Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I am considering stem cell therapy for facet joint syndrome. May I ask what problems you were experiencing with your back? Glad ur better.<br />
<br />

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@suebreen54

I think having this forum to talk to each other helps. If we go to a pain clinic and sign their paperwork follow the rules take as directed they arent going to take your medicine away. You have a right to pain relief. There are many people who are working for people in pain. Most people know nothing about chronic pain until it happens to them. Go to Amrican chronic pain association you will find that there are people to support you in findind pain relief. They have other sites to go to.

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I have heard that some people smoke pot for pain. But if u go to a pain clinic like I do they pee test and we r not aloud to smoke ( in pa). Or we will be kicked out of the pain clinic!!!! I am willing to try anything for pain but will have to wait on the law to catch up to the needs of the people. Many people have moved to other states to get help for there children. Can't say I blame them. When u have pain you will try anything! Sharon

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We have to look to the people who understand our pain. People who are on<br />
are side. They are there. I am not an addict. I have never been addicted to<br />
anything except running eating healthy because they make you feel so good<br />
you are at your bodies optimum. Now I can't do a lot of moving. I was<br />
getting injuries while healthy, while in physical therapy because I have<br />
a degerative desease, that is hereditary. I used to drink socially. I grew<br />
up in the 70s I grew up with a little drugs I never did anything alone or<br />
to get wasted I just didn't. When you grow up and have kids you hopefully<br />
don't have the genes for addiction and you don't do those things.<br />
Everything I have read opiots for severe chronic pain is exceptable.you<br />
have to be responsible and so that there is nothing to indicate you are<br />
addicted. So really if you were it's better to find out how to treat your<br />
pain within that. I do a lot of reading about my desease and my situation<br />
you should too<br />

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I'm not sure about pot taking pain away. If it did and was legal I would<br />
want my Dr to OK it and my pain Dr and I don't want to be high . I have my<br />
son and daughter in law and grandchildren and I don't want to be high<br />
around them. T could maybe see if you are having a severe pain crises even<br />
though you are on the most medications you can be. Pot might relax you<br />
and help you sleep and stop the pain crises fast. But I'm sceptical. It<br />
has to be excepted by the medical community for me .<br />

REPLY

Dear Jane,<br />
I am glad I ran into your post because I too have been researching<br />
PRP, I was unaware that insurance didnt cover this. If you dont mind me<br />
asking, about how much does one treatment cost?<br />
Were your laser treatments: cold laser? Briefly about me: I'm 40yo in good<br />
health and weight, save my 13 spine surgeries 8 of those being fusions both<br />
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.<br />
I've had over 35 epidurals and facet injections, and am kind of lost as to<br />
where to look for alternative treatments. I'm on a small amount of opiots,<br />
have a spinal cord stimulator etc.<br />
How long did it take before you started getting some relief.<br />
Thank you for your time and I look forward to your response.<br />
seanbeck<br />
<br />
Sincerely,<br />
Brandon<br />

REPLY
@19lin

I agree regarding TEMS and spinal cord stimulator, early on the doctors told me if the TEMS does not work neither will the stimulator, but I have heard of those who feel the stimulator was helpful to them. I think much of pain control is an individual thing. There is a lot about the pain process and the brain that science does not know yet. 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

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I'm on my 2nd SCS, this one my St. Josephs, my first was Medtronics. St.<br />
Joes also told me there would be no "tingling" or "shocking" feelings. Not<br />
so. I spoke to the rep and he said that technology would be approved this<br />
summer. Not getting my hopes up. I've also inquired about an intrathecal<br />
pain pump. How has that worked for you? I'm tired of taking oral opiods<br />
daily. I'm 40 w/13 spine surgeries, most of them being fusions both<br />
cervically and lumbar. I'm going crazy here in AZ and dont know where to<br />
look for help. Thank you for your post and I look forward to your response<br />
and suggestions,<br />
<br />
seanbeck<br />
Sincerely,<br />
Brandon<br />

REPLY
@19lin

I agree regarding TEMS and spinal cord stimulator, early on the doctors told me if the TEMS does not work neither will the stimulator, but I have heard of those who feel the stimulator was helpful to them. I think much of pain control is an individual thing. There is a lot about the pain process and the brain that science does not know yet. 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

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My bad. I meant St. Judes Medical, not St. Josephs.<br />
<br />

REPLY
@seanbeck

Dear Jane,<br />
I am glad I ran into your post because I too have been researching<br />
PRP, I was unaware that insurance didnt cover this. If you dont mind me<br />
asking, about how much does one treatment cost?<br />
Were your laser treatments: cold laser? Briefly about me: I'm 40yo in good<br />
health and weight, save my 13 spine surgeries 8 of those being fusions both<br />
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.<br />
I've had over 35 epidurals and facet injections, and am kind of lost as to<br />
where to look for alternative treatments. I'm on a small amount of opiots,<br />
have a spinal cord stimulator etc.<br />
How long did it take before you started getting some relief.<br />
Thank you for your time and I look forward to your response.<br />
seanbeck<br />
<br />
Sincerely,<br />
Brandon<br />

Jump to this post

Hi, The injections cost $3,500.00 for the PRP, stem cells that were<br />
injected from my neck all the way to my sciatica which was the worse pain I<br />
was complaining about, and laser treatments. I was able to be at a pain<br />
level around 3 or 4,( 9 before that my pain was 7 8 9),<br />
and was much better over all. I had to have one more stem cell injection<br />
on my sciatica, $2,500.00, about two months later and after that one, the<br />
pain went right away. It takes several months for the cells to regenerate<br />
the nerves as they are very delicate. That is the reason they give me<br />
laser treatments to help them heal me. I will continue to get the laser<br />
treatments as long as I need them. They are included in the price I paid.<br />
It is an expensive way to go, but people who have had surgery, and other<br />
forms of pain treatments end up getting the stem cells and PRP .<br />
I am just praying I will get better and better as time goes on. I am back<br />
at the gym working out with weights three time a week and I am 79.<br />
<br />
One other note is they gave me the amniotic cells instead of my own bone<br />
marrow as that would just be putting old cells back in my body. I hope I<br />
have helped you with this information. You can go on line to<br />
http://www.RestoraLife.com and check it out. This place is in Melbourne, Fl. I<br />
do not know if they have other places, but more and more doctors are<br />
getting involved with this new treatment for pain.<br />
<br />
Gd bless, Jane<br />

REPLY
@suebreen54

We have to look to the people who understand our pain. People who are on<br />
are side. They are there. I am not an addict. I have never been addicted to<br />
anything except running eating healthy because they make you feel so good<br />
you are at your bodies optimum. Now I can't do a lot of moving. I was<br />
getting injuries while healthy, while in physical therapy because I have<br />
a degerative desease, that is hereditary. I used to drink socially. I grew<br />
up in the 70s I grew up with a little drugs I never did anything alone or<br />
to get wasted I just didn't. When you grow up and have kids you hopefully<br />
don't have the genes for addiction and you don't do those things.<br />
Everything I have read opiots for severe chronic pain is exceptable.you<br />
have to be responsible and so that there is nothing to indicate you are<br />
addicted. So really if you were it's better to find out how to treat your<br />
pain within that. I do a lot of reading about my desease and my situation<br />
you should too<br />

Jump to this post

When pain takes control of one's body they can't function in every day<br />
life. Most people in the seventies tried some type of drug, are alcohol.<br />
But didn't become addicted. But smoking are baking with the drug, one must<br />
be careful, not to by from the street Because they add things to. It's<br />
better to get a prescription. I have seen some that have had terminal<br />
cancer and had a card from the doctor. An most don't understand what pain<br />
does to a body, because they have never experienced anything more than<br />
soreness from work hard.:!<br />
salena<br />

REPLY
@seanbeck

Dear Jane,<br />
I am glad I ran into your post because I too have been researching<br />
PRP, I was unaware that insurance didnt cover this. If you dont mind me<br />
asking, about how much does one treatment cost?<br />
Were your laser treatments: cold laser? Briefly about me: I'm 40yo in good<br />
health and weight, save my 13 spine surgeries 8 of those being fusions both<br />
anterior and posterior of my cervical spine from C3-T1 as well as L3-S1.<br />
I've had over 35 epidurals and facet injections, and am kind of lost as to<br />
where to look for alternative treatments. I'm on a small amount of opiots,<br />
have a spinal cord stimulator etc.<br />
How long did it take before you started getting some relief.<br />
Thank you for your time and I look forward to your response.<br />
seanbeck<br />
<br />
Sincerely,<br />
Brandon<br />

Jump to this post

Nice to hear of your stem cell treatments. Funny, I am Jane also;
living FL. I would be unable to pay the cost, and am a young 85. No drugs are tolerable for me, and none on the epidurals helped . Last week a new pain mngmnt Dr, my 4th in 25 odd years says there is nothing else he can do for my 8
and 9 pain level back. Five surgeries later, and with no drugs or meds it is tough.

Perhaps we could meet!!!! Please private message me.

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