had 4 flare-ups since September. I just dropped off a specimen, again, and am pretty sure it will be positive as I have had some diarrhea since Saturday. That's why I asked if anyone had any knowledge of fmt.

Jump to this post

I would go for it. It has a 90% cure rate I read some where. Good luck.

Hello everyone,

I encourage you to also view the Gastroenterology & GI Surgery Page on Connect https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/ where Mayo Clinic experts talk about C diff. IBD, celiac disease and other digestive conditions, and also discuss various treatments, ongoing research, current events.
For instance, in this post Dr. Darrell Pardi writes about "C. Difficile Care at Mayo Clinic” https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed/c-difficile-care-at-mayo-clinic/

Liked by pines

Please login or register to post a reply.