C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?

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Her microbiome at this point has likely been obliterated from (1) whatever caused the C Diff, (2) C Diff toxins and (3) Vancomycin. The lining of her intestines is likely damaged too and will take time to heal. She may experience post-infectious IBS temporarily which will make it challenging to eat. I became malnourished and lost way too much weight in a short period of time. Things got much better for me when I put myself on the Low FODMAP diet temporarily and took high potency probiotics. At first I took ProBioMed 250 (game changer), then was switched to Visbiome 112.5 and Florastor. I was also told to drink Kefir, eat yogurt, sauerkraut and kimchi, but I could not tolerate those things early on. It took a while (months) before I could eat somewhat normal portions of food again. She should be patient with herself, get familiar with LOW FODMAP diet, and make sure to get enough nutrients and hydration. Keep an eye on weight loss and make sure she has a good team of doctors (Gastroenterologist and/or Infectious Disease).

Prayers sent that your mother has a complete recovery.

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Profile picture for lonnieburk @lonnieburk

My mom just finished the first round of Vancomycin after being diagnosed with C diff. She is feeling better but has no energy. Any recommendations?

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Hello glad your mom is feeling better. It is completely normal to feel weak after Cdiff. I myself took S Boulardii for over 6 months to ensure no relapse and started eating cooked vegetables to get these good gut bacteria back in my gut. And slowly started eating all the raw greens. Sugar feeds bad bacteria so I stayed away from sugar no sugar at all cost. No fried food and no white bread It takes a while to feel like normal again it took me almost a year. Hope she gets better soon

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Profile picture for mhi @mhi

Hello glad your mom is feeling better. It is completely normal to feel weak after Cdiff. I myself took S Boulardii for over 6 months to ensure no relapse and started eating cooked vegetables to get these good gut bacteria back in my gut. And slowly started eating all the raw greens. Sugar feeds bad bacteria so I stayed away from sugar no sugar at all cost. No fried food and no white bread It takes a while to feel like normal again it took me almost a year. Hope she gets better soon

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I worked with a naturopathic doctor too and this was a game changer.

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C. difficile lives in our large colon as an opportunistic bacteria. It was one of four different bad ones that made me sick. They aren't good for you and takes over your gut if you get sick. A gut that is healthy would not have these bacteria in it. I got it after a surgery that went south and nearly died from it (sepsis). The antibiotics to treat the body wide sepsis only fed it instead of getting rid of it. I was sick for a long time.
After some twenty years, I have finally gotten rid of the five strains of C. difficile that have been living in my entire GI system. For the last four years, I have introduced new strains of biome that include fermented bacteria that replaced the bad bacteria that have taken up residence in my gut. Drinking water with lemon slices, kombucha any and all strains, and green juices daily ( cucumber/celery/parsley/hot water and ginger) has been what has helped me work thru my journey. I am in year 4 of 5 in a GUT/BRAIN STUDY at the University of South Florida and they have discovered this fact that with changes in what you eat will in fact change your biome with time. Anyone interested in participating in this study in Tampa FL can register since it is ongoing at this time. Thank you

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Profile picture for nurseheadakes @nurseheadakes

C. difficile lives in our large colon as an opportunistic bacteria. It was one of four different bad ones that made me sick. They aren't good for you and takes over your gut if you get sick. A gut that is healthy would not have these bacteria in it. I got it after a surgery that went south and nearly died from it (sepsis). The antibiotics to treat the body wide sepsis only fed it instead of getting rid of it. I was sick for a long time.
After some twenty years, I have finally gotten rid of the five strains of C. difficile that have been living in my entire GI system. For the last four years, I have introduced new strains of biome that include fermented bacteria that replaced the bad bacteria that have taken up residence in my gut. Drinking water with lemon slices, kombucha any and all strains, and green juices daily ( cucumber/celery/parsley/hot water and ginger) has been what has helped me work thru my journey. I am in year 4 of 5 in a GUT/BRAIN STUDY at the University of South Florida and they have discovered this fact that with changes in what you eat will in fact change your biome with time. Anyone interested in participating in this study in Tampa FL can register since it is ongoing at this time. Thank you

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I live in Central FL and would like to contact USF Tampa for more info on study participation. I did a search and found a phone and fax number (no email). I will call today. Thanks for sharing and congratulations on finally getting rid of that horrible C Diff.

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The study is being conducted by Dr Shalini Jain at the University of South Florida - USF Center for Microbiome Research Neurosurgery and Brain Repair Phone 813-974-6281 Email: jains10@usf.edu Study is for Adults ages 60 and older. They will give further info for those who qualify for this study. Thank you Eloise

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