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C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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Her microbiome at this point has likely been obliterated from (1) whatever caused the C Diff, (2) C Diff toxins and (3) Vancomycin. The lining of her intestines is likely damaged too and will take time to heal. She may experience post-infectious IBS temporarily which will make it challenging to eat. I became malnourished and lost way too much weight in a short period of time. Things got much better for me when I put myself on the Low FODMAP diet temporarily and took high potency probiotics. At first I took ProBioMed 250 (game changer), then was switched to Visbiome 112.5 and Florastor. I was also told to drink Kefir, eat yogurt, sauerkraut and kimchi, but I could not tolerate those things early on. It took a while (months) before I could eat somewhat normal portions of food again. She should be patient with herself, get familiar with LOW FODMAP diet, and make sure to get enough nutrients and hydration. Keep an eye on weight loss and make sure she has a good team of doctors (Gastroenterologist and/or Infectious Disease).
Prayers sent that your mother has a complete recovery.