C. difficile -are your guts ever normal again ?

Posted by sue6408 @sue6408, Sun, Jan 27 12:57pm

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@taxpayinghorse

GAS X, helped me a lot. The meds that helped me the MOST is: calcium polycarbophil. I take 3 tablets 3X a day. I have horrible diarrhea and gas. Mainly in the morning and till around 2pm. Some days it doesn't go away at all with my stomach pain so bad I don't know if I can stand another moment of suffering. I don't have any trouble with constipation like some folks do. The calcium polycarbophil helps with both. I hope this helps you.

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@taxpayinghorse I tried the GAS X but didn't really notice any difference. Like you, I wake every morning with gas pains. I'm better after I'm up for awhile.

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Gas pains are probably because your gut doesn't have enough cilia to breakdown your food in the large and small intestines. The food you ate is just sitting in there and festering…and causing all that gas. The pills you are taking won't help move any of that festering bulk out…. So you have to have another plan. Getting rid of what is in your gut and starting over. Think about what you are eating and drinking. Is it clean food? Does the food help you heal or is it junk food? Does it have preservatives in it? Is it fatty? Does it have any nutrients in it? How late are your eating? These are some of the questions that need to be asked to see if there is a pattern that needs to be altered to stop the gas from forming in the first place.
Resting your gut for a day may be an answer where you only drink your good clean foods like water with lemon, smoothies with only clean fruits and veggies. This allows your gut/LIVER to clean itself out. Check out some of the sites on this blog site that talk about how to do this.

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@pines

@taxpayinghorse I tried the GAS X but didn't really notice any difference. Like you, I wake every morning with gas pains. I'm better after I'm up for awhile.

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It can also be a defect in your system. I had every test done and come to find out I had delayed gastric emptying. I tried diet changes and every medication. I had similar to a pyloroplasty so everything would flow. Cured my gas and bloating.

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@nurseheadakes

Gas pains are probably because your gut doesn't have enough cilia to breakdown your food in the large and small intestines. The food you ate is just sitting in there and festering…and causing all that gas. The pills you are taking won't help move any of that festering bulk out…. So you have to have another plan. Getting rid of what is in your gut and starting over. Think about what you are eating and drinking. Is it clean food? Does the food help you heal or is it junk food? Does it have preservatives in it? Is it fatty? Does it have any nutrients in it? How late are your eating? These are some of the questions that need to be asked to see if there is a pattern that needs to be altered to stop the gas from forming in the first place.
Resting your gut for a day may be an answer where you only drink your good clean foods like water with lemon, smoothies with only clean fruits and veggies. This allows your gut/LIVER to clean itself out. Check out some of the sites on this blog site that talk about how to do this.

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@nurseheadakes @claytamos I never had a problem with gas before last year and 4 bouts of Cdiff. And I've never had a day since those that I was constipated. I use to have a problem if I ate jelly beans or licorice. Not any more. Even those foods don't cause me problems like in the past. If anything, my BM's are loose and never fail every single morning. I do need to drink more water and I'm going to start adding lemon. And I'm going to do the peppermint tea at night. I think that does help a little.

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@pines

@nurseheadakes @claytamos I never had a problem with gas before last year and 4 bouts of Cdiff. And I've never had a day since those that I was constipated. I use to have a problem if I ate jelly beans or licorice. Not any more. Even those foods don't cause me problems like in the past. If anything, my BM's are loose and never fail every single morning. I do need to drink more water and I'm going to start adding lemon. And I'm going to do the peppermint tea at night. I think that does help a little.

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The water with lemon didn't do anything for me but aggravate my acid reflux. You may want to lay off the jelly beans and licorice. Simple sugars can cause gas and diarrhea. I get the Peppermint Gel Caps. They were more convenient. Good luck to you.

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Lemon water in excess can aggravate but three cups is generally enough for the stomach to take care of your three meals a day. sipping it is how you should be doing it. Peppermint is good. AS A RULE: NO to most any type of sugars because it feeds the bad bacteria/viruses in your gut. That is why cancers thrive in your body. Cancers are fed by any sugar you feed it. Decrease your sugar and salt and utilize herbs to get you flavors instead.

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@nurseheadakes

Lemon water in excess can aggravate but three cups is generally enough for the stomach to take care of your three meals a day. sipping it is how you should be doing it. Peppermint is good. AS A RULE: NO to most any type of sugars because it feeds the bad bacteria/viruses in your gut. That is why cancers thrive in your body. Cancers are fed by any sugar you feed it. Decrease your sugar and salt and utilize herbs to get you flavors instead.

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Everyone is different. What works for one may not work for another. Lemon water did absolutely nothing for me.

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Went in hospital with diverticulitis and they put me in quarantine because I had tested c diff. Never heard of it before then. I am taking Dr Gundry prebiotic and that has dried up my runny stools

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@ngorman25

Sue, I am disheartened to hear that even after the cdiff infection is gone, that you still have many symptoms. I guess there really is no full recovery from this. Makes me sad that I will never be the same again.

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Me too

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@sue6408

Did you get a diagnosis of ulcerative colitis ?

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Yes and I'm miserable.

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@sandyabbey

I just had my first FMT a week ago after failure of Flagyl, vancomycin & Dificid. I feel bloated if I eat even a small amount. It doesn’t show right now because I lost down to 85. I’ve been sick since October. Taken to the hospital once by ambulance. I just feel full easily. My problem is that when I’m clear before a relapse I go for 3-4 days without a BM. Only thing is that if they tell me to take something it gives me diarrhea. Right now at just a week from my FMT I can’t take anything of any kind without clearing it by my GI. He’s great thought & has tried hard to get me well. Cdiff is a monster that consumes you. I hope I don’t relapse after this FMT. He said lots had to have another one. He’s hoping I’m going to ne clear. I sure hope so. I have had no life since I got this.

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I'm going through the same thing.

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@0687

I'm going through the same thing.

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@sandyabbey So, long story short, my insurance company denied me doing the cologuard. When I called my doctor, I asked what do we do now? The girl said, "Dr. said it's either a colonoscopy screening or nothing!" I said then it's nothing and please tell doctor that he had the chance for a colonoscopy screening back in March when I had the colonoscopy fmt! So, I am now looking for a new gastro doctor! Unbelievable!

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@ngorman25

@sandyabbey So, long story short, my insurance company denied me doing the cologuard. When I called my doctor, I asked what do we do now? The girl said, "Dr. said it's either a colonoscopy screening or nothing!" I said then it's nothing and please tell doctor that he had the chance for a colonoscopy screening back in March when I had the colonoscopy fmt! So, I am now looking for a new gastro doctor! Unbelievable!

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@ngorman25 How are you doing after your FMT? I still haven't gone in to have the colonoscopy? I need to just buck up and make the appointment. I hate the thought of the clean out. But maybe I can get some answers as to why I have so much gas & stomach pains at night and early morning when I first wake up.

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Okay everyone….this C-Diff is a spore that lives in our gut in very small amounts. It is an opportunistic bug that takes over your gut if your lose your natural flora. This is a germ that takes advantage of our small and large bowel that is not functioning correctly. Example: When we take too many antibiotics – the microbe (the good bacteria that line our walls of the gut) are destroyed and eliminated. It takes many months to put back that flora (microbe) depending on how long and how many different antibiotics and other drugs destroyed or altered this flora. Your symptoms are a results of the lack of good microbe.
But to know what truly is taking place in your gut – a gastroenterologist needs to see what is taking place on both ends. I always have the endoscopy (top scope) and the colonscopy (bottom) scope done in the day. This provides the physician with a perfect opportunity to check for any cancer, diseases, twisting or turning of the bowel, pockets and abnormalities in the GI Track. They do biopies, they see and test what they suspect is anything that might be causing you problems including diverticulosis and cancer. IT IS worth the preparation and time to have this done regardless of how inconvenient it may be. It cleans you out. It provides the best view of what is going on inside you. This is the center of how you function and helps to define what direction you need to take. I had my last complete testing including a 24 hour pH probe last year and know that I will always be a carrier for the CDiff spore. But I know how to live with it. It didn't kill me years ago like it does each year to many people. There is no cure for it. We live and learn to work around it. https://www.cdc.gov/media/releases/2015/p0225-clostridium-difficile.html Check this out for the statistics.
I follow a diet that is focused on diverticulosis/diabetes directed and carb counting. I also continue to drink my celery juice in the mornings. Eloise

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@pines

@ngorman25 How are you doing after your FMT? I still haven't gone in to have the colonoscopy? I need to just buck up and make the appointment. I hate the thought of the clean out. But maybe I can get some answers as to why I have so much gas & stomach pains at night and early morning when I first wake up.

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@pines So far, so good. Fmt was March 22. Have had a couple scares with mucus and nausea and bloating but if that's all I get, I am good! As I wrote earlier, I am done with my gastro doctor. So, that's about it. Haven't posted in a while cause my tablet wasn't working and it was a pain to go on my computer. Can't gain any weight though and I worry about that if I should get sick. 89 pounds is not a whole lot to support any illness. How are you doing?

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