C. difficile -are your guts ever normal again ?

Posted by sue6408 @sue6408, Sun, Jan 27 12:57pm

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@ngorman25

@pines So far, so good. Fmt was March 22. Have had a couple scares with mucus and nausea and bloating but if that's all I get, I am good! As I wrote earlier, I am done with my gastro doctor. So, that's about it. Haven't posted in a while cause my tablet wasn't working and it was a pain to go on my computer. Can't gain any weight though and I worry about that if I should get sick. 89 pounds is not a whole lot to support any illness. How are you doing?

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@ngorman25 , @nurseheadakes I've been doing good. The last and 4th cdiff episode was last October. I wish I would have taken Dificid earlier since that was the antibiotic that worked for me. I've been fortunate that I didn't get any more sinus infections and no need for antibiotics the entire winter. I'm sorry to hear that you're still only 89 pounds. You've really had a difficult time. As for the colonoscopy, yes I will make the appointment. During my last one, the doctor was not able to complete it as we found out I have a tortuous colon. He couldn't make the last turn. So I ended up going through the process again and having it done at the hospital a week later where they could put the contrast inside me and do it that way while I was awake. Since 4 bouts of cdiff, I feel like I've read so many studies, watched so many videos and truly educated myself on this dreadful bacteria/spore.

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@pines

@ngorman25 , @nurseheadakes I've been doing good. The last and 4th cdiff episode was last October. I wish I would have taken Dificid earlier since that was the antibiotic that worked for me. I've been fortunate that I didn't get any more sinus infections and no need for antibiotics the entire winter. I'm sorry to hear that you're still only 89 pounds. You've really had a difficult time. As for the colonoscopy, yes I will make the appointment. During my last one, the doctor was not able to complete it as we found out I have a tortuous colon. He couldn't make the last turn. So I ended up going through the process again and having it done at the hospital a week later where they could put the contrast inside me and do it that way while I was awake. Since 4 bouts of cdiff, I feel like I've read so many studies, watched so many videos and truly educated myself on this dreadful bacteria/spore.

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So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?

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@ngorman25

So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?

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I always take my probiotics. My GI tells me to keep taking and it's been 4 years.

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@ngorman25

So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?

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Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

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He is correct. Probiotics are meant to for short term use only. They help to fill you gut with new microbe that were taken away by antiobics and other germs that are nasty to your good bacteria. Probiotics live only for a short while and eventually are gotten rid by your body's defense mechanisms. What you want to do is fill you GI tract with good clean fruits and vegetables that have the prebiotic nutrients on them and in them so that you gut can fill up on them and use them to fight off the germs/bad bacteria that fill your GI tract on a constant basis. Only occassionally, do you need to have a good and expensive probiotic (refrigerated kind) that will help you when you have a GI Distress. This will help with the GERD, diarrhea, wrong food you ate that caused an upset stomach. Physicians are now giving probiotics along side antibiotics because they know that one helps the other in the gut. This should be the cardinal rule. It wasn't always that way years ago.

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@annapocono

Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

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Correct – because these are the foods that have the prebiotics in them – they help put down the microbe that your gut needs. That is why the Cdiff has difficulty implanting itself into your GI Tract where it usually lives.

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@nurseheadakes

Correct – because these are the foods that have the prebiotics in them – they help put down the microbe that your gut needs. That is why the Cdiff has difficulty implanting itself into your GI Tract where it usually lives.

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I have mild rheumatoid arthritis in addition to having had C. Diff. When I reported to RA doctor that I had some constipation and was leery of taking any of the usual laxative type stuff because of what was in them, she suggested instead Prebiotics. i bought the "hyperbiotics" brand and it totally took care of the problem.

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since having C. Diff i have become ANEMIC. Has that happened to any of you? the GI doctor says that while the colon heals itself within two weeks, the intestinal flora takes a long time to restore and I think what he was saying is that I am not able to get all the nutrition from my food yet. I also have had a really HARD TIME PUTTING WEIGHT BACK ON despite eating huge amounts. has that happened to any of you?

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@annapocono

since having C. Diff i have become ANEMIC. Has that happened to any of you? the GI doctor says that while the colon heals itself within two weeks, the intestinal flora takes a long time to restore and I think what he was saying is that I am not able to get all the nutrition from my food yet. I also have had a really HARD TIME PUTTING WEIGHT BACK ON despite eating huge amounts. has that happened to any of you?

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@annapocono I, too, have not been able to gain any weight since I got sick last September. I worry cause I only weigh 89lbs. and if I get sick, I will be in big trouble!

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@annapocono

Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

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@annapocono Also, all the probiotic foods you have mentioned, I do not eat! Not yogurt. So, I really don't know what to do about the probiotic I have been taking.

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Yep…you all will be skinny – lose weight because the Cdiff is taking away all of your good bacteria from your gut and you have little to defend yourself and help you build yourself up. If you go to a Health Food Store – they can give you some suggestions of good Prebiotics that you might like to eat. Change to a different Probiotic – one that is refrigerated and has the highest number of the biotics.
These foods will also help you get rid of this super bug: papayas, aloe vera, any of the raw fruits and veggies and also oregano, rosemary, sage and thyme. These suggestions are from Anthony William's Medical Medium Life-Changing Foods. I follow his books for my own health and it works.

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@nurseheadakes

He is correct. Probiotics are meant to for short term use only. They help to fill you gut with new microbe that were taken away by antiobics and other germs that are nasty to your good bacteria. Probiotics live only for a short while and eventually are gotten rid by your body's defense mechanisms. What you want to do is fill you GI tract with good clean fruits and vegetables that have the prebiotic nutrients on them and in them so that you gut can fill up on them and use them to fight off the germs/bad bacteria that fill your GI tract on a constant basis. Only occassionally, do you need to have a good and expensive probiotic (refrigerated kind) that will help you when you have a GI Distress. This will help with the GERD, diarrhea, wrong food you ate that caused an upset stomach. Physicians are now giving probiotics along side antibiotics because they know that one helps the other in the gut. This should be the cardinal rule. It wasn't always that way years ago.

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I was told by my GI Dr not to take probiotics while on the antibiotics. The antibiotics kill the good with the bad bacteria and you're trying to replenish something that the antibiotic is killing. If you take the probiotics while taking the antibiotic you're stopping the antibiotic from doing it's job. He always told me to take the probiotics after i'm done with the antibiotic to build good bacteria.

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@ngorman25

@annapocono Also, all the probiotic foods you have mentioned, I do not eat! Not yogurt. So, I really don't know what to do about the probiotic I have been taking.

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Bananas are a good prebiotic.

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@claytamos

I was told by my GI Dr not to take probiotics while on the antibiotics. The antibiotics kill the good with the bad bacteria and you're trying to replenish something that the antibiotic is killing. If you take the probiotics while taking the antibiotic you're stopping the antibiotic from doing it's job. He always told me to take the probiotics after i'm done with the antibiotic to build good bacteria.

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Some docs do it both ways – depending on what part of the country you come from….

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@claytamos

Bananas are a good prebiotic.

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Indeed they are …

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